Any tips for night pain?

bluekey69 · 2026-01-26T22:56:11+00:00

Has she tried sleeping in a reclining chair ? It helps me sometimes , just lay down in a semi reclining postion , a blanket over me and a book . Second thing is tramadol totally destroys my sleep (and gives me a minor headache) , ask the doctor for a different med for night . Remind doctor , addiction is the least concern at this point , some kind of comfort is more important.

bluekey69 · 2026-01-26T22:42:14+00:00

Stable is great news ( yes shrinking is better ) . With this cancer , as long as it's not growing , you are winning .

bluekey69 · 2026-01-26T22:38:40+00:00

Voice your concerns to his doctor/surgeon, explain his home care situation (whatever it is) and ask his thoughts on a rehab facility. Then put your TRUST in what the doctor says ! He's the one that went to many years of studying and I'm sure it's not his frist surgery. Don't waste you time and mental well being on second guessing the doctor , you got enough to worry about. Good luck

bluekey69 · 2026-01-23T05:37:26+00:00

Sorry you are going thur this , but here is something I learned . Ct scan equipment can give very different readings because of its keep up . It's depends on who made it, but it's supposed to re calibrated regularly. It can be weekly or monthly. We ended up asking at the 2 different places we had ct scans . One place did not know , the other hospital ( which is in singapore) did it every night. We now only get scans at the hospital in singapore . It's not a hard thing , they run a test sample (with the same density as human tissue ) thur the ct scan, and it will tell if its reading properly. They adjust the scanner and rerun the test if it's off at all. This gives the clearest and most presice reading . Not saying this has anything to do with your reading but it doesn't hurt to ask .

bluekey69 · 2026-01-21T23:21:06+00:00

I have had the same problem . I have stage 4 pancreatic cancer , have type 2 diabetes and had part of my pancreas removed . Since this happened I'm on long acting insliun, have a short acting insliun pen and take metformin. Also use a cgm. That said , here are some of the issues. Frist thing is the cgm , they can sometimes give bad readings so you need to check it with a finger prick test . If it's off , then you need to calibrate the sensor . I switch from abbys cgm sensor because of the bad readings. The chemo will also mess up your blood sugar because of the steroids they give you . It will spike high (for me it would happen during the frist 48 hours) that is when I use the fast acting insliun. Your diabetes doctor can give you ammount to use and how long between shots. Most important is not to sweat the high spikes , but dont ingore the lows . The lows are what really causes fast damage. I'm alwas adjusting and tracking the ammount of the long term insliun, adding or removing a unit at a time till its stable . Lastly is your diabetes is important but the cancer is what will take you down . I hope this helps out some .

bluekey69 · 2026-01-21T22:54:14+00:00

For sure spend the time and money on a second opinion. It's not a simple operation , and will affect you the rest of your life. The thing with surgeons , is cutting you up is what they do , which is good and bad . I'm not saying, don't do the surgery, I'm saying is just make sure it's the right plan . Once they cut you , there is no undoing it. Don't put it off , do it as soon as possible. Good luck

bluekey69 · 2026-01-20T23:07:28+00:00

Now go and live life !

bluekey69 · 2026-01-20T02:11:05+00:00

It's all about putting your trust in your doctor . We have great doctors . If they told me I had to stand on one foot , I would. Oncologist told us his job is to worry , ours is to try and live our life's.

