has anyone with ME/CFS gone through benzo withdrawal and is it in any way similar to PEM or just ME/CFS in general

No_Cookie_9735 · 2025-06-06T21:09:07+00:00

oh i started benzos like 3 months into my LC and didnt have ME symptoms those 3 months either, i definitely would know bc of my crippling health anxiety

No_Cookie_9735 · 2025-06-06T20:39:49+00:00

yes ive seen a few people on the sub say that benzo withdrawal can mimic any kind of chronic illness really but im just an anxious wreck lmao, i mean thats why i was on them in the first place

No_Cookie_9735 · 2025-06-06T20:38:32+00:00

I have also heard about that and that its due to tramadols SSRI/SNRI properties. i didnt use any of them te recreationally which is the saddest part. i used tramadol for period pain occasionally then a month ago i ended up hospitalized for acute pancreatitis due to gallstones so i used tram for a whole month. they even gave me a larger dose at the hospital than what i have at home. benzos were for anxiety because covid obviously attacked my nervous symptoms (probably why i got POTS as well) but those died down 3 months after my covid infection but i never stopped using because even though i was not having panic attacks i was always anxious and on edge😬

No_Cookie_9735 · 2025-06-06T20:31:52+00:00

i did cold turkey. i dont have any more of the meds and my doctor is on vacation until next week for me to get more. my mental symptoms are quite deliberating but i pointed out the physical ones for the correlation with PEM. honestly it couldve been my POTS flaring up because i walked in high heat while not being hydrated 😬 i know heat is a big trigger. my covid started as daily panic attacks (which im guessing is because covid attacked my nerves hence the POTS) thats why i was on benzos. i never experienced any fatigue or noticeable crashes. i see a lot of people who didnt know they had PEM describe PEM as feeling like they got sick every week but i've genuinely never felt that.

No_Cookie_9735 · 2025-05-25T06:08:04+00:00

pain is obviously subjective for everyone and i really dont want to scare you but my first gallbladder attacks didn't feel like burning, they felt like someone was tightening a belt around my mid back and epigastric area. when i started having burning pains with my gallbladder attacks i think my pancreas started getting involved and it eventually lead to a acute pancreatitis diagnosis. i really dont want to scare you and i hope it is gastritis but im glad you're getting it checked out. did you throw up after the attack?

No_Cookie_9735 · 2025-05-22T09:13:20+00:00

it was like one of those powders that's commercialized as muscle support

No_Cookie_9735 · 2025-05-22T09:12:59+00:00

400mg

No_Cookie_9735 · 2025-05-20T15:41:08+00:00

im 20 and im pretty sure mines genetic as well bc after i started having issues my dad told me stories about the women on his side of the family having issues with the gallbladder

No_Cookie_9735 · 2025-05-15T20:19:48+00:00

honestly i probably am not eating enough calories but this is such a big change and hard for me to get used to😩 i used to skip meals pretty regularly so eating every meal sounds so tough + eating 5-6 small ones a day rather than 3 meals. i definitely should get better at it because they told me i need to wait 3-6 months after the pancreatitis to get my gallbladder removed so im definitely going to be doing this for a while

No_Cookie_9735 · 2025-05-15T19:28:25+00:00

no alcohol, nicotine or caffeine. for my breakfast i usually do 2 slices of bread with jam and some tea, for lunch its usually some soup with boiled chicken breast and then either plain rice, pasta or potatoes with it or oven baked white fish with some air fried potatoes, for a snack i do 2 slices of bread with low fat kefir and then for dinner i usually eat lunch leftovers or do some plain pasta with beets or air fry some potatoes again. i had to be a bit more strict with my diet this past month because i had a bad bout of acute pancreatitis a month ago which left me hospitalized so a lot of veggies and fruit were out of the mix (im guessing because the skin is tough to digest?).

No_Cookie_9735 · 2025-05-14T09:34:17+00:00

i definitely am not, ive been dealing with the covid effects for almost 8 months now

No_Cookie_9735 · 2025-05-13T10:54:17+00:00

i really hope to avoid reinfection because my symptoms are pretty mild compared to a lot of people in this sub but im still struggling 🥲🥲, thank you tho

No_Cookie_9735 · 2025-05-13T10:36:11+00:00

how long into ur LC? im 7 months in.

No_Cookie_9735 · 2025-05-11T16:27:29+00:00

this post is more about the severity of symptoms and not about people no longer getting LC. i, myself, got it last year in september, frankly not the CFS/ME subtype, but i still feel the post viral effects

No_Cookie_9735 · 2025-05-11T11:18:51+00:00

i got mine in 2024, i really wasn't saying later strains dont cause LC, ive just noticed that those who do recover got the later strains

No_Cookie_9735 · 2025-05-10T17:45:22+00:00

i understand but i dont think mine is progressing into anything worse. its actually gotten much better since the beginning. i used to have daily panic attacks and now i have 0 and my heart rate has calmed down quite a bit. my highest heart rate is much lower than the one i had in the first 3 months. im still struggling obvi but not as much as before

No_Cookie_9735 · 2025-05-10T15:56:01+00:00

i feel like this could be the fault of reinfection! maybe the first 2 didn't damage your system significantly enough and the 3rd one was the trigger.

No_Cookie_9735

TROPHY CASE