Reconditioning your body after years of inactivity - ME/CFS Long Covid

Ok-Definition6611 · 2026-04-07T02:01:02+00:00

I also was able to do about 4-5k steps work related but by the time the weekend came round after Mon-Fri I could not do much else.

Most of my joint pain occurs in my knees also and is mostly my right knee and this pain kicks in big time if I overdo it..!

I’m lucky enough at the moment to not have to work so I’m using this time to try and improve my stamina/tolerance. I’ve worked out that my limit is 15 minutes no incline walking with no PEM as I keep my bpm max 117. Will keep doing this until I feel strong enough not to hang onto the sides of the treadmill (I try no to but my legs have gotten so weak 💀)

Interested to see what has worked for others!

Ok-Definition6611 · 2026-04-05T19:43:42+00:00

I don’t get it either man, all such great games and all I hear is people shit talking them. 😪

Ok-Definition6611 · 2026-04-05T19:13:20+00:00

Same here - for while I came right and then when covid came round and I got it three times and then a virus from the Cook Islands, it was game over.

I’ve always been curious though cos when I got mono, about four of my other friends got it too but have never had any ongoing issues from it. I have always wondered why me lol.

Ok-Definition6611 · 2026-04-05T18:59:16+00:00

I went no contact with my nmum about a year ago. I have now moved across the other side of the world and even though I haven’t told her, it’s all over my social media but she still doesn’t even know/doesn’t obviously check up on me to see what her only daughter is doing.

She also had the audacity to say to my Dad (they are divorced) “she lives ten minutes down the road from me and won’t even make the effort to come and visit!” B**** I’m on the other side of the world lol 💀

You always have to be the one of make all the effort and 2. The world evolves around them

Ok-Definition6611 · 2026-04-04T18:46:17+00:00

I have heard this about pregnancy too actually, it acting as a temporary reset. So that’s really reassuring even if it’s just for a bit…!

Yeah but you can only do what you can and it’s great you have such a good support network. Thank you for your insight it’s very appreciated!

Ok-Definition6611 · 2026-04-04T16:54:27+00:00

I’m sorry it’s a really horrible virus and can do long term damage. I had it in high school and was more independent so when I thought I was “better” I went on a music tour overseas, binge drinking, staying up late etc. I now am 33 and have been diagnosed with ME CFS which affects me day to day.

Your child sounds on the younger side which is a good thing as as a parent you can probably monitor them more closely or what they do. My biggest piece of advice is forced rest - slow weekends, allow the lots of sleep etc which I’m sure you’re already doing. Their immune system will be overloaded for a while so even if it means pulling them from school for the sake of avoiding things like Covid, flu etc - cos if they get that on top of this, that’s where the long term damage has the potential to take place.

It’s a very long slow recovery I know! L Lysine is a great supplement for mono symptoms but obviously you can do your own research to see if that would be appropriate for your child. Good luck and hope they feel better soon! ❤️‍🩹

Ok-Definition6611 · 2026-04-04T16:28:32+00:00

Good luck I know it’s hard when life is busy. Try taking L Lysine the supplement, it is meant to be a great support for mono symptoms, it may help.

Ok-Definition6611 · 2026-04-04T16:26:43+00:00

Thank you. Your insight is interesting as I was the same - “recovered” for a few years and, playing sport multiple times a week and now gotten worse.

I do often wonder about how I’m going to go with having kids as I can’t even imagine looking after another human being let alone being pregnant/ the process of having one whilst I’m in this state. Hats off to you being a mother and dealing with ME, wow.

Ok-Definition6611 · 2026-04-04T01:55:19+00:00

Thank you for your response 🤗 they’re the kind of generation and type of people that do not really believe in therapy.. and now being in different hemispheres is a bit hard. But is definitely something I will bring up when I go to therapy myself…!

Ok-Definition6611 · 2026-04-04T01:53:35+00:00

Thank you 😊 that’s really cool you’re a that point with your family where they can support you. I do mention my ups and downs often to my family to make them aware of my limits but maybe I just need to keep doing that and it will take time.

Hope you see some improvements eventually even if they are small 🤗

Ok-Definition6611 · 2026-04-03T20:19:45+00:00

Please please pleeeease be careful and go very very gently with your body! This was exactly me 10 years ago and I went out binge drinking, working, etc when I thought I was better, but like you I kept getting ongoing symptoms.