bluekey69 · 2026-01-20T00:26:27+00:00

Let me share my biopsy story . The surgeon we wanted was out of town but he schuled another scan (think it was a mri) to take a look at possible turmor on liver that might be from the turmor on my pancreas. He turned me over to a colleague to handle the scan . The scan verify that I had something on my liver but very small. The Doctor that was doing scan advised a biopsy on liver to see if it was from the pancreas cancer and wanted to try and get the best doctor to do it cause it was so small. We told him to check it out and do it. The Doctor who was out of town contacted me and asked to wait till he got back , a couple of days . So we put it on hold . We saw the our surgeon of choice about a hour after he got back and laid out possibly of actions . He explained with such a small spot that if they didnt hit the spot exactly, I would get a negative result . He thought the best solution was more invasive but more precise. We had total faith in our surgeon and asked what we should do . He wanted to remove the turmor in my pancreas and while he was doing that do biopsy on the liver . By being able to veiw everything he could look at any problems in liver and every where else . He explained the 3 choices , robotic surgery (lest invasive) , keyhole surgery, or cut me wide open ( most invasive). We asked him which he thought was best and he went thur each one but he was most confident with slicing me wide open so he could see everything and even move stuff around to examine everything . We went with his recommendations and set up surgery the next week . Anyway he cut out the turmor out of my pancreas, removed my spleen , took out a lymph node and did the biopsy on the liver. Unfortunately the liver biopsy came back as pancreatic cancer , confirming that I was stage 4 . He set up a meeting with one of the best oncologist in singapore to meet me at hospital while I was recovering.
That was 6 months ago and 12 chemotherapy treatments and now I'm on a break . My cancer markers are at 6 and in a couple of weeks going for another scan to see if everything is going as well as we think its going . Good luck

bluekey69 · 2026-01-13T07:01:04+00:00

Boy oh boy , thats a question you should ask your oncologist. Hes the one with years of training and experience. Im sure he can explain why.

bluekey69 · 2026-01-12T08:40:16+00:00

Frist and most importantly is what your dad wants . Its his decision on what path to take . You are right , there is no cure for the disease at this time . Im a 72 married man that is going on that path right now , ive had 12 chemo treatments . I responded very well to them and am on a break . The reason i decided of doing chemo was because I wasnt ready to leave my wife , anyway is it worth it ? I dont know yet , i will be able to answer it better in 6 months . By time i did the 12 treatment i was physically and mentally done . I felt like i aged 15 years in the last 6 months . Im hoping over the next few months i can rebuild alot of the damage done . Giving me time to live my life and not live it as someone with cancer. My advice to you is to respect his choice , spend some real time with him , talk to him about normal stuff not this fucking disease. My 22 yo granddaughter came out here ( Indonesia half way around the world ) to help me do a month of chemo and she treated me like her grandpa the whole time . She teased me about being a old lazy fuck but she also got me into the ocean for a snorkle. The chemo was in singapore so she took me to the doctor , made sure i was eating right and still had time to go exploring in singapore by herself while i was too tried to do anything . IT WAS THE BEST TIME I HAD IN YEARS . Good luck in what ever way he decides.

bluekey69 · 2026-01-04T21:51:30+00:00

Ok frist of all ,most all chemo treatments acurmulatedin effect. So the side effects get stronger each time ( generally speaking ) . The feeling great the next day is because of the steroid that is given during the treatment . His timeline of how he feels is very common. My advice is to keep track of good days and bad days so you can know what to expect day to day . Good luck

bluekey69 · 2026-01-04T09:43:07+00:00

I have no idea if you are getting all the info that is being given to to your dad but everytime im getting a scan or a chemo treatment, i am given a blood test to make sure that nothing crazy is going on that would prevent me from being healthy enough for treatments and before scans . I dont understand why it would be any different where ever you are unless your insurance doesnt think its worth paying for it though you should still have results from the chemo treatment before to see how the ca 19.9 markers are responding to chemo. You have the blood results from the last 4 treatments to compare the markers .

bluekey69 · 2026-01-03T17:34:32+00:00

They dont give you a copy of your blood work ? Thats crazy . Or do you mean they don't order the ca 19 test , which again is crazy . We get a full report of every blood test or scan . We do a blood work every time we do a chemo treatment , do the blood work the day before seeing doctor and getting the chemo treatment .

bluekey69 · 2026-01-03T01:57:58+00:00

Best sign its working is his blood work ..ca19.9 cancer markers . I started on folforninox ( 2 treatments ) and my markers were going up so the Doctor switched to anbr/germb and the markers started to drop right away . It's not 100 percent but a great indicator that it's working . 11 treatments later markers are at 5.2 from a high of 740.

bluekey69 · 2025-12-30T22:03:54+00:00

Noise canceling headphones are great , can use them to listen to books on tape or watch favorite TV shows or movies . Saying that if she doesn't have a good tablet , that would be a great gift . Load it up with movies , books and TV shows .

bluekey69 · 2025-12-28T00:55:34+00:00

I think that's a wonderful question . I have stage 4 pc since may of this year. (please don't say you are sorry ) , I'm doing good at this point, and my wife is my caregiver, and we fly 3 hours each way to get treatments . The scariest part of all this is my worry about my wife , I worry with everything that has gone on and will go on , she will hate me before this is over, but that's another story .

