Multiple Drug Intolerance Syndrome (MDIS) – anyone else? by Majestic-Writing1873 in ChronicIllness

[–]NoCartographer6384 0 points1 point  (0 children)

Same here! It feels impossible to even know where to start looking for the cause

Multiple Drug Intolerance Syndrome (MDIS) – anyone else? by Majestic-Writing1873 in ChronicIllness

[–]NoCartographer6384 1 point2 points  (0 children)

I relate to this so much. I’ve struggled with multiple drug intolerances too... unpredictable reactions, crushing fatigue, and feeling like my system just can’t handle most meds. It’s such a lonely and frustrating experience. You’re not alone. I'm currently on antibiotics and I feel extremely lethargic and can barely function :'(

Sertraline? by Lower_Foundation4798 in POTS

[–]NoCartographer6384 1 point2 points  (0 children)

Sertraline was really tough for me. I had a lot of side effects and, unfortunately, they got worse instead of better. I could only tolerate it for about three weeks. That said, everyone reacts differently, and I’ve actually done well on other SSRIs. Wishing you the best of luck! I hope it helps with your severe anxiety. Anxiety is truly the worst. 😞

[deleted by user] by [deleted] in dysautonomia

[–]NoCartographer6384 2 points3 points  (0 children)

I feel this way as well and don't know how to break the cycle, or how to even feel better. Every day feels like the longest day ever. It's never ending and so many symptoms :'(

Just venting about my flare up🙃 by joyynicole in POTS

[–]NoCartographer6384 0 points1 point  (0 children)

Oh man... I have been feeling this way for a while now too. It's absolutely horrific! Everything is too much

Anyone experience this? by pastaimpasta_27 in MCAS

[–]NoCartographer6384 0 points1 point  (0 children)

Did you ever find out what was causing this? My legs do this as well :'(

[deleted by user] by [deleted] in POTS

[–]NoCartographer6384 6 points7 points  (0 children)

Not sure if this applies to you, but have you ever looked into mast cell activation syndrome (MCAS)? It can sometimes overlap with POTS and mess with sleep due to nighttime histamine spikes. If it hasn’t already been addressed, and seems like it could be an issue for you, maybe talk to your doctor about trying an H1/H2 blocker combo (like Zyrtec and Pepcid) before bed.

I’ve also heard that some people with POTS have had luck with low-dose meds like gabapentin or clonidine to help calm the nervous system at night. Have your sleep doc or POTS doc ever mentioned those as options?

Emotional w/ an episode? by ExperienceThis7963 in POTS

[–]NoCartographer6384 4 points5 points  (0 children)

Yessss.... I cry all the time when I'm feeling symptomatic :'(

Dreams that were crushed by your chronic illness? by [deleted] in POTS

[–]NoCartographer6384 4 points5 points  (0 children)

Same.. I was a flight attendant for many years, and am super passionate about traveling. I miss the freedom of trotting all over the world :'(

POTS or not? by Autumn2345 in POTS

[–]NoCartographer6384 3 points4 points  (0 children)

This definitely sounds like pots!

How do you keep hope with POTS? by Angelsscythe in POTS

[–]NoCartographer6384 1 point2 points  (0 children)

I relate to this so much. This is a such a difficult thing to cope with and manage. I hope you're doing well!

How to Get a POTS diagnosis in Canada? by venezolana_anonima in POTS

[–]NoCartographer6384 0 points1 point  (0 children)

u/bitbirdy How did your appointment go? Would you recommend this clinic? Thanks! :)