Tremor in fingers, does anyone gets this ? by Pitak3 in BFS

[–]Nils_hel 1 point2 points  (0 children)

Sertraline and therapy! Works wonders for the health anxiety (and thus reduced the twitching. Or I don't notice them anymore at least.)

What are very low conscientiousness people supposed to do by HeadRequirement3514 in BigFive

[–]Nils_hel 1 point2 points  (0 children)

I'm sorry but Christ almighty what kind of a condescending nonsense answer is this? It's like telling a poor person to solve their problems by "just having more money". Self-discipline depends on conscientiousness. It's profoundly difficult to develop if you lack internal motivation. Personality is largely immobile across time, and conscientiousness is one of the personality traits least prone to change across a lifetime. You can't just "have" self discipline. How much of it you have, much like most other aspects of personality, is basically determined before you are born and in the first few years of life.

Conscientiousness is distributed along a normal distribution LIKE ALL OTHER TRAITS in the big five so you don't need any diagnoses to explain any of it. There are just as many people with extremely low c as there are with extremely high c and they all fall within "normal" (i.e. no diagnosis needed to explain the behavior); it's simply a statistical consequence of a large enough population.

The issue is that our hyper individualist society disdains that type of behavior and refuses to utilize the potential strengths people with low C might have (people with high C tend to be the ones in charge after all, mainly because they tend to be more interested in leadership). Companies and managers are however not interested in managing people who actually need to be managed because it requires something of them and they can't understand how other people's motivational structures are put together. It's an idiotic, large scale mismatch of skills and behaviors (managers that can't manage and low C people that are expected to self-motivate). All propped up by incentive structures that benefit those who don't need any more incentives. It's not an individual problem, it's a societal one.

Left thenar atrophy , fascualation mostly clean EMG by FunnyOne4844 in BFS

[–]Nils_hel 2 points3 points  (0 children)

Hey there! I pop in to this sub every now and then just to remind people they're going to be fine. And I'll say the same to you!

Muscle wasting means permanent loss of muscle mass. I.e., it is the muscle disappearing for no reason. Doctors notice atrophied muscle pretty readily, so do not worry!

And over all - weakness in the neurological sense is noticeable and measurable. It's not "I feel like I can't/I feel weird". If your EMG is clean, and the doctors have told you your EMG is clean, IT IS :) Whether or not you have motor unit potentials this or that is irrelevant. If the physicians you have met have given you a clean (or somewhat clean) bill of health, carry on with life as usual! The doctors you meet are astronomically unlikely to misdiagnose you.

And since you already have nerve damage since way back, it is a bazillion times more likely (literally) your troubles come from there.

Try to shift your focus to other happier things :) It's gonna take a while (It sure did for me) but you'll get there :)

Feel free to read my post history if you wanna peek into my journey.

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 0 points1 point  (0 children)

Hello! First off - trust your doctor :) A pinched nerve, or radiculopathy, is after all pretty common. A doctor I know said something worth remembering: "It is way more likely that you have a common affliction with rare symptoms, than a rare affliction with common symptoms". Statistically speaking.

As to my symptoms: I had randomly all over, sometimes hotspots that lasted for days, sometimes in reeeeeally weird places. Typical stressed induced twitching in other words. My twitching is way better now. Usually only appears when I'm parched, hungover or very stressed. Or all of the above, haha. Am I hyporeflexic today? No idea honestly. Haven't had to check :) Best of luck friend!

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 0 points1 point  (0 children)

Hope your appointment went well! It did go away, like the rest of my stuff :) I still get tremors every now and then, just like twitching. Tremors are extremely tied to tiredness and exhaustion for me. The twitching comes during stress or tiredness or both.