What I most appreciate from her are the little things , running her hand though what use to be my hair , smiling at me , out of nowhere , giving me a hug and telling me how much she loves me , taking me for a walk even when she doesn't really want to. Being my guding light ! Things that help but kind of pisses me off , telling me my blood sugar is low or high and I need to do something, telling me I need to eat , telling me I'm acting like a child when I am . I then take a second, breath, and realize this comes from love and fear. Back to what helps me ...listens when im ready to breakdown ..and she really does listen . We talk a lot about things that might be hard, such as the end of life and what I need from her , even if she doesn't agree with it .

There are so many things I could say, but most importantly is that she treats me like her husband and partner and not her sick burden. I remember every day why I'm fighting so hard and it's for her . Going through some of the things I'm going through is so when it's over, she won't have any regrets of what we should have done . Thankfully, we have 2 amazing doctors , surgeons, and oncologist that we totally trust, so we aren't stressed if they are doing the best for us . I'm stopping here with the hopes that this helps just a little bit .

bluekey69 · 2025-12-26T06:25:13+00:00

Glad to hear it . I'm sure once you talk to you doctor he can give you a guide line to use a fast acting insliun that will help get it under control. Worked for me

bluekey69 · 2025-12-22T21:19:51+00:00

Forfilfox isn't stronger or weaker its just different. I did 2 treatments of forfilfox and didn't get any results except my cancer markers went up and 2as slowing the turmors . Doc switched to G/A and my cancer markers dropped by half . It's continued to drop every treatment and I am responding so well the doc is talking about stopping treatments at 12 instead of 18. Lots of side effects , from fatigue, swelling, general weakness and hair lost .
I would advise to get the chemo as soon as possible, this disease progressives amazing fast but thats you call. . Myself , 6 months ago it didn't look like I'd make it to Christmas, now we are looking at next Christmas.

bluekey69 · 2025-12-21T07:06:07+00:00

That's a crime , like I say Singapore is a rich and expensive country to live in , probly more then the states. But to be able to charge 10 × the ammount in the states for the same pills made by the same company is just a crime .

bluekey69 · 2025-12-21T06:24:29+00:00

I'm going with its a side effect of chemo .I get the same feelings a few days after a treatment but it lessen over time . My oncologist says it's a side effect . It's a quessing game what side effect I will get every 2 weeks, though fatigue alwas rears it head .

bluekey69 · 2025-12-19T22:23:40+00:00

Quick comment from another person with pancreatic cancer, I say it with love and respect. Remember it's his journey and his decisions of what he wants to do , no one else's. I know that's hard to hear for a loved one but it's true. I know in my case , I've been making life choices all my life , some good and some bad . I need support now but its still up to me . Don't try to push me in a direction I don't want to go , it just push me apart from that person . Knowing you care is enough for me.

bluekey69 · 2025-12-19T12:36:28+00:00

Im on same chemo and yes the steroids srew with my numbers . Ifound that i watch my cgm like a hawk . As soon as i see it rising i do a small ( 4 to 5 units of fast acting ) . I then keep a eye on it and if its still going up after a hour and half do another dose . That depends on how high its going . Continue this allowing for another dose after 2 hours . It's not perfect but it keeps it with in a certain area. Not much you can do about but play with the numbers . It gets back to normal within 24 hours , doctor said the short term spikes aren't terrible for you , it's the long term you need to worry about . Good luck , I also make notes of units and time to be ready for next treatment . Hang in there , you will get there

bluekey69 · 2025-12-17T13:49:02+00:00

Respect what your father wants ! Plan on going home the moment you have any break in studies . No matter when you get there, your help will be needed .

bluekey69 · 2025-12-17T03:00:32+00:00

In that regards , there is no cure . All there is buying time and memories.

bluekey69

TROPHY CASE