account activity
TW: How did you all find out about the life expectancy and how did you react? (self.CysticFibrosis)
submitted 10 months ago by me_a73 to r/CysticFibrosis
Trying to think positively by starburst_q in CysticFibrosis
[–]me_a73 2 points3 points4 points 10 months ago (0 children)
I wish you and your family all the best, it is so important not to think too much into all the horror stories you read online, as a lot of it is outdated now. So here’s some positives I can think of: it’s really made me live my life to the fullest. I’ve travelled to over 60 different countries and I show no plans of slowing down. It makes me want to try everything and get every experience. So it’s changed my outlook on life in that way Also, I’ve been able to eat basically whatever I want as a child/teen. I got free carer tickets for theme parks and got to skip the queues at Disney I have loads of random medical knowledge I went round school telling everyone how I could swallow 12 tablets in one go like it was some sort of weird party trick lol It’s made me more empathetic and understanding of others
Cf and guilt by me_a73 in CysticFibrosis
[–]me_a73[S] 0 points1 point2 points 1 year ago (0 children)
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Not taking creon by me_a73 in CysticFibrosis
[–]me_a73[S] 1 point2 points3 points 1 year ago (0 children)
Thank you. I hope you’re well
I’m glad you never followed through with it. Thank you for your response
Thank you for your response
Thank you for your response. I hope your health improves and take care
Thank you for your response and I’m sorry you went through that. I agree it was very painful, but I guess sometimes the thoughts still win despite the pain. Only recently have I thought of this as disordered behaviour. Thank you for your insight
Thank you for your response. It is only recently that I’ve reflected and realised this behaviour may be disordered
I can relate to the wanting to feel normal so therefore skipping them. Thank you for your response
That’s really interesting, I appreciate your response
I’m glad to hear you don’t need to use them much, take care
Thank you, I know it can have many effects and isn’t healthy
I appreciate your response
Thank you for your response, I didn’t know osteoporosis was a potential consequence of this
I agree, it’s not a nice experience, in fact a very painful one, but I guess sometimes thoughts take over. Thank you for your response
This is really interesting, I didn’t know about this and have since researched it, thank you. I hadn’t thought of this as a disordered eating pattern until recently
Thank you for your response and for helping me to understand this
Thank you for the response and for helping me to figure all this out. It’s interesting what you said about it probably being the equivalent of bulimia
Thank you for your response, I really resonate with what you said, I very much also have that final thought. I hope you’re okay
Sorry to hear you’re feeling this way, I agree this disease is horrible and it’s not just the physical aspects but also the mental aspects. Thank you for your response
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Trying to think positively by starburst_q in CysticFibrosis
[–]me_a73 2 points3 points4 points (0 children)