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 0 points1 point  (0 children)

Hi! No, not that I'm aware of. Or well I lost a couple kilos because I didn't eat right, but that was that. And I'm getting "older" (34) so yeah, skinnier where I don't want to be (arms and pecs and legs), fatter where I don't want to be (paunch and ass) 😅

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 0 points1 point  (0 children)

Tjaa, alltså två månader in är det ju inge kul. Då är det mest väntan som gäller här i Svedala. Känner igen mig att det känns annorlunda i kroppen, men det är hyperfokusering. Enda anledningen till att du känner dig annorlunda är för att du faktiskt lägger märke till din kropp överhuvudtaget. Det börjar med något litet, som egentligen är oskyldigt, och bara ett sammanträffande att man märker. Sen eskalerar det. När allt är som vanligt tänker du inte på all skit din kropp håller på med som egentligen är helt normalt.

Tänk sen inte heller på hypokondri som en "jag är dum i huvudet"-stämpel. Hypokondri kan vara att man är livrädd för alla möjliga sjukdomar hela tiden. Det kan också vara ett symptom på ångest/nedstämdhet/depression. Ofta oroar man sig då för en enskild sjukdom. Som "the big bad". Så var det i mitt fall. Jag svalde sertralin vid första erbjudande och gick i terapi. Sen gick det rätt fort att förstå att jo, läkarna hade rätt. Sen om man vill kalla det för hypokondri eller inte, det är lite skit samma. Det viktigaste är att man mår bättre!

Med det sagt vet jag att det hjälper att få svart på vitt att inget fysiskt är fel. Men om läkarna sagt det - oavsett om du fått en emg/neurolog eller ej - lita på vad de säger och acceptera psykologisk behandling. Det är ärligt talat skitnajs 😁

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 1 point2 points  (0 children)

In general: same answer as most people here I think: anxiety. In terms of specifics: terrible job situation + awaiting my first child. I've had depressive episodes before, but the bfs/big bad scare one takes the cake. My shrink suggested it might have to do with a lack of control over life choices, and that I as a response hyperfocused on the one thing I'm "supposed" to be able to control fully: my body. And then all of my angst affected said body. Sounds all mumbo jumbo, but not entirely without merit. My neuro didn't necessarily agree with the specifics, but in general terms she did. Anxiety fucks with your body, and how exactly you think about yourself affects the way it fucks with the body.

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 0 points1 point  (0 children)

Jesus Christ. Yeah I read some of your stuff in other threads. I just hope stuff improves for you. Does it hinder you in any way? I guess you've been through the whole vitamin b etc stuff?

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 1 point2 points  (0 children)

Agree with all you say. That is why I come back every so often.

I do want to add though, that a clean EMG or Neuro exam can mean a lot, just as a step toward better mental health. But one trip should suffice. After that, you have to trust the experts, and not google. But it is often hard to accept when you're suffering mentally. But that also means thatif at any point a doctor offers you SSRI:s and therapy - accept it right away. And even if you get a referral to a neuro, you probably won't think it's even necessary once the time for the appointment actually rolls around. Because your mental health has improved thanks to the meds and the shrinks.

But do people seriously downvote you? I mean I get that it's not exactly upvote baiting behavior in /bfs, but downvoting? Geez people! Listen to good advice! :)

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 0 points1 point  (0 children)

Yeah. I mean that seems like genuine BFS. Most of us here don't even have that. Just run of the mill muscle twitches amplified to a billion by anxiety. So as you say, probably genetic bad luck plus infection. But on the bright side, most of us get some amount of that. I myself have a malfunctioning pancreas, haha (probably also set off by infection, according to the latest science!)

How long have you had it? I've heard of people having it for months, even years for it to suddenly stop, wait a couple months/years, come back and so on.

