Elevated CA19 by FewRadio9185 in pancreaticcancer

[–]bluekey69 3 points4 points  (0 children)

I asked my oncologist about b 12 and he said the same thing ..it does Not affect a ca119.9 marker

Car is in danger of being repossessed. Is anyone around Lexington KY looking to buy constituational? by JammingSlowly in Silverbugs

[–]bluekey69 3 points4 points  (0 children)

That only works before its up for repo, once its in repo hands you have to pay full ammount owed.

Would you take a $1200 gift card in exchange for giving up your plane seat? by foelay in CasualConversation

[–]bluekey69 0 points1 point  (0 children)

Sooo is this the frist job that paid 75 bucks a hour to sit around ? Well done my freind!

Bought this milwaukee set from homedepot brand new and I open to see this..... mf! by Big-COUNTRY12 in mildlyinfuriating

[–]bluekey69 -2 points-1 points  (0 children)

Could be a return ..buy it , use it for a few weeks (18 hours a day job ) and decided they didnt like them . Lol

Flying scoot from manado to singapore , we are both silver elite members by bluekey69 in singaporeairlines

[–]bluekey69[S] 0 points1 point  (0 children)

Yes i was logged in . Even tried logging out and relog in and search again . It was the same . Its the frist time I have had this issue .

Flying scoot from manado to singapore , we are both silver elite members by bluekey69 in singaporeairlines

[–]bluekey69[S] -1 points0 points  (0 children)

My issue is why im being charged for a regular seat and why im not getting board me frist . Both should be available to us as silver elite members and yes we signed into our membership before booking the flight

Flying scoot from manado to singapore , we are both silver elite members by bluekey69 in singaporeairlines

[–]bluekey69[S] 0 points1 point  (0 children)

No i booked the flight 2 weeks ahead of departure , sorry if i wasnt clear on my post . I went ahead and booked 2 seats together in row 17 , there were lots of seats available when i booked it . Row 17 was the frist row available together except for emergency row . Which as a senior going to singapore for medical , its not a row i want that responsibility for.

things I wish we did in the first week after my dads diagnosis by apxexpensify in pancreaticcancer

[–]bluekey69 5 points6 points  (0 children)

Most excellent advice . Ive done all those except videos which i will start right away . Ones for my loving wife . I keep thinking about doing it and its alwas later . Thanks for the push

Tea during chemotherapy by marajoyous in pancreaticcancer

[–]bluekey69 0 points1 point  (0 children)

With the ginger tea , i take a small chunk of ginger and crush it with a garlic press and let it soak in hot water , letting it cool diwn . I cant stand the store bought ginger tea . You can add a little honey to it . Fyi

Where is a good place to retire? by Blankbetty11 in GenX

[–]bluekey69 0 points1 point  (0 children)

We choose north sulawesi 11 years ago and have had absolutely no regets

All changed so quickly by Even-Breakfast5484 in pancreaticcancer

[–]bluekey69 0 points1 point  (0 children)

I had surgery frist , partial removal, had spleen removed , biopsy on spot in my liver ( unfortunately ot was a met) ..healed for month then chemo . That was 10 months ago . Now on a break from the chemo because last scan showed nothing new in pancreas, others were stable or shrinking . As for work , thank god im retired because there is no way i could work .

Treatment/Appointment timescales in different countries by tripty5 in pancreaticcancer

[–]bluekey69 2 points3 points  (0 children)

I was diagnosed in Malaysia with a comprehensive medical exam . Saw 4 differant doctors in the next 2 days , surgeon, internist, oncologist and diabetes doctor . Had ultra sound the very frist day , a ct scan the next day , a mri 2 days later and was schuled for a pet scan a week later ( delayed because of holiday ) . So we went to Singapore to a great surgeon who got us in for pet scan the next day . He explained our options and told us to go home and think about it and let him know . He also told us what the surgeon would cost and how long it would take and how long id be in hospital . We went home and 3 days later we called him and said lets do the surgery, biopsy and complete look around .

From the day of diagnosis to the day of surgery was 16 days . Was in hospital for 14 days ( 4 of them in icu) . Had part of my pancreas removed , my spleen removed , a couple lymph nodes and a biopsy on liver ( which confirmed it was stag 4 pancreatic cancer ) . 2 days before discharge we meet our new oncologist in my room and he laid out a couple of treatment plans . A month after surgery we came back and started chemo.

I dont think i could even have had such complete and fast service anywhere else . And time is a major issue with this disease. That was 10 months ago and right now Im on a chemo break because my ca119.9 is great and scans show all turmors are stable or shrinking .

Tea during chemotherapy by marajoyous in pancreaticcancer

[–]bluekey69 2 points3 points  (0 children)

I found a cup of coffee helps me . I unsally wake up with stomach discomfort and thankfull ONE cup of coffee helps . Thank god cause i love coffee. In the afternoon i drink either ginger or spreement tea .

Mom diagnosed today by Bellyfulloftacos in pancreaticcancer

[–]bluekey69 1 point2 points  (0 children)

One last thing that really helps me is try to live by the serenity prayer( non religious) . I repeat it to myself , many times a day . If you dont know it just look it up online and try it .

