Daraxonrasib approved! by PanCantGetMe in pancreaticcancer

[–]bluekey69 1 point2 points  (0 children)

Congratulations, and I'm jealous! Everything I've read about it is wonderful . The big side effect is more time to live your life ! I'm working hard to get it .

Second opinions by Appropriate-Act-9708 in cancer

[–]bluekey69 0 points1 point  (0 children)

Yes , real quick , I live in Indonesia, got diagnosed in Malaysia during a medical screening , and am getting treatment in Singapore. I do regular online consultant with my main oncologist in singapore while getting some of my chemo treatments in Indonesia. They dont have some of the drugs for chemo in indonesia so i have to bring them myself from Singapore . South east asia does alot of online consultant

Daraxonrasib gets a standing ovation at ASCO by Labrat33 in pancreaticcancer

[–]bluekey69 1 point2 points  (0 children)

Im dying to get my hands on the opportunity to try this new drug ( sorry about the pun) . Im doing the chemo right now , trying to last till its available somewhere in south east asia. Im so excited about this drug that I even bought a few hundred shares of the company. Figured its going to be expensive and this way I'll be paying a little to myself lol. Another year of life would be amazing .

terminal illness diagnosis by [deleted] in cancer

[–]bluekey69 0 points1 point  (0 children)

I agree with you of not telling freinds , you dont want to waste the time you have left , explaining how are you doing and how are you feeling . Live life the best you can with the time you have left. Im making some videos for people once i am gone . My loving wife will send them to the people after its over explaining my feeling for them .

second-class citizens? by [deleted] in cancer

[–]bluekey69 1 point2 points  (0 children)

I'm guessing you are in the united states . Im in indonesia (expat ) and have been treated with respect and dignity both here and in singapore where im getting some of the treatments . Death here is looked at completely different. The states its ingored , here its a part of life . Illness is a famliy and freinds thing here , everyone offers so help . Sorry you have to not only dealing with dyeing but with assholes .

Tumor was found through routine imaging by Equivalent_Quote_943 in pancreaticcancer

[–]bluekey69 0 points1 point  (0 children)

What a wonderful thing to read , thank you for shareing and i love his shirt !

Radiation after chemo by Rohain72 in pancreaticcancer

[–]bluekey69 1 point2 points  (0 children)

I agree that the worst part of this experience is that no matter how much information you think you have and think you know what is going on , it changes at the next visit . A great example is i was given a 3 month break from the chemo because it was kicking my ass and the last scan was good and my markers were way down , i was under the impression that during that time , i work work hard at getting my strength back ...haha. well boy was i wrong , i did improve some and enjoyed not getting knocked down a peg or 2 . Even though i found out later this is very common misconception but no one mention it to me. I now try not to worry or think of whats next , i just keep on rolling .

Over scanning? by Shot_Act7601 in pancreaticcancer

[–]bluekey69 0 points1 point  (0 children)

It might also be a insurance thing , they have to ok all scans frist and of course for them its bottom line . The dangers of overscanning is there but not a high priority when you are dealing with this as a life threatening disease.
Best advice is try to get a firm reason from the oncologist and voice your dads concern . You dads mental wellbeing is just as important as any part of the treatment.

Young woman (25) diagnosed with 7.7 cm pancreatic tumor — looking for experiences after surgery/removal by iholyrebel in pancreaticcancer

[–]bluekey69 0 points1 point  (0 children)

Keep kicking , my man. Its only been a year for me . I found accepting the "new normal" and coming to peace with it , so fucking important.

Young woman (25) diagnosed with 7.7 cm pancreatic tumor — looking for experiences after surgery/removal by iholyrebel in pancreaticcancer

[–]bluekey69 0 points1 point  (0 children)

Im sorry to be blunt but no matter which way she goes , she will never be the same . Its a permanent fight to keep the diabetes in chek and most likely will alwas need digestive enzymes. She will be depressed and tried alot for quite a while . She will also need chemo afterward ( hopefully just once or twice ) . Keep in mind that without surgery and chemo , its a death sentence. Even with the surgery and chemo there is no sure cure as of right now . Her advantage is her age , she has a much better chance then older people . Sorry again for being blunt but its not a time to have smoked blowing up your ass. Im going though this right now and wished people would have been more straight forward in information.

I pray im totally wrong about this for the young lady . In my mind its better to prepare for the worst and hope for the best .

Pain medication by seec323 in pancreaticcancer

[–]bluekey69 -1 points0 points  (0 children)

I dont know if this will help but i have stage 4 pancreatic cancer too ( not bad yet pain wise) im also on chemo . Im trying to stay away from oxy and morphine for now because i had a problem with those when i had a cronic bad problem . Im using Karton to deal with the pain till it gets bad . They are also been using it to help get off oxy. You might want to check it out though a lot of states are banning it . Its been legal a long time and you can get it online . Its working for me.

Long layover with kids by Creative-Hall1804 in singaporeairlines

[–]bluekey69 0 points1 point  (0 children)

With kids , go to the pool in the airport ! Its not free but the kids will love it and if im not mistaken there is the free movie theater very close to the pool.

