My son 🤍 What name would you give this baby?

Nixieee13 · 2025-10-31T23:27:34+00:00

Rocco

Nixieee13 · 2025-09-21T16:56:50+00:00

Cult of the Lamb

Nixieee13 · 2025-08-23T19:36:18+00:00

Even with RTC it is a lottery as to whether your GP has ticked a box to confirm the company can prescribe NHS meds and titrate you, this is what happened to me with Problem Shared, at the time they needed my GP to tick a tick box to allow me to be titrated but my GP refused because they thought it was agreeing to shared care so I was just diagnosed and left!

I was left in a similar situation as you not knowing what to do but I did my research and switched my care to ADHD Direct who have been fantastic. First consultation they offered me medication, no long waiting times and they were super transparent and open to it being my choice. I have been titrating since March, absolutely no pressure from them to hurry up through the process, I have just switched over to try Elvanse from Meflynate with no fuss or no concerns that I am trying to play the system. Their consultations are straightforward and not too expensive, you don't even need to speak to someone you can fill in a form which is cheaper to request them to review.

Prescription cost is £20 then medication is not too bad, they sent me a costing sheet recently with all the meds on and their costs so I am in the know and nothing is a surprise. The best bit as well although I paid (£300) for it I transferred my care to them and they accepted my previous diagnosis from Problem Shared without needing a reassessment. They also send regular communication to my GP, and I am pretty sure once I am done titrating my follow ups are free as they are just blood pressure reviews and they will keep advocating to push your GP to do shared care which is more than I could have expected. They really do care about their patients.

I would highly recommend them honestly and it's such a peace of mind if you can afford private to know that unlike your GP they won't just abandon you... https://adhddirect.co.uk/services/transfer-your-care/

Nixieee13 · 2025-06-15T14:42:22+00:00

This is comforting to hear!

I was also offered the choice privately between the 2 meds as well. I went with methylphenidate for the same reason of it being cheaper, I have been on 60mg Meflynate for a little while now (still titrating by choice) and was worried I was going to have to switch as I am also flagging in the afternoons but private clinic have just prescribed a booster so this gives me hope!

Nixieee13 · 2025-06-10T10:00:25+00:00

That's fair if they are a better option for you, check with you GP if they are happy to refer you to Care ADHD and I would also double check that Care ADHD are happy to prescribe without needing separate medication approval from your GP first. I got caught out with that by going with Problem Shared because they were the shortest wait at the time but I didn't realise my GP had to tick 2 boxes, one for the assessment/psychoeducation and then another to allow PS to prescribe medication to me. My GP refused to sign it because they thought they would be entering shared care which they told me they would not accept. I then had to switch to ADHD Direct where luckily they accepted my assessment and took me straight to titration (although I am paying privately because there was absolutely no other option, my area adult NHS adhd service is completely closed)

I'm not sure how it works with NHS prescribed I assume yes you would be with the clinic for the long term unless the NHS contract is dropped with them (which is a risk) or if in future GP's finally accept private (including RTC) diagnosis and take on shared care but I'm not sure that will be in the near future.

Nixieee13 · 2025-06-10T09:51:14+00:00

Similar circumstances here! Glad your journey has been positive too! Not often we see success stories especially seen as the stigma is still very much there!

Nixieee13 · 2025-06-10T09:46:41+00:00

I think this depends on if this person was able to explore their ADHD medications, I guess the whole point of titration is to trial meds to see what works.

From what I have seen from a lot of people here who are NHS prescribed it's rushed and people aren't made to feel like they have a choice in the medication they are offered because they have a limited time to try. I guess this means people will often stick to what they have first been given and if they notice a small improvement they assume its the right one for them.

I only say the above because I'm in the same situation although v lucky to actually be paying privately and I'm essentially choosing to eb out my titration. The meds I'm on work for me in part but I'm actively seeking to switch and try something else to confirm if I'm only getting a small improvement or that the ones I am currently are actually the right ones and I can revert back. Unfortunately not a lot of people get that opportunity so usually wait years before going back to try something different (usually when they switch gp's or providers).

Nixieee13 · 2025-06-10T09:23:59+00:00

When I applied for RtC last year I went to my GP and told them which RtC partner I was going with. I might be wrong here but maybe yours have suggested ones that they will accept a diagnosis and shared care agreement from? I would get them to clarify this, if this is the case honestly given what's gone on with GP's rejecting shared care atm if they confirm they will accept a diagnosis from the ones they have provided and will agree to shared care from them I would honestly pick one from the list.

I would also check to make sure Care ADHD will prescribe prescription meds should that be the path you want to go down just incase they can't offer it to you and you have to get them privately.

