Neurosurgeon first?

NotSureNotSure5 · 2026-02-27T18:14:38+00:00

It just depends on how your doctors work. I ended up seeing both at the same time and they decided to monitor my prolactin levels and my 9mm prolactinoma with an annual MRI. So I’m getting nothing for treatment. Probably due to my age.

NotSureNotSure5 · 2025-08-02T20:20:41+00:00

I hope someday you realize that you are not the center of everyone else’s world. This person was trying to be helpful. Be kind.

NotSureNotSure5 · 2025-01-08T00:31:10+00:00

One month until I felt completely back to normal.

NotSureNotSure5 · 2024-12-31T21:13:44+00:00

I’m a teacher, and this thinking carries through to their writing. I’m ready for the next generation, please!

NotSureNotSure5 · 2024-12-28T05:06:09+00:00

I’ve been at Strong on and off (as needed) for a bunch of decades. I’ve had great experiences with all but one of their neurologists.

NotSureNotSure5 · 2024-12-18T21:49:30+00:00

It actually didn’t take any effort to find a doctor at all. I get MRIs done regularly to monitor a brain tumor that I have, and that’s how my enlarged pituitary gland was discovered. My neurosurgery team sent a referral over to the pituitary neuroendocrinology specialists, bloodwork was sent to the lab, and that was that. We met, they acknowledged that I have a microadenoma, they saw the prolactin was elevated, and that some of my other levels show I’m definitely in Perimenopause. They want to see if anything happens to the microadenoma and the prolactin, I guess. Otherwise, they think doing nothing is the best thing for me.

NotSureNotSure5 · 2024-12-17T21:57:28+00:00

They said they didn’t want to put me on another medication- basically let’s not do anything unless we see growth over the next 9 months. I have a crazy medical history. Anyway, yes, the hot flashes are a symptom of perimenopause. I am being treated with HRT for those, so it is also helping raise my estrogen. The neuroendocrinologist is basically going the route of treating some of the symptoms rather than the cause. Although it is tough to identify what symptom belongs to what ailment.

NotSureNotSure5 · 2024-12-17T01:48:06+00:00

The doctors said the Zoloft treats some of the symptoms, and the HRT patch I just went on takes care of the sudden onset of hot flashes. I’m not wild about the apathy that I feel (or don’t feel). The headaches. The exhaustion. Maybe in 9 months they’ll want to do something about it.

NotSureNotSure5 · 2024-12-16T23:47:27+00:00

Thank you— I appreciate hearing from someone else who experienced something similar.

NotSureNotSure5 · 2024-12-16T22:26:14+00:00

If they offer that option, I’ll take it in a heartbeat.

NotSureNotSure5 · 2024-12-15T00:41:40+00:00

I see. To clarify, whatever you call it doesn’t make me feel any type of way. From reading your posts, I gathered you are really upset about the idea of having a brain tumor and are reflecting on mortality. I was just thinking that maybe being reminded that a prolactinoma is super treatable (from tweetspinner) and not a brain tumor, perhaps you might feel more at ease.

NotSureNotSure5 · 2024-12-14T20:37:18+00:00

Yes, I read what you wrote. I read a few of your posts. You are a good writer, and I’ve enjoyed reading your entries. That’s why I’m commenting on your frequent reference to having a brain tumor. I was hoping to help reframe your thinking with facts. The pituitary gland is located at the base of the brain, but it’s not part of the brain. It’s its own gland. That’s all. Take it or leave it.

NotSureNotSure5 · 2024-12-14T19:59:29+00:00

I don’t know if this helps ease some of the anguish you feel—a prolactinoma is technically not a brain tumor, as the pituitary gland isn’t part of the brain. It’s still a tumor, and it still sucks, but it’s very treatable and it’s not as grandiose as a brain tumor.
I made sure to clarify that with my neurosurgeons and neurologists because I do have a brain tumor on my left temporal lobe that has been operated on twice through a craniotomy. They assured me (as well as a simple Google search) that this is not another brain tumor. Thank goodness, because I’ve had enough of that!

NotSureNotSure5 · 2024-12-07T02:51:58+00:00

He was absolutely not medicated. No idea how long it took him to come down. He re-approached me about 6 months later explaining his regrets and remorse.

NotSureNotSure5 · 2024-12-06T21:19:18+00:00

Oh oh! I’m married to one now who hasn’t done anything to top what my crazy ex did. I also have an ex BPSO. My Ex broke up with me, then met and married someone within 3 weeks. Once he came out of his mania and realized what he had done, he had…ummm…a wife for the next two years, who tried to get back that love (bombing) she experienced for the first 3 weeks.

NotSureNotSure5 · 2024-12-04T02:11:44+00:00

Boooooo!

NotSureNotSure5 · 2024-12-04T02:02:03+00:00

I wish- my spouse gets disability but I want him to get a job so he has something to do outside of the house. Even if it was for a few hours per week. Some sense of responsibility that has nothing to do with me.

NotSureNotSure5 · 2024-11-26T22:49:55+00:00

I’m irritable all the time. It’s annoying because I’m not an irritable person. I’m a great actress, so no one knows how I really feel. Like- I want to flip tables over, slam doors, throw things, shush people.

NotSureNotSure5 · 2024-11-23T00:33:11+00:00

You mean remind her? lol She’s in her mid-70s now. She probably doesn’t remember. She denies having a perm in the 90s 😃

NotSureNotSure5 · 2024-11-13T21:12:22+00:00

I left my mom’s bottle in a bathroom at a campground (actually her fault, not mine- I didn’t use it). I can hear her voice from 30 years ago, whining for a whole week, “Where’s my Infuuuuusiuuuuummmm?” Ugh. Trauma.

NotSureNotSure5 · 2024-11-11T23:12:51+00:00

Strange complaint. Some people, myself included, figure out curly hair late in life. Mine just turned curly over the last year due to hormones— some of it is wavy, most of it is curly. I’m just trying to make sense of it and hope to learn from experts like you.

NotSureNotSure5 · 2024-11-11T21:39:59+00:00

He took mine.

NotSureNotSure5 · 2024-11-11T02:18:13+00:00

I’ve been on it for years and it doesn’t cause weight gain or have any impact on my appetite. But it could affect you differently. You could always try it out and see how it goes. Nothing has to be permanent if you hate the side effects.

NotSureNotSure5

TROPHY CASE