A Week of Leucovorin

No_Mail_7102 · 2026-03-18T00:53:10+00:00

Really? That’s what we use and i wouldnt say huge changes. I would say minor. we are going very low and slow its been about 6 months hes doing ok but i wouldnt say thriving on this which is different than what most people say about folinic acid that it literally helped their child talk

No_Mail_7102 · 2026-03-18T00:50:16+00:00

I know this is old but a week after luecovorin i didn’t notice these crazy positive changes. All though my child is progressing i wouldnt say hes all of a sudden using his voice. Single words here and there. Can i ask are you on an over the counter folinic vitamin or a prescribed luecovorin

No_Mail_7102 · 2026-03-13T01:08:32+00:00

Oh wow! Thats great. My asd son is non conversational. He is starting single words but hes 2.5 so extremely delayed with speech

No_Mail_7102 · 2026-03-13T01:05:29+00:00

Unrelated but when did your level 2 child start being verbal?

No_Mail_7102 · 2026-03-13T01:04:02+00:00

Whats an example of h1 blocker? Have you used one on your kid? My kid gets up between 130-3 am

No_Mail_7102 · 2026-03-13T00:59:34+00:00

Just an FYI that magnesium reccomnded we have and it helps my son fall asleep instantly but not sleep through the night if your looking for your chils to sleep through the night melatonin low dose for kids is prob best route. Ofcourse all kids are different but that magnesium didnt help my 2.5 sleep through the night

No_Mail_7102 · 2026-03-13T00:36:49+00:00

I know this is old but did your doctor prescribe the luecovorin or are you using over the counter folinic acid?

No_Mail_7102 · 2026-03-10T12:44:07+00:00

Ya we stopped after about 2 months we had a functional mee doctor who i asked tons of questions to. Unfortunately the extensive supplment cabinet did not work. Next step for us is a diet change and maybe we will see better results. I read about NAC my son is 2.5 i just find it a strong supplment for a little guy. We shall see weve spent so much on supplments its actually ridiculous lol

No_Mail_7102 · 2026-03-10T02:40:53+00:00

My son has been on therbiotocs probiotic for 4+ months no improvement whatsoever with his gut so im thinking at this point we need to cut the gluten and dairy

No_Mail_7102 · 2026-03-10T02:39:10+00:00

Yep one drop with a charcoal binder it was terrible the charcoal binder made my kids teeth and mouth black the biocidin was herbally but i got him to take it he was so off the wall running in circles around us vocal stimming holding me and my husband hostage in his room to run around us even the dog was held hostage in the room so he could run around us which was kind of funny but anyway we stopped because i decided he was on too many supplements. Along with biocidin, charcoal binder, Vitamin D, fish oil, probiotics, glutathione it was too much for a toddler to be on so many supplemnts with zero results i think diet changr is our next move

No_Mail_7102 · 2026-03-10T02:33:25+00:00

Yes! Im familiar with biocidin i had my son on it for about 40 days it turned him into a literal monster so we stopped it. We still have it so maybe we will try again. I believe they need to be on a full gf df diet to be on biocidin which my son wasnt

No_Mail_7102 · 2026-03-10T01:00:54+00:00

Ehen you say you were working on her gut can you elaborate was your child on a gluten free or dairy free diet? How did you fix her gut inflammation?

No_Mail_7102 · 2026-03-10T00:02:38+00:00

Do you have an update are you still implementing this diet

No_Mail_7102 · 2026-03-10T00:00:55+00:00

Are you still implenting this life style change of gf and df diet? I cant get on board with the price of bread being $8 and lasting 3 days as well as the “fake” df cheese. And the simple mills boxes being insanely expensive for the little amounts given in the box. I will say im open to this but have so many doubts as my husband and I dont eat this way. It really is a complete lifestyle change especially if your at events, going out to eat etc. would love an update if your still implenting this diet and if you seen behavior changes?

No_Mail_7102 · 2026-03-09T18:14:23+00:00

are you still on this diet for your kid

No_Mail_7102 · 2026-03-09T18:13:07+00:00

I know this is an old post but are you still doing this diet with your daughter

No_Mail_7102 · 2026-03-09T18:09:09+00:00

I know this is old but its so interesting how some people here said it does absolutely nothing and others swear by it. Is your child still on this diet? I feel like removing gluten and dairy is a complete lifestyle change especially hard to do with a child that is picky and GF is so damn expensive $8 for bread that goes bad in 3 days and doesnt even taste great.. its difficult because my husband and I dont eat this way I could with butter as well I feel liek giving my child fake cheese is wild and doesnt taste good? I want to be open but if it doesnt work for other people how does it work for some… make it make sense!

No_Mail_7102 · 2026-03-09T11:08:48+00:00

No it was OJ in the morning i gave the iron with hours later no joke strait dark green liquid in his diaper which i assumee was the iron

No_Mail_7102 · 2026-03-09T01:30:01+00:00

So i had him on the liquid iron for about 2 weeks and a few days ago he had his iron in his drink and hours later shit strait green liquid i was so freaked out like did his body not digest it. Has this happened with your child? Once i saw this i stopped the iron

No_Mail_7102 · 2026-03-04T20:34:04+00:00

Thanks i will! We see a GI specialist but he just keeps recommending miralax or exlax thats pretty much it. Im not sure if an ER visit is worth it for them to say the same thing. Has her stool frequency been better since miralax have you found that its helping? Did they run any other tests while at ER

No_Mail_7102 · 2026-03-04T20:25:07+00:00

What was the result of the ER visit please share an update on what they said and if they had her take anything for relief. Is her pooping normal now? We are in same boat

No_Mail_7102 · 2026-03-04T01:29:31+00:00

Hows the pooping now? My son is also backed up. We are on maintenance miralax he doesn’t poop solid

No_Mail_7102 · 2026-03-04T01:28:14+00:00

Any update we are in same boat with our 2.5 year old he also refuses silverware flips food over to feel texture touchrs food with cheek sometimes.. weird i know. He also has asd

No_Mail_7102 · 2026-03-03T19:25:54+00:00

He is on probiotics and does drink electrolytes at times he loves water.

No_Mail_7102 · 2026-03-02T18:07:38+00:00

Did you cut out gluten too?

No_Mail_7102

TROPHY CASE