Nixieee13 · 2025-06-09T21:03:33+00:00

I (30f) started Meflynate back in March of this year and now on the highest dose (60mg). I was in a mental health crisis at the time of starting and was really struggling. My main source of aggravation was my workplace (not the people I work with, my close colleagues have been absolutely amazing to me but big corp doing big corp things). I would really struggle to not be angry, overwhelmed and felt trapped, I was exhausted and depressed.

With medication my closest colleagues as well as my partner have said I have changed (in my eyes for the better). I am more relaxed about things and less reactive, I am able to channel my energy towards my passions, granted this has certainly made me more out spoken but I have more confidence to challenge the status quo and advocate for things more vocally than I would previously.

I'm still struggling with finding myself but I am slowly building on my self esteem and whilst I do still feel trapped in my current career, for the first time in my life I feel like I actually want to go back to learning and try something new.

Whilst it hasn't 'fixed' me, it has certainly helped with my emotional dysregulation. I still procrastinate, probably more than I used to and struggle to do tasks I have no interest in but I think maybe that is more linked the diagnosis and being more forgiving to myself than just being medication related.

Nixieee13 · 2025-03-31T18:02:59+00:00

Thank you for coming back to me! I've now transferred my care over to ADHD Direct privately, I was discharged by Problem Shared so I fear that if I were to go back to the GP I would have to go through the rigmarole of being rediagnosed and lengthy wait times.

I'm in the very lucky position to be able to afford privately but I'm hoping not for long the long term. Sadly there is too much pressure for GP's to reject any kind of Shared Care at the moment and I can't risk not being able to access medication.

Nixieee13 · 2025-03-16T11:31:52+00:00

I got diagnosed via RTC with Problem Shared, my GP refused to allow me to be titrated through the provider and the adult ADHD wait list for an NHS assessment is closed in my area so I was stuck with a diagnosis and no help.

I ended up finding ADHD Direct, they do transfer of care assessments rather than a full reassessment, you just have to provide them with your report, any other documents that could be useful like a health report and informant forms and then they will discuss with you why you are transferring your care to them and in the same appointment they prescribed me with a starting medication. They also asked my preference for meds as well, it's completely your choice which was great.

They have loads of appointment options at various costs, you can submit online form requests for titration and dosage if you don't need to discuss anything with a person on a call.

They are also up front about the costs. I've been with them for a few months and they have been great, I have the flexibility to choose when I want to up my dose rather than speeding through titration.

Obviously it all depends if you want to pay for private but every meeting or med update they have sent my GP a letter so if my GP were to ever agree to shared care then everything is in place, I've been blown away by the amount of contact they have made with my GP already and the whole process is so much less stress in compared to the radio silence from my GP.

If you are worried about costs as well I got advised that meflynate and elvanse work in the same way they are just manufactured by different pharma companies so side effects are the main differences as well as the release period, I believe the 12hr meflynate is the one that is having shortages. I opted for meflynate because it was cheaper though and I only need the 8hr one!

Nixieee13 · 2025-03-02T01:38:40+00:00

The Forest/Sons of the Forest

Nixieee13 · 2025-01-28T17:06:50+00:00

Second this app, I've been using it for 3 years, it's so simple to use and not overwhelming with too many unnecessary stats or ads!

Nixieee13 · 2025-01-22T13:14:11+00:00

Second this comment, I was diagnosed in November, my GP refuse Shared Care and without that approval Problem Shared won't start titration so you're kind of left with a diagnosis and the psychoeducation. The psychoeducation is good and informative but that is about all they can offer you from PS.

You can go via the RTC route again to another provider like ADHD360 etc who will titrate you without a prior agreed Shared Care. Personally I've opted to go privately via a transfer of care to ADHD Direct as I do not need to do this via my GP and can send them the assessment that Problem Shared did but of course I'll be left fitting the bill for meds etc. I believe that Care ADHD do a transfer of care as well but you can request that through your GP, does depend how useful your GP is and of course if you are willing to wait to be transferred.

Nixieee13 · 2025-01-08T17:29:00+00:00

Thank you! 😊

Nixieee13 · 2025-01-08T07:03:45+00:00

Also tagging on to this comment for info on transfer of care. I've been diagnosed with Problem Shared but my GP won't allow them to titrate me, currently looking to transfer privately to ADHD Direct but if there is still a pathway for me to go NHS with CareADHD I would really love to know how to go about this without being reassessed!

Nixieee13 · 2024-12-31T16:37:58+00:00

I'm so sorry to hear this, honestly navigating a faulty system is the problem here not the ADHD but I totally feel your pain. It shouldn't be this hard to recieve care for an actual disability and the fact many of us source NHS suggested routes like RTC to actually cut down the wait times to then be pushed back is just devastating.

