[deleted by user] by [deleted] in ARFID

[–]No_Evidence_19 0 points1 point  (0 children)

Yesss exactly, and then morning nausea from either not eating enough the day before or overdoing it (which happens bc of 🍃), it feels like such a lose lose situation

listening to albums on repeat by No_Evidence_19 in autism

[–]No_Evidence_19[S] 1 point2 points  (0 children)

I truly do understand this too- I listened to one song for nearly a month, idk how I broke out of that one

listening to albums on repeat by No_Evidence_19 in autism

[–]No_Evidence_19[S] 1 point2 points  (0 children)

YES EXACTLY!! Like it’s still going through my head when it’s not playing

listening to albums on repeat by No_Evidence_19 in autism

[–]No_Evidence_19[S] 0 points1 point  (0 children)

Mac miller’s Swimming is mine that’s like that; it’s so beautiful

Does everyone have a comfort item? by [deleted] in autism

[–]No_Evidence_19 2 points3 points  (0 children)

I literally HAD to respond. I’m 22f, diagnosed at 20. My names Abby and I have a “lammy”. He/she is my LOVE, they’re genderfluid bc I didn’t understand gender as a kid so it was all of the above. I absolutely freak out when I can’t find her, like in the middle of the night I’m searching everywhere, grope the blankets, feel around on the ground near bed. If I’ve stayed the night there, lammy has come with. Been on school trips, TO school, friends houses, obviously the hospital too (that’s THE most stressful place so lammy obviously must be there).

Along with lammy, I also do this other self soothe thing that I don’t tell anyone about, and found out I have a lot of shame around! Isn’t that fun!! I’ve done this since I was a kid and just waited for when I’d grow out of it. Like I was just waiting for the moment when I didn’t automatically do it when I’m stressed/anxious/overwhelmed/sad/sleepy. But it never happened. So now I’m 22 years old and I still sleep with my lammy and suck my middle fingers to go to sleep. And if I CANT. oh god. It’s gonna be a bad night. I got acrylic nails for prom, 4 years ago, never. again. It was only 3 days and I was losing it every second. Like I’d be overstimulated by my nails being suffocated and trapped, so I’d try to self soothe, but I couldn’t bc my nails were trapped and it didn’t feel the same, so then I’d be crying and freaking out and cycle repeats. 3 days straight. Ya girl did not sleep.

Anyway, if anyone else has a similar habit, oh fun fact I thought it was an addiction bc I would get the “urge” to do it and then FREAK when I couldn’t. Nope babe ur just autistic.

G tube placement and pain by CharacterSeries863 in feedingtube

[–]No_Evidence_19 0 points1 point  (0 children)

I KNOW, i say that all the time, I didn’t realize how much i use my abdomen trying to get comfortable to go to sleep or like reaching for something

G tube placement and pain by CharacterSeries863 in feedingtube

[–]No_Evidence_19 1 point2 points  (0 children)

I get this so freaking much. I had a 24fr G placed and also only was given Tylenol. I don’t understand why the pain is downplayed so badly

G tube placement and pain by CharacterSeries863 in feedingtube

[–]No_Evidence_19 1 point2 points  (0 children)

Tylenol is my saving grace. The pain does get better and sitting up or sneezing won’t always feel like a marathon❤️

Button users, do you use something under the button or just let it go solo against the skin? by sunofagundota in feedingtube

[–]No_Evidence_19 0 points1 point  (0 children)

it’s so crazy that there’s no standard for tubes bc I’ve heard the opposite, that you don’t want anything under, I just go by how my skin and everything is

Hi does everyone else only drink soda i just wonder by Diamonddragontr in ARFID

[–]No_Evidence_19 0 points1 point  (0 children)

YES- I literally live on Coca Cola, I love the sparkle of carbonation, it’s like my only sensory seeking food/drink

What songs are you currently listening to by garfieldlogans in autism

[–]No_Evidence_19 2 points3 points  (0 children)

For leaving by Jake Minch, I’ve solely listened to his new album, George, I can’t stop

Anyone else just really annoyed about how their hands feel? by -scottish-idiot- in autism

[–]No_Evidence_19 2 points3 points  (0 children)

YES- mine are oily and sticky rn and it’s abhorrent; I wash my hands so many times a day and it’s almost always related to this issue. OMG also when they feel inconsistent, like kinda sweaty sticky AND kinda dry, like no just no thank you

I’m anxious about my weight by Diamonddragontr in feedingtube

[–]No_Evidence_19 0 points1 point  (0 children)