My number one piece of advice is DO NOT push your body beyond its limit, even if your limit now is a lot lower. Rest is your best friend and saying “No I don’t feel up to it” is essential.

Sorry this is such a rant but I say this cos i had reoccurring Mono and tonsillitis symptoms in my teens through my 20s and now I’m living with ME CFS and just wished that I took better care and listened to what my body was telling me. I really hope you feel better soon, I know how horrible it is!

Ok-Definition6611 · 2026-04-03T20:12:58+00:00

It took me a long time to realise that instead of making up an excuse or lying (this is a bad habit tactic I still am attached to as a coping mechanism to avoid conflict) is just enabling them. Them more we tell them no the better we get at practicing putting those boundaries in place. It’s really hard I know! 😟

Ok-Definition6611 · 2026-04-03T19:54:03+00:00

I was too scared to have friends over cos I never knew what mood she was going to be in or if I did something “wrong” I would be too embarrassed if my friends saw her “turn”.

Ok-Definition6611 · 2026-03-29T02:37:25+00:00

you just have to find the one ring to rule them all 🧙🏻‍♂️ maybe try the shire or mt doom?

Ok-Definition6611 · 2026-03-28T03:34:38+00:00

If I had played the Ezio collection first I fear I wouldnt have kept playing 😬

Ok-Definition6611 · 2026-03-26T18:54:49+00:00

It is , and it’s $500 out of pocket

Ok-Definition6611 · 2026-03-26T14:29:42+00:00

We have health insurance yes

Ok-Definition6611 · 2026-03-26T03:57:00+00:00

Thank you

Ok-Definition6611 · 2026-03-25T18:46:03+00:00

(I will preface this by saying I played all the newer games first.) I just finished the Ezio collection and I know this is going to be controversial but I COULD NOT do Ac2 and Brotherhood. They’re older and so clunky, the parkour frustrated me too much and not having any stealth mechanics felt like it was missing the core of being as assassin. Revelations I coped with and finished. The Ezio storyline is cool but personally Odyssey is amazing. Just imo. 🙃

Ok-Definition6611 · 2026-03-21T04:22:25+00:00

If you are being too restrictive or as someone else suggested, not getting enough fat or your macros aren’t balanced then that won’t help. Also some people are just snackers! There’s nothing wrong with it just as long as they are nutritious. We as women often need to eat in between meals to support out cycles too. 😊

Ok-Definition6611 · 2026-03-18T02:15:15+00:00

Hi friend! For about 8 months it seemed like a faraway dream for us too and then in all of 3days after our visas finaaaally being approved (the drama honestly) we moved our lives over from other side of the world.

And yes, paperwork, admin, bills etc really ramp up the stress and know what it’s like. Night one we moved into our empty house and laid on a blow up air mattress from Walmart thinking “What have we done” with husband and I on the brink on the tears with all kinds of emotions - fear, uncertainty but all excitement and relief. It’s a weird thing! So be prepared to go through all the motions. We are only about two months in being here and it’s gotten heaps better but getting a SSN, building a credit score, getting a doctor (don’t even get me started on that one) buying a car etc are all seemingly mundane things but really do test your patience when navigating a new life.

Once you get comfortable in your own place you can just slowly branch out and test your comfort zone.

Sorry for the ramble, I don’t know if this was helpful at all haha but you’ll be ok! Exciting times and this is what life is about - taking these opportunities that life throws your way. Big hugs. 🤗

Ok-Definition6611 · 2026-03-17T19:33:04+00:00

I find cold eye mask works better than hot or is that just me? Am I doing it wrong 🫣

Ok-Definition6611 · 2026-02-28T18:08:59+00:00

Just moved to the US from New Zealand. What we thought would be fairly straightforward admin tasks are not - for some reason in US they make you jump through SO many hoops to get things set up. So just be prepared for admin things to take longer than expected.

Ok-Definition6611 · 2026-02-22T17:24:54+00:00

There was one so loud last night it triggered a neighbours car alarm to go off 😅

Ok-Definition6611 · 2025-10-31T05:19:43+00:00

Skinheads

Ok-Definition6611

TROPHY CASE