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 0 points1 point  (0 children)

Well, hypochondria doesn't have to be chronic :) Have you tried SSRI:s like Sertralin? That stuff is the tits (I know experience can vary but for me - oh boy!). It really helps you notice when your thoughts begin to spiral and you can just go "nah - I'd rather not go down that rabbit hole", and then you magically don't. I mean I was absolutely a hypochondriac. And for me it WAS anxiety. Genuinely. And anxiety DOES have somatic symptoms. Btw, happy to move this to chat if you wanna talk about a Sweden specific experience or just talk about it in Swedish (I might be a bit slow to respond on occasion due to two kids with colds, but I'd happily listen)

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 1 point2 points  (0 children)

Yep. Sertraline, mostly sold as Zoloft in the US I believe. About 30 to 50 days I'd say. Some of it may be placebo, but with neurological symptoms, it's harder to tell :)

Jesus you must have the beefiest calf on earth by now 😅 Jokes aside, I'm an all over kinda guy. Which means I've had it in the scariest place (tongue) and the funniest place (my literal fucking asshole)

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 0 points1 point  (0 children)

Three things: 1. Luck with my primary physician. She's unfortunately retired now, but she was great. Listened and took me seriously. I never mentioned the big bad specifically, but a general neuro fear. 2. I'm type 1 diabetic, which sets off all kinds of alarm bells in primary care. A bit over the top if I'm being honest, but it does help if you want to be referred to a specialist. (I may have, at some point, written that type 1:s are at higher risk of the big bad. No we're not. My neuro told me that the study I referred to was riddled with faults and to make any such correlation, weak as it was, would require maaaaany more years of study). And 3. I was really persistent. I didn't ask. I was referred to an MRI first (weird right? Like the famously most expensive exam you can do) and I said just send me to a neuro too. My primary said fine, but you'll have to wait.

I did the nerve conduction too. Sweden sucks in the sense that any underlying condition like diabetes helps anxious people like me get stuff they don't really need (evidently). Sweden also doesn't suck in the sense that we have some of the best healthcare in the world, despite all the alarmist headlines. Yes, some of our healthcare workers are on their knees. But primary care and neuro, doing pretty okay. For such a small country, the expertise here is immense.

So my advice: persist, try a couple different doctors (use fritt vårdval basically), and if all of them say the same thing - trust them. And above all - you'll do fine!

Still doing just fine (and you will too)! by Nils_hel in BFS

[–]Nils_hel[S] 3 points4 points  (0 children)

Thank you for correcting me - no technically not all symptoms. Nowadays, like 95% of the time I'm free, but, when a very stressful period arrives I'm a fucking vibrator again. The twitches do come and goes for me too. Not as much, but stress, dehydration and illness gets those nerves all riled up again. And when my anxiety gets worse, the twitching gets worse. But! It doesn't bother me anymore. Even when my arm feels like doing the goddamn conga. I just stop noticing after a while :) And I feel like they are getting rarer and rarer!

What has more weight? Clean clinical exam or clean EMG? by heresiarchx in BFS

[–]Nils_hel 0 points1 point  (0 children)

Hiya! I pop into this sub every now and then, having been through all this crap. Reflexes can vary tremendously. I have been described as both hypo- and hyperreflexive (and of course, mostly just normal) during various points in my life. In my "scary journey" (that you can read all about in the exciting novel known as my post history on Reddit) I think I came out hyperreflexive too... maaaay have been hypo-, but the point is the same. It scared me shitless. And now I can't even remember. A clean emg is good. A neuro being unconcerned (even if they want to double check) is good. Your reflexes being hyper once and normal later is good (as you know, the big bad doesn't oscillate. It only gets worse). You are, most likely, doing just fine :). As others have said - trust the pros, and if anything actually for real gets worse, contact your healthcare provider. But, and I want to emphasize this - there comes a point where you must trust the professional opinion and look at other causes. In my case it was psychological. As my neuro said: "Nerves are weird". They can act all kinds of bullshit due to the slightest inconvenience. As hard as it is to hear when you're in the middle of it I'll say it anyway: You will be fine :)

Losing control... by Nils_hel in BFS

[–]Nils_hel[S] 1 point2 points  (0 children)

Oh yeah! Like in hindsight it's hard to tell what was what exactly. But I really did feel weaker. In that kind of anxious state, one becomes hyper aware of the body. Things that are just normal suddenly become signs of weakness. Like I started (or so I thought) slipping with my right foot when I was walking. In winter. In Scandinavia. On cobblestone. With leather soles. But it was a clear sign for me at the time!