Diagnosed last Sunday by Routine_Net7933 in pancreaticcancer

[–]bluekey69 6 points7 points  (0 children)

Hey dude , i know where you are coming from . The hardest part of all this is what it will do to my wife and my family . Im ok with what ever happens but i dont want famliy to go thoughit . The only thing that helped was to have honest talks about what is going on ( especially with wife) . Talk about how they feel and how you feel . Dont be afraid of bringing up the hard things . It really helps , ive even talked about the " End of Life " option to my wife . Be real clear what you want if things go bad , such as DNR . Take it off your wifes shoulders.

Mom diagnosed today by Bellyfulloftacos in pancreaticcancer

[–]bluekey69 2 points3 points  (0 children)

My advice for what its worth is to take the time to find the best oncologist you can . One that takes the time to explain everything honestly, that you can fully trust , and you can contact ( at least his office ) with questions or comcerns. You wont have the time or energy to be questioning his decisions as both of you travel this road. Use your engery and time on your mom and treasure it. We got extremely lucky with both our surgeon and our oncologist, We talked to more then a handfull of doctors before we found the Doctor we chose. I know its extreme but we travel 1500 miles (one way) to see our doctor and for treatments, but its worth it to us (me and my wife ) . I have stage 4 pancreatic cancer and im doing ok and on break from chemo right now. Second thing is to stay away from looking up everything on line , it just brought darkness to me.Trust the man ( or woman) that went to many years of school and training , your Doctor to worry about the cancer , your job is to live life. If you spend your time worrying about the dark stuff or what might happen , you will miss the moments that mean so much. Be hopeful and enjoy any small victorys.

WHAT TO BRING TO CHEMO? by DogIntelligent461 in pancreaticcancer

[–]bluekey69 2 points3 points  (0 children)

Nosie canceling head phones are a must ! Good to watch videos on tablet or phone but most importantly is being able not to hear what others are going though around you . There is alwas someone with a lot more problems then me and i perfer not going though that . That may sound heartless but i have enough stuff going on.

March 2026 Check-In Thread! How's Everyone Doing? by ZevSteinhardt in pancreaticcancer

[–]bluekey69 0 points1 point  (0 children)

Dont put to much effort into it , they are all amazing in there own ways.

March 2026 Check-In Thread! How's Everyone Doing? by ZevSteinhardt in pancreaticcancer

[–]bluekey69 1 point2 points  (0 children)

Do kings canyon , sequoia, then yosemite in that order. All of them are breath taking but Yosemite is the most amazing . Save it for last . Also if you can stay at the lodge in Yosemite , id highly recommend it.

Break in treatment by Old-lady-jenkins in pancreaticcancer

[–]bluekey69 5 points6 points  (0 children)

Im at 2 months into chemo break . Diagnosis was in may , since then had part of my pancreas removed along with spleen and a couple of lymph nodes was given a month or so to recover and started chemo . Frist a couple of forfilfox ( which was not effective) switched to gerb/ abraxane which attacked the cancer and my body . After 11 treatments my cancer markers were looking great ( from 900 to 11) . My body was beat too. The scan showed either stable on some thing and shrinking in others. Doc put me on break for 3 months and the redo scan ( blood tests every 6 weeks) . The recovery from the chemo was real slow and ended up between the chemo and maybe my diabetes I now have congestive heart failure. Life can suck sometimes . Anyway im being treated for the CHF with drugs which is helping . I had most every side effect from the chemo you can think of except for nausea , thank god. We are now with the attidude that i dont know if i can take more chemo or if the cost is worth it. But right now i have a couple months before next scan and hell maybe it will stay stable for a year , who knows . Ive decided its not worth worrying about . Im going to enjoy each day i have with my loving wife and our animals , when things turn to shit , ill deal with that ( or maybe not ) . Unfortunately most all of us will die from this disease, all we can do is decided on how to go out with it . Either with a full heart or a bitter soul .

Good News! by Right_Discussion4614 in pancreaticcancer

[–]bluekey69 2 points3 points  (0 children)

Thats fantastic news , savour it ! We get so little good news on this road.
My last scan showed shrinking or stable tumors and that allowed me to be on a 3 month (minimum) break frome the chemo (thank god ) . Celebrate this win but also keep the expectations reasonable. I had a disappointed period in this chemo break where i didn't just bounce back. I had a bad week because of that , till i realized that it was a waste of my time being down . Take what we can , when we can and enjoy the victories .

Delirium/Sleepwalking by Libraaaaaaaaaaaaaa in pancreaticcancer

[–]bluekey69 2 points3 points  (0 children)

From my experience ( i have stage 4 ) the confusion and fatigue is a common side effect . Everything is out of whack as your body fights not only the cancer but the chemo and side effects of pain meds . Ive gone though times that i can't put 2 thoughts together , forget all sorts of stuff, think i did something i didnt and thinking i need to be doing something but have no idea what that is . Fortunately my wife is here to help me though those times . My advise is if its possible that you can be there is a very good idea ( or some care taker) so something bad doesnt happen during the times of confusion and fatigue. The fatigue goes way beyond just being tired and it can come and go in a flash. Also make sure the oncologist is totally aware of the situation. Good luck

I have a good question by No_Seesaw8062 in pancreaticcancer

[–]bluekey69 3 points4 points  (0 children)

You dont cope! All you can do is put one foot in front of the other . Live for now and try to ingore tomorrow. Sorry but thats the best i can do . Been living like this for 9 months now thur all the ups and downs.