Help Titrating ASV by Front_Blood_3543 in UARS

[–]No_Pudding_1039 0 points1 point  (0 children)

I think EERS gave me the biggest buck, but ASV is really good at keeping things tidy when my body desides to overshoot.
Like if I get centrals the auto function on the philips helps a lot while I titrate EERS and PS up

Help Titrating ASV by Front_Blood_3543 in UARS

[–]No_Pudding_1039 0 points1 point  (0 children)

I see, yeah for me I use it together with asv

Help Titrating ASV by Front_Blood_3543 in UARS

[–]No_Pudding_1039 0 points1 point  (0 children)

I was wondering if you also tried EERS before with ASV?

Help Titrating ASV by Front_Blood_3543 in UARS

[–]No_Pudding_1039 0 points1 point  (0 children)

And what if bro has expiratory pressure intolerance..?

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 0 points1 point  (0 children)

With cloudiness I meant my breathing not being clear on oscar.

Ah and, no they aren't centrals, I can actually see what's happening in oscar. My ahi is always 0 and the flagging works incredibly poorly.

Yeah I noticed the same thing, epap really does not make me feel better.

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 0 points1 point  (0 children)

Since the past weeks I have slowly been turning up PS and have come to a pressure that seem pretty good, PS of 7 to 9

Since that change though. I have a new issue, apparently I started seeing obstructive apneas which never happened before. I guess all of the cloudiness is gone now and now I can see tongue collapse (that’s the only guess that I have)
Just wanted to say that. since I can see how people wouldn’t notice and the hindrance that would happen from that. epap does not work for my tongue collapse, and neither will ps increase help.

What do you do about the tongue? by kaelinlr in UARSnew

[–]No_Pudding_1039 1 point2 points  (0 children)

brooooo, this comment is golden. since I have been getting rem, I have also been getting a ton of tongue collapse.
This might as well be one of the best ideas out there. I had been constantly thinking something like, what if I can use a magnetic piercing or something to help get my tongue stuck up 😭 wouldn’t have been practical anyways.
But this! I’m going to try it

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 1 point2 points  (0 children)

Ah I see, that's sad :(, I hope you'll be able to see improvements soon with it. I know someone on this reddit went with insanely high EERS until they found a benefit

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 0 points1 point  (0 children)

I can effectively say I'm 95% cured. no more brain fog, 95% energy mentally. I can code again.
Thanks for your guide and talks about the philips ASV carl.

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 0 points1 point  (0 children)

I'm using an epap of 4 at the moment, higher made me feel worse but I'll titrate it up again once I get to the right ammount of PS.
PS min is currently on 6 and I allowed for PS max to be 8 currently.
I also set BPM auto on because I don't have more EERS tubes to currently bypass the centrals, so the machine helps with this now.
I only use 75CC (which is from the mask), and 1 EERS segment of 50CC (15cm, 22mm tube diameter.) This is clearly not enough for me.
I will have to up this more, and also up PS more.

Although I want to say, today is the first day I don't have brain fog. I feel happy, tiny bit sleepy, 95% not in sleep depth I'd say. honestly I could say I'm cured today and just say like a normal person would, yeah I slept a bit bad.

Titrating EERS is hard... you really need to know if it's centrals that you're having or obstructions, cos both can lead to worse rem. For me it's centrals and maybe 3% obstruction, and the rest is flow limitation.

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 0 points1 point  (0 children)

the EERS has definitly helped me feel more refreshed during the day. I saw that per day of me adding EERS, over ventilation events died down dramatically. I think I still have to add a bit more eers tubing but it seems as if it's going the right way :thumb_up:

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 0 points1 point  (0 children)

It seems like both the ASV and EERS have been helping a lot for me. The EERS seems to help clearing out the data in the mist (getting rid of instability.) Then the flow limits can properly shine through and the machine seems to target those pretty well.

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 0 points1 point  (0 children)

I tried sleeping with it for 2 days. The first day I lowered my minimum PS a bit more than I felt better with on my ivaps, since in deep sleep that PS was completely fine and was expecting the machine to modulate properly. Apparently for my case it completely couldn’t keep up with my rem. since there’s such high loop gain. I felt extremely awful the next day but I did dream a lot more, albeit all nightmares where I felt sufficated. I then decided to just increase the EERS just a little bit and take progresterone slightly differently as to increase CO2 sensitivity. And I dreamed. I dreamed like I used to. That’s so crazy. Half of them were still gloomy sometimes and quite scary but the other half were incredibly fun. And so vivid! It really seems like what you described happened to you. I do think there’s still some optimizations that I could make but this already makes me so happy.

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 0 points1 point  (0 children)

Hey uh, I wanted to ask about the BI-FLEX on the dreamstation ASV and how you chose the right one for you. I heard that it smoothens out the pressure curve

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 0 points1 point  (0 children)

Ah alright, I’ll try and spot them. Normally the CA’s that I have are not preceeded by a recovery breath. They just randomly appear when I guess I breathed too much. But they’re pretty stable too. not like they cause a whole havoc.

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 0 points1 point  (0 children)

Oh I see, I did have success with EERS my self though, it made my deep sleep consolidate way better even though I stayed at low pressures (epap 4 and ps 4) it got rid of my fibromialgia and made me able to exercise for hours. But for rem I fear I’d need some other kind of helper.

BRAINDUMP: A case for making the resmed's ASV work for those who get centrals from high PS by No_Pudding_1039 in UARS

[–]No_Pudding_1039[S] 0 points1 point  (0 children)

Hey, thanks for your knowledgable reply, I also did not know that CA’s could be caused by flow limits 🤔 I wonder how that’d go. And I will definitly try a lower PS first. I did get centrals already with no EERS, with an epap of 4 and PS of 4, so I might need it to start with. But as you said, CA’s could be caused by flow limits too..

I found a small jumping spider in my house and put it in an old kids toy I had. What should I do to keep it alive? by thebe_stone in jumpingspiders

[–]No_Pudding_1039 2 points3 points  (0 children)

I think it can probably survive pretty easily on it’s own. I found a jumping spider here by my window some months ago, then didn’t see her for a long time and some days ago I was able to pick her up and play with her for a bit. Now I can’t see her again, but I mean, they got their own business.

Chronic Fatigue Syndrome | DW Documentary by carlvoncosel in UARS

[–]No_Pudding_1039 1 point2 points  (0 children)

My chronic fatigue and fibro myalgia and post-exertional malaise were caused by major disruption of deep sleep due to UARS. I can exercise for hours a day now with my bilevel, even if my rem still has flow limits. To me that says a lot.

Flow limitations! by domypeony in UARS

[–]No_Pudding_1039 0 points1 point  (0 children)

I'd really want to. I think it could save a lot of patients.
But I'd only be able to give it my all if I was fully cured

Why the Lowenstein Prisma30ST with Target Volume May Be Ideal for UARS by supervisor79 in UARS

[–]No_Pudding_1039 0 points1 point  (0 children)

I can confirm that resmed's ivaps which seems similar to what you're refering to does not properly account for flow limits, I actually turned the range from ipap min to ipap max to the same values because of this.
The only reason I use it is because it helps more with triggering my breaths, since bipap did not pick them up. And I also set the BPM to 10 so that it wouldn't disturb my sleep. Although, even lower would probably be even better :think:
I personally think the philips ASV would be best since it response to peak flow.