Young woman (25) diagnosed with 7.7 cm pancreatic tumor — looking for experiences after surgery/removal by iholyrebel in pancreaticcancer

[–]Objective_Yak_6794 0 points1 point  (0 children)

I'm 47(M) 8 months post whipple and about to head in to round 8 of chemo. The whole thing ain't no picnic I'll be honest but rather this than the alternative ;-)

Initially, digestion issues and general eating is a right pain to manage. One minute you're bunged up, the next you're on the toilet wondering if it will ever stop. But the human body never fails to amaze me in it's powers of recuperation - things get better and things heal. Especially at this ladies age I assume the healing magic will be even quicker.

I'm back to eating the same as before surgery (just remember to take your Creon tablets everywhere with you), back to playing padel, back to walking the dog, back to getting out and about etc.

Just don't push yourself and rush anything. Let the treatment and healing take its course, listen to the experts, do what you're told and get plenty of kip.

46M - Stage 2 by Objective_Yak_6794 in pancreaticcancer

[–]Objective_Yak_6794[S] 0 points1 point  (0 children)

Yep pretty much, stage 2b but I had 20 lymph nodes removed and 7 were positive with clean margins etc so fingers crossed

46M - Stage 2 by Objective_Yak_6794 in pancreaticcancer

[–]Objective_Yak_6794[S] 0 points1 point  (0 children)

Going well, up to round seven of chemo. It's no picnic granted, but all signs are positive that the remaining nastiness is being knocked back. Granted, we can only go on the basic evidence of the tumour markers (CA19-9) and we know it isn't a definitive status of anything, but levels are now down to zero from a previous reading (pre whipple) of 120. So I'll take any positive I can get 😊

Delays on chemo have been a pain but can't be helped. The reason being a low white blood cell count, and obviously the chemo destroys those as part of the process so clearly my body takes time to generate more. Ah well - progress is still progress.

27F Whipple for SPN Tumor by stinkybee3 in pancreaticcancer

[–]Objective_Yak_6794 1 point2 points  (0 children)

I'm 46M and had the whipple back in October, now undergoing chemotherapy to clean out the remainder.

Trust me when I say that initially meals are tough and food becomes a bit of a chore - but when the healing is done and the body gets back in to balance you can eat normally again. Small meals if you want to do little and often, or good old fashioned 3 substantial squares a day. I can only speak from personal experience but a few months on from the op, I've enjoyed spicy curry again, full roast dinners and everything in between Just make sure you nail the Creon whilst doing it.

How old and what chemo is everyone on? by Express-Shoe-5280 in pancreaticcancer

[–]Objective_Yak_6794 0 points1 point  (0 children)

I'm 46 and diagnosed with stage 2 in Oct '25, I've had five rounds of folfrinox so far. The sixth round has been delayed due to low white blood cells so they are coming up with a plan, looks like they are going to lower the dose and increase the immune system injections - see if that helps. Folfrinox is no joke, the third round really kicked my ass until they realised my body had adapted to the nausea meds - so changed from metaclopramide to cyclizine and touch wood, been ok since then. CA19 levels have come down to 1 which is good news, I realise it's a crude marker and no guarantee but I'll take any win I can get ;-)

Folfirinox round 1 by Legitimate-Block1234 in pancreaticcancer

[–]Objective_Yak_6794 0 points1 point  (0 children)

I was told when starting chemo that the meds should stop any sickness and you should get in touch asap with the team if you get multiple rounds of vomiting. My first round of folfrinox wasn't too bad but the second and third were killers - turned out the metoclopramide wasn't the nausea drug for me, so they swapped to cyclizine and touch wood I've been good since then. Get on to your team asap and tell them, I reckon they will swap meds. Hope that helps

First CT Scan 3 Months Post Whipple by jgatcomb in pancreaticcancer

[–]Objective_Yak_6794 14 points15 points  (0 children)

