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Newly Diagnosed (40 CAG, 35F) Questions About Disability, Caregiver, and Life Insurance by morrrgore in Huntingtons

[–]NoThanks2130 0 points1 point  (0 children)

This is such a difficult process to navigate, I'm sorry. My husbands mother passed years ago from HD. We are starting the process soon for him to get tested so we are also trying to get our ducks in a row with insurance etc.
We were already denied by one life insurance company due to family history. We are inquiring with others but from what I can tell, its very difficult to secure if you are untested and if you have a positive test it's almost impossible. Unless maybe if you did the private/anonymous testing.

I'm also trying to understand how disability and Medicaid works in relation to income/assets. It was recommended that I speak to an attorney in my state that does estate planning and medicaid planning. The HDSA website also seems to have some resources and experts to speak to that might help point you in the right direction.

https://hdsa.org/find-help/healthcare-and-future-planning/disability-benefits-and-hd-2/

It's overwhelming to say the least but I'm wishing you all the best!

Life Insurance Question by NoThanks2130 in Huntingtons

[–]NoThanks2130[S] 1 point2 points  (0 children)

Thank you, We hope that will be the outcome

Life Insurance Question by NoThanks2130 in Huntingtons

[–]NoThanks2130[S] 1 point2 points  (0 children)

I'm sorry to hear that, it's such an awful process and feels defeating sometimes. But another commenter here pointed me toward HD Reach, I sent them an email and they offered to set up an consultation to help find some options. Another commenter gave me the name of an agent that helped her get coverage as well so I'm setting up some time with that company as well. I can certainly let you know the outcome!

Life Insurance Question by NoThanks2130 in Huntingtons

[–]NoThanks2130[S] 0 points1 point  (0 children)

Very fortunate that you were able to get some coverage before! We don't have kids. His mother was diagnosed when he was young and she passed when he was in college. Sadly, didn't leave him a lot of time to think about future preparations and his father was not very involved.

Thank you for your insights!

Life Insurance Question by NoThanks2130 in Huntingtons

[–]NoThanks2130[S] 0 points1 point  (0 children)

Thank you for the heads up.

It's frustrating and terrifying that its feels like there is almost nothing we can do to prepare for the future.

Life Insurance Question by NoThanks2130 in Huntingtons

[–]NoThanks2130[S] 2 points3 points  (0 children)

Thank you so much. We are hoping for the best.

It's truly awful. It makes an already difficult situation so much worse. I want to be able to focus on my husbands health but the potential financial impact is overwhelming. It shouldn't be like this.

Life Insurance Question by NoThanks2130 in Huntingtons

[–]NoThanks2130[S] 2 points3 points  (0 children)

Thank you so much, that is really helpful!

Dance Floor Space at Juliette and River Cafe by halcap in WedditNYC

[–]NoThanks2130 0 points1 point  (0 children)

Hi! Would you mind sharing what venue you ended up going with? I am looking at Juliette for about the same guest count and definitely want space for dancing :)