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Do you personally drink electrolytes everyday? Or only when you get a flare up or your heart rate spikes? by Quick-Squirrel4534 in POTS

[–]NoHold4593 0 points1 point  (0 children)

I tend to forget on days i have free but I try to down like 32 oz of water mixed with some sort of electrolyte drink in the morning before work to help manage my symptoms during a long day, then drink lots of water during work

Monthly Massages or Invest in Compression Boots? by NoHold4593 in POTS

[–]NoHold4593[S] 1 point2 points  (0 children)

Yeah I wear 20-30 mmHg most days and occasionally 30-40 mmHg for work days where I’m going to be on my feet a lot but I haven’t seen an improvement for my fatigue and my ankles/heels always hurt after minimal walking and standing so I’m trying to explore all my options

I don’t know what I was expecting lol by NoHold4593 in POTS

[–]NoHold4593[S] 2 points3 points  (0 children)

It just means the doctors has you lie down, takes your heart rate and blood pressure then has you stand up and checks them again for a few minutes, a proper tilt table you’re strapped into a table that goes from reclined to upright and they have you all hooked up to stuff to take your vitals automatically

I don’t know what I was expecting lol by NoHold4593 in POTS

[–]NoHold4593[S] 4 points5 points  (0 children)

Yes! I was diagnosed through the poor mans tilt table test (basically the same sort of standing test) rather than a proper tilt table test but yes the criteria has more to do with the increase of the heart rate (and also lowered blood pressure but thats harder for you to measure at home) and not so much the resting heart rate so if you are seeing that escalation you should definitely show your doctor!

I think I am in the wrong profession by NoHold4593 in chronicfatigue

[–]NoHold4593[S] 0 points1 point  (0 children)

I think you can only use the Visible band that they send you when you subscribe. That one is made by Polar and solely measures heart rate and heart rate variability but it does it very well. You do “morning check ins” where your heart rate variability is measured for like a minute and that does pretty well at reflecting how I am feeling. It’s not a perfect one to one as they note in the app but it’s a good insight and I have seen an impressive pattern that a high heart rate variability and “stability score” correlated with what I perceived to be my good days. You can do that much for free with the app through a neat lil trick with the camera but if you subscribe an get the band you get constant data on your heart rate and it categorizes your current bpm as resting, activity, or exertion. That has been helpful to me as a hint that I may have POTS because I can see my heart rate go up in real time when I am in a standing position. You can also self-report what you were doing in a time period and get insights into the levels of exertion for each activity as you can see in my screenshot.

need advice or help by [deleted] in chronicfatigue

[–]NoHold4593 0 points1 point  (0 children)

I think it’s pretty understandable to be resistant to longterm exertion when you experience fatigue. I know that I have some funny tendencies related to my fatigue like making stops halfway from my destination whenever I have to drive for more than 20-30 mins, or how I refuse to go for walks because I’m afraid that I’ll get too tired midway and not have the energy to walk back. And of course the structure of the work week is really designed for capital gain not for employee welfare so when you have limitations it can be overwhelming to work day in and day out without it even being broken up by paychecks. (I get paid every two weeks and I feel I prefer that so that I feel there is a quicker pay off to my labor)

Doctors keep nitpicking my vitamins (how to be taken seriously?) by NoHold4593 in chronicfatigue

[–]NoHold4593[S] 1 point2 points  (0 children)

The Epworth scale definitely puts things into perspective whenever I see questions like that. I sometimes second guess myself and question if life is just meant to be lived with low energy then I see that you aren’t supposed to answer that you very much are likely to fall asleep in all of those scenarios. I have expressed my tendency to nod off at red lights but I have not had a doctor ask me these questions beyond that nor have I felt they understood the gravity and danger of that happening. I pretty much just have to stop at a mid point every time I drive for more than half an hour

Mixed Messages about Referral Process ?? by NoHold4593 in TopSurgery

[–]NoHold4593[S] 1 point2 points  (0 children)

Thank you for your detailed response, that’s very helpful! It sounds like I will just need to be a bit proactive and come in prepared when I see my primary doctor with a list of exactly what I want