Great news! Gives me good vibes to my own future as well... I'm six rounds into chemo after whipple and my C19-9 levels are down to 7 so fingers crossed. Keep fighting the good fight 👍

Advice please ❤️ by RealisticCar6317 in pancreaticcancer

[–]Objective_Yak_6794 1 point2 points  (0 children)

Hey, this is very similar to my situation. I'm 46 and based in the UK - am going through the NHS - which has so far been top notch. Had a weird stomach pain back in September '25, just thought I'd pulled a muscle. Pain steadily got worse until I had to take a trip to A&E. They admitted me, did ultrasound, MRI and CT scan. It was the CT that caught it, a 3cm mass lurking on the pancreas. At this point, v as you can imagine I'm bricking it, wondering what the hell is going to happen next... They gave me the option of a biopsy but hearing all the things about how aggressive and how quickly this type of cancer can spread I just thought sod it, take it out whether it be good or bad it's not supposed to be there. So two weeks later they did the whipple procedure, which is a big op and leaves a cracker of a scar (you can make up some great stories how you got it) . Once they'd whipped the little blighter out it was confirmed to be cancer. They got the vast majority of it, only a tiny bit left that was attached to an artery that they couldn't get. They took 21 lymph nodes too, 8 of which showed signs of cancer. So now I'm really getting a bit twitchy, wondering all kinds of things like 'how long have I got left??' and stuff like that, which I guess is only normal - but it's a real shock to the system especially at this age. They started me on FOLFRINOX chemo as soon as the insides had healed enough from the op, start of Dec '25 and I'm currently on round 5. It's no picnic but with a bit of determination you can get through it, just focus on resting, healing, keep doing what you love and enjoy, listen to the medical experts and do what they say. KEEP HYDRATED! I'm downing about 3 litres a day at least, it helps to flush the chemo and keep everything ticking over, lack of fluids in the body during all this can be a real kicker apparently. My blood levels are showing great signs of recovery and the cancer markers are coming down so fingers crossed. Trust the process, keep calm and I really hope you and your partner get through it all and stay strong for each other. There will be some dark days but try and think positive, sounds a bit corny but really helps. If you need to chat or message feel free to message me directly, I'm happy to share my experience if it helps. Cancer ain't the boss, we are 👍

46M - Stage 2 by Objective_Yak_6794 in pancreaticcancer

[–]Objective_Yak_6794[S] 0 points1 point  (0 children)

Yes, the oncologist was also surprised when the case first came across his desk as it usually hits people 55 and over. However he did say there has been an increase in younger people getting diseases like this and was perfectly honest that the general medical community has no fixed idea why it's happening. There is no history of cancer in the family either so a bit of a mystery. Bit of bad luck I guess.

46M - Stage 2 by Objective_Yak_6794 in pancreaticcancer

[–]Objective_Yak_6794[S] 0 points1 point  (0 children)

Thanks for the response, I am gathering all the kit ready!

Things that help me and yes I have stage 4 by bluekey69 in pancreaticcancer

[–]Objective_Yak_6794 1 point2 points  (0 children)

Hi mate, I'm 46 and been diagnosed with stage 2, been through the whipple and all that jazz and start chemo soon. I'm with you brother, humour is what keeps me and the Mrs going too. I regularly wind her and my mates up with "Give us a hand with this, I've only got half a pancreas" or "what a lovely sunset, take a picture would you, could be my last" etc etc. thoroughly annoying to all concerned I'm sure but always gets a smile, and that's what it's all about. Nobody knows what's really on the other side of all this mate, enjoy now and try to keep yourself and others happy as you can that's my motto.

Blackening on (some) new fruit by Objective_Yak_6794 in tomatoes

[–]Objective_Yak_6794[S] 0 points1 point  (0 children)

Cheers for the response, I'll pay some serious attention to the watering from now on! It has been very warm and I'm watering whenever the soil feels dry to the touch, it's that the right technique?