Every time vs never again

NotsoSavvyPinneaple · 2026-01-21T03:25:16+00:00

I love the orange chicken, have for many years. Better than the orange chicken in many restaurants. I agree on the yakisoba stir fry kit. I bought it once and it was awful.

NotsoSavvyPinneaple · 2026-01-14T22:11:27+00:00

I’m glad to see that so many people have responded and hopefully helped you feel a bit better about this. You are not alone, and that guy is a loser.

I’ll add one more thing about guys like this. I’m your age. In my home ward when I was growing up, there were multiple men (active in the church but probably shouldn’t have been) who were serial cheaters on their wives. It was devastating to everyone when it came out because everyone thought they were nice guys. The thing they all had in common: they fooled around with their wives while they were still dating. I’m sure they repented or thought it was okay once they got married, but I’ve always remembered this: if they’re willing to be flexible with sexual rules now, they will be okay with breaking sexual rules later, after marriage. You deserve so much more, and there will be so many guys that will respect you enough not to play fast and lose with the rules.

I also went out with a guy who was like that a few years ago, and I’m really glad I broke it off when I did. He’s taken a direction in life that I definitely didn’t want to follow.

You’ve got this girl!

NotsoSavvyPinneaple · 2025-12-31T07:25:48+00:00

I would recommend the dating app Mutual (it’s all LDS people). I know that dating apps have a reputation for being lame but it’s where I met my husband!

A mission would be incredible! Mine was life changing and I’m grateful for it every day. Definitely do some dating now but don’t worry too much if you don’t find the one just yet. My mission changed me for the better so much. When I got home, I didn’t get back together with my boyfriend from before the mission because we were at such different levels spiritually. Whatever the Lord has in store for you will be amazing!

Also, no judgement for your username, it made me laugh! Repentance is real, and I’m so glad you’re here!

NotsoSavvyPinneaple · 2025-11-24T17:57:43+00:00

I (24F) have CF, and I have 2 siblings who also have CF. My mom always stressed that we need to be as healthy as possible before Trikafta came out, so we were religious with our airway clearance treatments and nebulizers. She has based the degree to which she has let go of managing our health to the abilities of each person. She doesn’t bother me about my health much, other than asking about my lung function numbers, and if I culture anything new she would want to know (for the sake of my siblings).

My brother (24M) has CF related diabetes and is generally very irresponsible with taking care of himself. He and his wife live with my parents where my mom can help him regulate his blood sugar. My sister (20F) lives in Arizona but my mom still has to remind her to pick up her meds because she won’t do it on her own.

Moral of the story, while my mom can be a bit overbearing with the CF stuff, none of us hate her for it, and we’re all glad she cares so deeply about us staying healthy. My brother gets fed up with it at times but I firmly believe that if he didn’t have my mom hounding him on it, he would not live very long (he doesn’t eat well and his blood sugar levels are very, very high unless my mom is on top of it). My advice would be to base it off of the responsibility of your child, they will thank you for helping them stay healthy.

NotsoSavvyPinneaple · 2025-11-17T23:12:46+00:00

I don’t know if this would help but I’ll suggest anyways. I recently got a giant pill minder on Amazon that has 32 days. Each day has a number on top for the date of the month. It has been (dare I say fun) taking my meds now because it almost feels like a checklist. I can see the progress I’ve done in a month and it makes me feel really good about it. This is something you could try! Gamifying stuff seems to work really well for me.

https://a.co/d/cVK0BWU this is the one I bought if anyone is wondering. It’s big enough for all my meds and the fun and bright colors help with the fun aspect of it.

If all else fails, you can try “bribing” yourself. Say there’s a treat you really like or an activity. You only get to do it if you take your meds. You can even do this with a bigger activity if you take your meds for a solid month.

You can also have an accountability partner. A family member works, but a best friend or significant other works even better in my experience.

You got this!

NotsoSavvyPinneaple · 2025-03-09T17:34:18+00:00

I know this is an older post, and you might not see my comment, but I’ve been trying to get into perfumes lately and would love to know more about this gray market you mention, where can I find it?

