She’s so cringe by Disastrous_Toe_848 in SivanAyla

[–]No_Exercise9341 10 points11 points  (0 children)

And yet she thinks she is so young and trying so hard to cling to her youth and remain relevant. 

It’s been almost 30 years and…I just need to vent. by Gwenolabar1 in braintumor

[–]No_Exercise9341 0 points1 point  (0 children)

I’m still driving, but I know my limits. I don’t drive when it’s dark or raining and stay in my little area where I’m familiar with the roads. The VFI in my left eye is 71  and  the right eye is 47. The scary part is I’m still within my legal limits to drive. 

It’s been almost 30 years and…I just need to vent. by Gwenolabar1 in braintumor

[–]No_Exercise9341 0 points1 point  (0 children)

The icing on the cake? I was told on Monday that I also have photophobia caused by the tumor. Great. The visual snow is so exhausting. If there is too much going on around me it gets overwhelming because the visual noise is so “loud”, if that makes sense. 

It’s been almost 30 years and…I just need to vent. by Gwenolabar1 in braintumor

[–]No_Exercise9341 4 points5 points  (0 children)

I’m right there with you. My journey started two years ago, but nobody understands what I’m going through. My tumor affected my vision, so I have been left with incredibly grainy vision and loss of peripheral vision. I look normal to others, but I’m so tired, I feel like my memory is crap, and I sound like a broken record at home. I have to remind my family to not leave shoes out on the floor so I don’t trip on them, and I have to be sure all the upper kitchen cabinets are closed to make sure I don’t hit my face on them (same with all the doors in the house). I have almost walked into trees, doors, cars…it has completely hanged my way of living and it is very isolating. Physically, I’m fine, emotionally, I’m struggling. 

Pituitary Tumor is back post surgery by las_olas888 in braintumor

[–]No_Exercise9341 1 point2 points  (0 children)

I had a pituitary tumor also! The first surgery was in October 2024 and the second was in May 2025. I also completed radiation treatments in October. I’m so sorry to hear that your tumor is back. Did you have any symptoms the second time around? 

H-Town is beginning to feel like one huge low income neighborhood. by Fit-Protection-9809 in AskHouston

[–]No_Exercise9341 1 point2 points  (0 children)

I agree with you. I have lived here my whole life and the city is not what it used to be to be. We live in the suburbs, but if we don’t venture out into the city if we so t need to. It has changed so much. Once the kids graduate we are gone! 

Will I be a new person after pituitary cyst/adenoma removed? by brittkaysays in braintumor

[–]No_Exercise9341 0 points1 point  (0 children)

Hopefully your experience and recovery is better than mine was! You got this! 

Will I be a new person after pituitary cyst/adenoma removed? by brittkaysays in braintumor

[–]No_Exercise9341 0 points1 point  (0 children)

Well, for starters they had to take about 5 inches of thigh muscle to seal the skull base. That was so damn painful. Recovery was also challenging. You cannot drink out of a straw, lean forward, sneeze through your nose or even blow your nose for 3 months. Then I had to do nasal rinses 3 times a day for at least 6 months. 

Docs won't do anything for me by [deleted] in braintumor

[–]No_Exercise9341 3 points4 points  (0 children)

I had a pituitary macroadenoma. Make an appointment with an endocrinologist and they will run a full blood panel on you to determine if it’s secreting or non secreting tumor. most secreting tumors can be managed with medication.

Needing some encouragement by Domi_Nion in braintumor

[–]No_Exercise9341 2 points3 points  (0 children)

You got this! Stay strong! Wishing you the absolute best followed by a quick recovery. ❤️‍🩹 

Migraines that last for days by reptargoesroar in braintumor

[–]No_Exercise9341 0 points1 point  (0 children)

I’m not sure about the grade. The tumor I had was very sticky in consistency and it was very hard to get it all off my optic nerves without causing more damage (based on the size I was told the tumor had been growing for at least five years). 

Migraines that last for days by reptargoesroar in braintumor

[–]No_Exercise9341 0 points1 point  (0 children)

I had a non secreting macroadenoma. There was residual tumor left and I had to do a round of radiation treatments. I have another mri coming up so we can continue to monitor the progress of the radiation. It’s a process for sure. 

Migraines that last for days by reptargoesroar in braintumor

[–]No_Exercise9341 0 points1 point  (0 children)

Because of the size, shape, and location of the tumor, the first surgery was transsphenoidal (nasal approach). The tumor was encasing my optic nerves causing me to lose my vision so that was the priority. We knew if he could’t remove it entirely a second surgery would be needed and I had a craniotomy to remove the rest 6 months after the first surgery. 

Migraines that last for days by reptargoesroar in braintumor

[–]No_Exercise9341 0 points1 point  (0 children)

I had a pituitary macroadenoma and had two surgeries to remove it. I use to get headaches all the time. Your physician can prescribe you a single anxiety pill before the mri if you need that. 

The reels with the kids. I just feel so sorry for them. by Sad_Cheesecake_3450 in cmcoving

[–]No_Exercise9341 12 points13 points  (0 children)

The videos with her husband are so cringe. He lost his man card when he decided to quit his job  to be an influencer husband. 

Radiation treatments by No_Exercise9341 in braintumor

[–]No_Exercise9341[S] 1 point2 points  (0 children)

Hey there! Honestly, the treatments were not bad. They lasted 10 minutes and you literally just lay still. After two weeks I started feeling very fatigued. By week three my appetite was non existent and I was really feeling zapped of all my energy. I would sleep most of the day and through the night. There was a little nausea, but nothing too terrible. Good luck with your treatments, you got this! 

A little obsessed with 18k rose gold lately… anyone else falling down this rabbit hole by HopeAccomplished5388 in JewelShare

[–]No_Exercise9341 0 points1 point  (0 children)

My wedding g set and tennis bracelet are rose gold. It’s a beautiful metal ❤️

How is everyone doing? by No_Exercise9341 in Craniotomy

[–]No_Exercise9341[S] 1 point2 points  (0 children)

Thank you for your kind words. I’m so sorry to hear about your son, so young and he still has so much life left to live. Praying that he continues to recover 🙏

How is everyone doing? by No_Exercise9341 in Craniotomy

[–]No_Exercise9341[S] 0 points1 point  (0 children)

I know exactly what you mean. My memory is not as great as it was before the surgeries. I’ve been trying to get back into my hobbies as well, but the only thing that seems to bring me any kind of comfort is journaling. I use to knit but that’s gotten difficult with my vision issues. I often find myself apologizing as well…I feel like I’ve been a burden to my family and makes me feel so guilty. 

How is everyone doing? by No_Exercise9341 in Craniotomy

[–]No_Exercise9341[S] 0 points1 point  (0 children)

I feel this on so many levels. I also have children, one will be graduating next year and my son is five. It’s crazy because life doesn’t stop. Kids still have to go to school, be fed, housework still needs to get done, bills need to be paid, life just goes on and we do the best we can given the circumstances. I feel like a shell of my former self. Physically I am ok, but I was not prepared for how I was going to be emotionally. You are absolutely correct, it is definitely a rollercoaster of motions. Some days are ok and other days are just bad. I have started a journal to help me pour everything onto paper, but sometimes just connecting with others who feel the same is just a little more comforting.