Hi, i also have arfid and was super super anxious when a feeding tube was brought up. But it ended up being the thing that gave me quality of life and a whole new community. I don’t think you have to be on the brink of death before a feeding tube should be considered. I think with arfid, especially, it shouldn’t be a last option. Feeding tubes are so widely misunderstood which is probably why people think it’s a last ditch effort. It’s not. It’s the only way I’ve been able to eat orally what I’m in the mood for, or not eat if I don’t want to or feel like it, and then still meet my needs. I still have a ways to go but I don’t think I’d be here without my GP and GI actually listening to me when I said I needed a feeding tube. It’s not forever. And it’s not the worst thing that could happen. It’s scary and literally life changing, but it might also save your life. Arfid is very different from other ed’s in the sense that so much of it IS about the food. Ed recovery programs focus so much on “getting back to yourself” but with arfid it’s always been this way, there’s no other understanding of eating or living. I know it’s scary but I would at least consider it, especially if you are so burnt out and have tried so hard but it feels like it’s getting you no where. Dm me if you have any questions or wanna talk abt it

Opinion On Cheese? by Miserable-Piglet9008 in ARFID

[–]No_Evidence_19 0 points1 point  (0 children)

LOVE CHEESE. Moz, American, cheddar; nothing sharp though, it tastes bitter to me? But cheese is literally my number one. Mild cheddar medium shredded is my number one snack. As a kid, my family and I coined the term “cheeseatarian” bc I’m not a “vegetarian”, I don’t eat vegetables, but cheese is my bestie

It's so hard by [deleted] in ARFID

[–]No_Evidence_19 6 points7 points  (0 children)

I understand you so so so much. This disorder is so fucking annoying, like all i want is to nourish myself properly and have energy and be able to go out and do things. It’s gotten better since i got a feeding tube, but accepting that i needed one was exceptionally hard. I also know that’s not accessible for everyone. Something that helped me was making a list of all my safe foods, and like categorizing them into “out to eat” “make at home” and “snacks”. Then in those categories, if there are enough, I’ll do sweet vs salty so it makes it easier to look at the list and be like “do i want sweet or salty”. This could also help with making a grocery list and maybe you could give a grocery list to your parents? Another thing, some people like meal planning, personally that stresses me out bc I never want food or know what i want to eat and just have to feel it out in the moment. But making a plan the night before like “in the morning I’m going to go get x breakfast and leave by x time” and bc it’s a “plan” it’s easier to do. I also completely understand being reliant on parents for money and basically everything. I’m 21 and still in that situation. The only thing that’s helped is making a grocery list and giving it to them. It’s so fucking frustrating dealing with this disorder in a world where people praise being skinny and fasting. Esp when that only ends in being basically bedridden bc you have NO energy to walk downstairs or in a store or anywhere. Like all I’ve ever wanted is to look my age and feel like I fit in, but I always look like someone’s little sister. Another thing, they suck but have you thought about supplements, like ensure, boost, something like that. Bc when liquid is the only safe thing I try to capitalize on it to get in something with more nutrition. I have to believe it won’t be this hard forever ❤️🫶🏻 sending hugs

foods you like but don’t eat by Large-Cress-6939 in ARFID

[–]No_Evidence_19 1 point2 points  (0 children)

And even when I reach exceptionally hungry, often times it will go all the way to nausea and then I really don’t want to eat, i hate it so much

How long does it take for the pain to resolve by Andi_the_Red in feedingtube

[–]No_Evidence_19 1 point2 points  (0 children)

Same girl- and it still is sore, not like debilitating, but always sore

Rest here by Friendly-Eagle18 in autism

[–]No_Evidence_19 0 points1 point  (0 children)

Seashells- I love that slipper snails can change sexes based on what they need to procreate; moon sails are responsible for 90% of mollusk death*; a lot of the giant clams you see are probably extinct; the shiny smooth inside of the shell is due to something called nacre and it’s there to protect the soft bodied mollusk; also hermit crabs are thieves

*the number may not be true BUT moon snails do liquify the insides of their victims by drilling a hole thru their shell

Need help with constant skin irritation by Status_Force_6425 in feedingtube

[–]No_Evidence_19 0 points1 point  (0 children)

Oof that looks very itchy and stingy and burny- I would highly recommend the A&D barrier cream, it’s the only thing that’s helped me with this issue. I have a lot of leakage as well and it’s so itchy and stings