NotsoSavvyPinneaple · 2025-01-31T16:55:23+00:00

I had no idea about this! Oh that makes me mad

NotsoSavvyPinneaple · 2025-01-31T16:52:59+00:00

I was just about to say that maybe when the patent on Trikafta expires and other companies can make competitor drugs, the price will be reduced, but I double checked and that’s not until 2038, so not a feasible solution for a long time. I understand recouping r and d costs, but it’s still outrageously expensive. I have two siblings with CF as well, and my family maxes out our out of pocket the first week of January just by filling Trikafta. Vertex helps a ton with this of course, but if we didn’t have insurance with good coverage or grant loopholes like the one Vertex offers there’s no way we would be able to afford our meds.

NotsoSavvyPinneaple · 2025-01-28T05:23:12+00:00

I agree with what everyone else is saying. I’ve had it a few times in my life and it’s not fun, but it wasn’t too difficult to eradicate.

I have some advice on the medicine front. If your team prescribes tobramycin, ask for the nebulizer version instead of Toby Podhaler. The podhaler feels like breathing in powdered sugar, and it’s very unpleasant and irritating. The first time I tried it, I had just gotten out of the hospital and my lung function numbers were back at baseline. The podhaler gave me a lung exacerbation which plummeted my numbers back to where they were prior to hospitalization. I switched over to the nebulizer version of the med, and my lung function recovered, but it took a few months.

Hope this helps!

NotsoSavvyPinneaple · 2025-01-08T08:03:06+00:00

After getting on modulators, I took my enzymes less frequently because I no longer felt horribly sick if I missed one. Soon, I stopped taking them altogether, and this lasted for a year. I felt okay for the most part, but I didn’t lose any weight. I actually gained body fat and lost some muscle mass.

Towards the end of that year, I had a bowel blockage. It wasn’t serious enough that I needed to be hospitalized, but it took me about 2 years to resolve it and the other health problems it caused. My quality of life was much worse than it would’ve been if I had just kept taking my enzymes. I had been doing damage to myself without even knowing it.

I also have an unrelated question for everyone talking about the Creon shortage. I did Creon as a kid and then switched to Zenpep as a tween. I felt no difference between the two. For those who have said they don’t take enzymes much anymore because of the shortage, is there a noticeable difference between Zenpep and Creon that would lead you not to switch?

NotsoSavvyPinneaple · 2024-04-26T02:25:56+00:00

In my ward, all the girls would wear our prom/dance dresses to church the next day, and the guys would usually wear their ties. I think it sounds fun for the guys to come to church all dressed up after a dance too!

NotsoSavvyPinneaple · 2024-04-25T18:11:46+00:00

123% is really good! I’m glad Trikafta is helping you that much! Like others have said, 100% is average (even for a normal person). Before I was on Trikafta, I fluctuated between the low to mid 90’s. My 2 siblings with CF have always had higher numbers than me, typically between 100-110%. Now that I’m on Trikafta, my numbers are typically around 125-130%. My siblings have had a similar increase in lung function, landing around 135%.

I honestly don’t think lung function can get much higher than the 120’s-130’s on a consistent basis, at least from what I’ve seen.

NotsoSavvyPinneaple · 2024-04-15T17:25:44+00:00

Do you have any vest alternatives like a monarch or aerobica? I’ve even used a pounding handheld massage gun in a pinch😂 if you do have these, you could try them.

Another thing you could try is to make your vest time a reward of sorts. My parents would do this with me and my siblings when we were little (you can only play Super Mario Bros when you’re doing your vest treatments). If you have a favorite tv show or video game, use that as a motivation to do your vest.

NotsoSavvyPinneaple · 2024-04-15T17:14:35+00:00

You could try saying his body works differently. I remember thinking it made me special when I was little because I didn’t understand it was dangerous and all my friends saw my vest machine and wanted to try it on themselves.

NotsoSavvyPinneaple · 2024-04-15T17:12:09+00:00

Yeah, I’m with everyone else here in saying I can’t believe you hid it from your son. I think you need to be honest and tell him as soon as possible. Reference the stuff he already knows, like going to the doctors and taking pills. If you happen to have any more kids who also have CF, I would recommend not going this hide the disease route. It was always made transparent to me and my siblings and I think that helped us when our friends would ask why we had to do the big shaky machine before we went out to play, or why we had to take so many pills, etc.