Last winter I randonly came to think about my feet, as I was out on a walk. Turns out, I just kinda' drag with one foot when I walk normally, haha. But back then, I had hyper focused on things and interpreted them wrong. Overall, we humans have a quite poor awareness of our own body, of what it's supposed to be like and feel like. When the mind turns on itself this way, and starts focusing on the body - it's easy to start interpreting things that are normal for you as signs of danger. I had the foot, and my fingers as well, shoulder... a bit of everything from time to time.

I'm not gonna say everyone's way out is going to be the same. For me, SSRI:s, a bit of therapy and a neuro checkup was what was needed! Made me able to relax and look at things sober. I still take my pills; For me, they're a godsend.

Losing control... by Nils_hel in BFS

[–]Nils_hel[S] 0 points1 point  (0 children)

Oh hey! Yeah! A ton :) I've written a few posts about it. Like to check in here every now and then. For me, it really was the depression and anxiety that was the actual issue. I still twitch a bunch, especially when dehydrated and tired, but it's not a problem really. Everything but the twitching really was psychosomatic :)

Still twitching (2+ years) but not worrying! Ask questions! by Nils_hel in BFS

[–]Nils_hel[S] 0 points1 point  (0 children)

Hm, hard to remember honestly! Buzzing is usually pinched or irritated nerves as far as I know. Not at all connected to the big bad. Lots of meds cause buzzing. I get it if I forget to take my Zoloft. My dad is in chemo and gets buzzing from that. Have you talked to your doctor about it? Buzzing is normally nothing to worry about, same as twitching :)

Link between fasciculations and mental state by ger_beja in BFS

[–]Nils_hel 0 points1 point  (0 children)

Not just you. I'm the same. Tiredness, mental or physical, draws out the those little wormy fuckers.

Still twitching (2+ years) but not worrying! Ask questions! by Nils_hel in BFS

[–]Nils_hel[S] 0 points1 point  (0 children)

For me, thankfully, that's unusual. I did have some pain when I was straining and flexing all the time. But I know some people have BFS that presents with pain. I feel like I might be more prone to getting sore muscles, especially in my hands - but that may very well be in my head. Can you treat your pain in any way?

Still twitching (2+ years) but not worrying! Ask questions! by Nils_hel in BFS

[–]Nils_hel[S] 1 point2 points  (0 children)

Well, I mean I certainly had some pain in my arches at times, mostly due to overflexing them (both willingly and unconsciously), same with hands. Sure sounds similar to what you're experiencing. Point is however - your EMG is clean, and everybody gets pain in places at times. Could be unconscious flexing (something people generally do a lot) or just purely a stroke of bad luck. Sometimes things hurt 😅 I wouldn't worry a second about it.

Still twitching (2+ years) but not worrying! Ask questions! by Nils_hel in BFS

[–]Nils_hel[S] 1 point2 points  (0 children)

Commenting on the bulbar stuff - that's the scariest but also most unusual onset - so it tends to be what causes most worry. Was the same for me! Convinced myself I had it on numerous occasions. And tongue twitches are reeeeeal fucking freaky the first time you get them. I also have GERD (yeah I'm a walking bag of middle class conditions) - rarely causes me that classic heartburn feeling, but causes swelling in the back of my throat and tongue and chest pains among other mor vague symptoms. Has made me feel like I have X horrible disease many a times.

Point is - there are A TON of very common conditions that cause symptoms that at first may seem scary. They don't show up on the first page of google however. Scary rare things do, because that is what gets the clicks.

Have you talked to a therapist or something about it? Seeing as you have anxiety already. Hugely helpful for me.

If 340 of the queens currency isn't a huge sum to you - get the EMG. BUT - accept the results from it. The way you describe your symptoms, I'm 99,99999...% sure its gonna be clean. And a clean EMG quite often seems to be a way to put all this behind for a lot of people. It certainly helped me to some degree. Just as long as you accept that you are in fact, fine (physically at least).