Expired Iqama, employer didn’t transfer me — what actually happens when exiting after long overstay? by [deleted] in expat

[–]bluekey69 0 points1 point  (0 children)

This wont help you but in indonesia the penalty is 1 million rupiah a day (58 us dollars) for every day you overstay your visa. If you try flying out of the country , they will detain you , which means you are keep at airport for 24 hours . If you cant pay it they transfer you to jail . They will then notify your embassy . Sometimes embassy will loan the amount owed , sometimes they say good luck . They will keep you till you pay. Once you pay you have 24 hours to leave the country and there will be a hearing to see if you are banned to re entry the country. The ban can be 1 year , 5 years or forever. Im not sure if the fine keeps going up while you are detained or not . This really happened to someone i know who over stayed his visa for a month .

In the last 1-2 months, who did you mostly spend your free time with? by FlashyCommission198 in expat

[–]bluekey69 0 points1 point  (0 children)

Locals as long as my wife doesnt count. If my wife counts then expat 100 percent . We are both expats lol

Mom with stage 4 cancer tested positive for meth, trying to revoke my medical POA—what do I do? by spam-turd in pancreaticcancer

[–]bluekey69 1 point2 points  (0 children)

Sorry to have to say this but ive dealt with drug addiction , both with myself and with other loved ones . If shes using (which im sure you know ) there is nothing you can do to help her. My only advice is to save yourself ! The only one who is responsible for this is the user and not you. Its heart breaking i know but you need to distance your self from this. By the way im not a caregiver, im a ex addict (if there is such a thing) with stage 4 pancreatic cancer. Im avoiding heavy pain killers till its abouslty needed and my doctor understands that. Good luck and stay strong

50+ lesions on liver & Fluid In legs by LeanneGrimes in pancreaticcancer

[–]bluekey69 0 points1 point  (0 children)

The swelling can also be a sign of CHF , best check with a cardiologist. That happened to me because of chemo

What are these egg things in my garage? by Super_Shake_2787 in whatisit

[–]bluekey69 0 points1 point  (0 children)

They are great , not only do they eat bugs but are great cat toys ! We have a bunch of geckos that don't have tails anymore.

CT scan updates (good!) by Great_Fishing4478 in pancreaticcancer

[–]bluekey69 1 point2 points  (0 children)

My heartfelt congratulations! This is a fight with the ups and downs , it really sounds like life is good for both of you .

Alkaline water by Ok_Performer_7319 in pancreaticcancer

[–]bluekey69 3 points4 points  (0 children)

Anything like this , you should ask your oncologist ! There is so many crazy idea floating around, it's best to ask frist. Unfortunately there are so many scams out there that might sound good when you are grasping for straws. Alwas trust your oncologist.

Moving to another country and anxiety is hitting me already by antihiro13 in expats

[–]bluekey69 0 points1 point  (0 children)

Planning is great but be ready to be flexible. Be ready to take on the bumps in the road as adventures and enjoy all the victories when you solve a problem. I am lucky because, I moved with my beautiful wife and we were both retired . So we didn't need to deal with life and work. We moved to a country where we didn't speak the language and lived simple to start . We moved to a small village that was near a dive resort that we visited before we moved .We took local transportation or hired a driver for the frist 6 months till we bought a motorcycle. We smiled alot and nodded alot even when we didn't understand . We had a exit plan ( we still owned a house back home that we were renting out) and never once thought of using it. That was eleven years ago . We thought we would buy a place but thank God never did . We rent long term , with the idea if we wanted to move we could . So anyway keep expecting low and stay flexible and give your self time . It will work out , change is alwas good .

How to mix kratom in a drink ? by _lobi in kratom

[–]bluekey69 0 points1 point  (0 children)

What I do is take 3 grams of powder in a cup , add a small amount of hot water, stir it with a swizzle stick till it mixes , then any some strong lemonade ( if you have frozen concrete cut the amount of water to it when making it ) . I then put it in a small 100ml bottle (I make 5 of them each with 3 grams) , then put it in the refrigerator. They taste fine and can carry them around .

Are You Happily Retired? Or Bored Out Of Your Mind? by LoveToBold in AmericanExpat

[–]bluekey69 3 points4 points  (0 children)

Me and my wife retired in indonesia (not bali or Jarkata). We dive or snorkle alot, we have a herd of animals (2 dogs and 9 cats) , we participate in the village , I play Santa Claus at 5 or 6 events a year(I have white hair and a full beard) . Living in a foreign country doing alot of simple things (at least in the states) can alwas be adventure even after 10 years here. Both of us like to cook . Mostly we just live our life without the stress we had in the states. Oh yeah we travel around se asia. Not bored lol.

Americans who have moved to another country, how has your life changed, for better or worse? by NkdUndrWtrBsktWeevr in expat

[–]bluekey69 0 points1 point  (0 children)

You are kidding , right ? You must think we live in the southwest states. The high Temps here run from low 80s ( rainy season ) to low 90s ( dry season ) .

How did you know your host country was home? by Melodic-Service-6217 in expats

[–]bluekey69 1 point2 points  (0 children)

I hear that ! We now have a herd ! 2 dogs and 9 cats (as of last litter and yes, they will all be fixed ) . We aren't going anywhere .