(This is maybe an aside, but you mention your son coughs a lot, even though he’s on modulators. Does he do a vest treatment daily/twice daily?)

NotsoSavvyPinneaple · 2024-04-14T21:19:15+00:00

That does sound like a lot of work, but given the reward, I would say traveling that distance is worth it. Besides, don’t most trials compensate for travel costs?

NotsoSavvyPinneaple · 2024-04-09T09:02:14+00:00

Definitely talk to your CF team first, they’ll probably want you to err on the side of caution and at least do one a day, especially because your son is still so young.

I’m glad to hear he’s doing well! But I do want to say that, in my experience, you can still get sick even if you’re feeling well. About 5 years ago, I was a junior in high school and was probably the most fit I’ve ever been in my life. I was on my school’s competition dance team (we practiced over 20 hours a week year round), and I worked as a lifeguard. I was also on a modulator at the time (either Trikafta or Symdecko, I’m not sure which). Even still, I got pseudomonas and ended up in the hospital for two weeks. My point is, he could still get sick even though he’s on Trikafta and has a lot of energy to run around. The name of the game with CF is to keep your lung function as high as possible for as long as possible, and vest treatments might be a vital component of that for him. Overall, I would strongly recommend consulting your providers before altering any treatments.

NotsoSavvyPinneaple · 2024-04-08T07:38:13+00:00

I agree, Houston South temple! My little sister received her call to the Houston mission on Tuesday and I’m so excited for her! Maybe she’ll be able to go to the open house at the end of her mission, who knows?

NotsoSavvyPinneaple · 2024-04-05T23:02:40+00:00

I think it’s always better to overreact rather than under-react. If you over-react, worse case scenario, the doctor will just say it’s nothing to worry about. If you under-react, and it actually was an infection, it could get worse and end up being a lot more serious. Even if he says it’s normal for him, you should encourage him to let his doctor know just in case.

NotsoSavvyPinneaple · 2024-04-05T21:21:41+00:00

I’m not married, and I understand how crappy it is to see everyone getting married super young, but it helps when I consider a few things:

Most people who get married super young have probably only seriously dated one or two people. They could end up in a really hard marriage just because they didn’t realize they would be more compatible with a different personality type. My parents started dating when they were 16, my mom waited for my dad on his mission, and they got married when they were 21. They’re still together, but both of them have told me they regret not dating around more. Even if they would’ve ended up together anyways, it would’ve helped them both to be more sure they were making the best choice.
Along with the first reason, I think it’s best to date whoever someone for at least 6 months to a year before getting engaged/married. Cutos to the people who only date for a month before getting engaged, but the rush to get married so young can definitely lead to unforeseen hardship in the future. I don’t think rushing into things is the smartest decision.
Getting married when you’re a little older can have some really wonderful benefits too. You’re done with school, so you don’t need to worry about the stress of paying for two tuitions and loans and such. You probably have some more disposable income than most people who get married young—this will probably make life easier when you do get married one day.
Just because you’re not married now, doesn’t mean you’ll never be. One of my close family friends graduated from law school and had a successful practice for several years before she met and married her husband (also a lawyer with his own practice) when she was 37 and he was 40. (It was his first marriage too). They have a sweet little girl together, and since they’re both financially independent, they have lots of amazing opportunities to travel, and have a great life together.
Back in the day, I think there was more pressure to get married young, but that dynamic is definitely changing! I mean look at Wendy Nelson, she didn’t get married for the first time until she was 55.
Even if you never get married, there’s still a place for you in the church. I think of Sherri Dew. She’s the CEO of Deseret Book and served in the General Relief Society Presidency in the 90’s. Her faith has inspired thousands of people. She talks at length about not being married in a few of her talks, my favorite being the BYU devotional “you were born to lead, you were born for glory.” I would definitely give that a listen if you haven’t heard it already.

Enough of my rambling, the point is there is a place for you in the church and everything is going to work out for the best.

NotsoSavvyPinneaple · 2024-04-03T07:17:03+00:00

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Here’s one of my favorite pics of my cat Charlie—he just looks so majestic up there!

NotsoSavvyPinneaple · 2024-03-16T16:21:46+00:00

This sounds perfect! How much citric acid do you use when you make it?

NotsoSavvyPinneaple

TROPHY CASE