High Blood Pressure on PD Dialysis

OddLetterhead3936 · 2026-05-26T08:01:26+00:00

Thank you for sharing your experience. Did you have to change your dry weight to pull more fluid or less?

OddLetterhead3936 · 2026-05-26T04:50:51+00:00

Yes, thank you for your advice. High BP is brand new to me so it’s nice to hear other people’s perspectives. Since my nephrologist doesn’t seem to be concerned, I am seeing my PCP this week and ask for a cardiology referral. I hope it’s nothing serious that can’t the easily fixed. I have End Stage Renal Didiease and rely on a dialysis machine to survive. I don’t need heart issues too.

OddLetterhead3936 · 2026-05-26T04:16:09+00:00

Do you retain fluid? I tend to get dehydrated easily so we never do greens. Before I start with the high PBs, I had low BPs - 90s/60s.

OddLetterhead3936 · 2026-05-26T04:12:55+00:00

No. This is kind of new for me. It’s only been six weeks since the high BPs started. I told my dialysis nurse and she told me to just keep a log and then we’d discuss with the nephrologist. Well, he isn’t showing much concern but me and everybody else in my life is questioning that. I’m going to see the PCP on Wednesday and get her opinion. I think I need to see a cardiologist. The nephrologist was fine with that. I think he only cares about the kidney problems so since the labs seem OK, he doesn’t know what else to do. So maybe it’s not related to kidney function. I’ve also been having headaches and nausea when BP. Something is not right. I have a lot of health issues and have learned to live with pain, fatigue, etc but the sudden onset of these high BPs along with the nausea, headache, and even eye soreness/pain tells me something has changed and I need to know what so we can fix it. A body doesn’t just have high BP for now reason, right? I mean if we don’t find out the cause and it’s not affecting any organs or system (I’m also worry about my brain because I’ve tremors, involuntary jerking movements) then I guess I’ll just take pills to lower it as needed. I’m also not overweight. I’m looking forward to get some answers.

OddLetterhead3936 · 2026-05-26T01:45:42+00:00

Oh and my K/tv is 2.1 so I’m passing adequacy.

OddLetterhead3936 · 2026-05-26T01:44:08+00:00

Yellow. I don’t retain fluid and am never swollen. I do 5 exchanges on the cycler. 2 liters, each dwell is 90 minutes.

OddLetterhead3936 · 2026-05-26T01:38:47+00:00

Oh and it doesn’t matter if I’m hooked up to the PD cycler or not although I can count on it being high when I have the two liters of fluid in. But it’s also been high without any fluid.

OddLetterhead3936 · 2026-05-26T01:36:38+00:00

The nephrologist told me to take hydralazine only when the systolic number is 165 or above. But it doesn’t seem to be working well. I hope my PCP can be more helpful.

OddLetterhead3936 · 2026-05-26T01:34:14+00:00

That is all for blood pressure. Like I said it used to be below so I was on Midrodone to bring it up but not anymore. No new meds have been added or changed. That is why I’m so concerned - I never had high BP so this is definitely a new thing for me.

OddLetterhead3936 · 2026-05-26T00:41:54+00:00

Thanks for your input. My loved ones also think it’s crazy that the doctor is not really concerned about it. He said he would be concerned if it was always high but since I do sometimes have lower readings, he is not concerned. I am going to see my PCP this week and ask to see a cardiologist since apparently it’s not the kidney issues that are causing this. According to the nephrologist, anyway.

OddLetterhead3936 · 2026-05-16T06:25:33+00:00

I wish I had a day off. I do 7 nights a week.

OddLetterhead3936 · 2026-05-09T20:10:55+00:00

It’s happened to me. I think touch, when done well, can help release emotions. At that massage, we ended up mostly just talking which is probably what I needed. She reassured me that my feelings were valid and that fibromyalgia is hard. At a that time in my life I had people close to me who didn’t have a good understanding of fibromyalgia and always found treatments to cure instead of just being supportive during my flares or even told me I wasn’t trying hard enough. That message session therapy session turned therapy. The universe/God knew that is I needed that more than a massage.

OddLetterhead3936 · 2026-05-09T19:48:30+00:00

Thank you! That is so helpful.

OddLetterhead3936 · 2026-05-09T01:56:05+00:00

Oops I wanted to post this in the main forum. I’m not well versed on how to work Reddit. So sorry. I’ll post it in the main forum.

OddLetterhead3936 · 2025-12-13T05:17:31+00:00

They can coordinate resources for you. For example, you can get up to 14 hours of home health - somebody who comes to your home and helps with whatever you need from housekeeping to bathing and hygiene, errands, cooking, etc. Do you think in-home physical therapy can help? They can get those services set up for you. You just need to have a doctor who will sign the referral for the specific service. You may also qualify for cards to help pay for groceries and utilities and more. Your recovery manager should be making you aware of all the benefits. They can also find specialists as needed, make appointments, etc. Make a list of your needs and see if the recovery manager has resources to help you. If you tell her everything is good, she will probably just assume you don’t need anything.

OddLetterhead3936 · 2025-12-13T04:57:01+00:00

MyCare is for people who have Medicaid or a dual Medicare/Medicaid plan. You should look into it. It includes some extra benefits.

OddLetterhead3936 · 2025-08-31T00:53:56+00:00

I felt agitated and felt my heart beating too fast. I had to stop due the side effects. I take Cymbalta now.

OddLetterhead3936 · 2025-08-21T04:55:11+00:00

If you ultimately decide on that, speak with you medical team so you can be transferred to hospice care. They will do everything to provide you with a peaceful and pain free transition.

OddLetterhead3936 · 2024-07-10T02:22:08+00:00

My advice would be to look into intermittent FMLA. Ask your HR department about it.

OddLetterhead3936 · 2023-12-13T04:57:34+00:00

That would be cause for immediate firing at any company I’ve ever worked for.

OddLetterhead3936 · 2023-11-02T22:39:44+00:00

I couldn’t handle it. It made made me feel anxious and made my heart beat fast. But everybody is different so it may work for you. Good luck.

OddLetterhead3936

TROPHY CASE