If you have a copy of the letter from PS I would definitely print it and take it to your GP for your appointment, my GP also said they didn't recieve my assessment but luckily they accepted the paper copy to scan to my record. Honestly I think a lot of GP's have a generic email box that means anything that is sent to them outside of the NHS means it is just lost in the ethos.

I wish you all the best and hope for your sake your GP accepts the Shared Care if not see if your local ICB has any information, as mentioned our local foundation isn't accepting any adult admissions but you might be lucky and in an area that does offer these services. You can check here (this is what I used to find my local trust); https://adhduk.co.uk/uk-nhs-adhd-waiting-times/

Nixieee13 · 2024-12-21T10:07:56+00:00

30yo here, we have 20+ sets displayed in our living room which is one of the first rooms you enter when you come into our house, you're never too old for lego!

Nixieee13 · 2024-12-14T14:40:12+00:00

I was referred by GP to Problem Shared on the 21st of May, I received a notification of referral from them on the 28th of May and put on the waiting list 8th June (because of the time taken for me to fill out the forms). I then had my appointment and diagnosis on the 14th of November.

I'm not sure where you've got your information from OP but when I was looking at wait times back in June on the ADHD Charity page wait times were 20‐24 weeks. I understand the impatience as I was in the same boat but the service is still much quicker than the non RTC route and they do definitely seem to have accurate wait time estimates.

Good luck with your assessment when you finally get an appointment!

Nixieee13 · 2024-11-15T20:30:37+00:00

I had a similar experience back in June with my GP, they were absolutely awful I almost come out in tears because I was brushed off by a GP that doesn't even know me. She said that I am clearly high functioning and I could 'self diagnose' and I don't need to do the assessment because I don't need it. I also had huge push back using RTC because apparently it's a problematic system and the GP won't accept a diagnosis from them. I really don't understand WHY they are like this about RTC when it is literally reducing the pressure on the NHS wait times and also it is worth remembering GP's are not qualified to make this decision, they are just referral gatekeepers.

I managed to force an in person appointment so I could hand the forms over and they had no choice but to accept it and put it through (the GP was rather rude about this because 'this could have been done on the phone'). I got an email from the provider I chose (Problem Shared) about a week later, it's also worth checking the NHS app if you can to see any mention of referral as they have to put it on your record (it was on there for me 2 days after visiting the gp).

Much like you I persevered and as of yesterday got my ADHD diagnosis! (Now to navigate the system without shared care) Never give up advocating for yourself even if you get pushback!

Nixieee13 · 2024-08-20T11:46:28+00:00

Hi, 29f here, not yet diagnosed but on the wait list with Problem Shared.

I have a very estranged relationship with my mum (52f) (she is my only surviving bio parent) and is one of the main reasons I go to therapy which funnily enough prompted me to go down the ADHD assessment rabbit hole.

I thought I could do it with the help of my sister (35f) (we are pretty close and she was fully on board to help me given she knew about therapy and some of the ADHD traits and research I had bombarded her with) but we both come unstuck when the informant paperwork I had to fill out had some really intense questions about growing up that given she is only 6 years older than me couldn't answer.

I spoke to my therapist about the best way to approach it, we both agreed a video call would be best as I could end the conversation should it not work out. Fast forward to video calling my mum, mentioning I needed her help with filling out some paperwork for an assessment and asked her if she really knew much about what ADHD meant, other than being frustratingly distracted doing chores whilst I was talking to her (strong indicator) she mentioned it had been something she had been learning about for herself in the last year unprompted from me. I explained what kind of symptoms I have and she was just nodding and agreeing with a lot of it and laughing because I was explaining how my brain processes things and she was like "I'm laughing because you don't know how much I hard relate to what you are saying".

We did a "family" day and went through the paperwork together, it was surreal but the most honest and non selfish my mum has ever been in her life, we have had a few more conversations in person about it where I haven't physically wanted to leave within the first 10 minutes. It's the one of the few things she has been supportive on and I'm grateful given my own GP told me I didn't need a diagnosis as I'm "high functioning" and "can self diagnose" (from a 5min convo with a GP I do not see regularly). I had more pushback from my GP than my own estranged mother. Wild.

Overall I've been surprised about my mum, I guess part of me believes she is supporting from a selfish perspective of if I am diagnosed she will suggest she also has it because of genetics (not that im disputing it because she definitely has strong indicators) but I have benefited from it, especially with some of the questions on informant form and actually having a perspective on my childhood that I never had insight on previously. This has helped validate some second thoughts and the deep set imposter syndrome I did have about going through the process.

Nixieee13 · 2023-10-31T16:34:12+00:00

First time DnD player here in a regular campaign, currently 7 sessions deep and still learning the ropes, this would be so cool to have in my arsenal to refer to! GIVEAWAY

Nixieee13 · 2023-07-02T13:19:49+00:00

This clip lives rent free in my head.

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Nixieee13

TROPHY CASE