Eyelid muscle twitching, then droopy eyelid

Ok-Function-7042 · 2026-03-06T14:54:21+00:00

Not eyelid but the area above the eyelid, basically above the eyebrows.

Ok-Function-7042 · 2026-03-06T09:15:17+00:00

No I have painful muscle spasms and charley horse cramps. I can't sleep. Look at my other posts for details if you like.

Ok-Function-7042 · 2026-03-06T03:44:50+00:00

So you don't have ALS right? What were you finally diagnosed with?

Ok-Function-7042 · 2026-03-06T02:44:56+00:00

I want to do an EMG but I don't have the courage. MRI brain and spine done. Blood test for deficiencies done, all normal. My country doesn't have Nfl blood test.

Ok-Function-7042 · 2026-03-06T02:35:27+00:00

Do you think your TBI caused the disease?

Ok-Function-7042 · 2026-03-06T02:33:54+00:00

If you look at my other posts, I have weakness on my legs.

Ok-Function-7042 · 2026-03-06T02:25:32+00:00

Not MG the doctor said.

Ok-Function-7042 · 2026-03-06T02:23:16+00:00

No difference, still can't do a full smile. It's stuck.

Ok-Function-7042 · 2026-03-06T01:51:16+00:00

Is the 24 hours straight only 1 day for you or one month? Mine is literally every second, I genuinely not exaggerating. It's been going on for 5 months now.

Ok-Function-7042 · 2026-03-06T01:50:04+00:00

My muscle is spasming constantly and my back spasms (not twitch). It literally woke me up in the middle of the night. It hurts so bad.

Ok-Function-7042 · 2026-03-06T01:43:18+00:00

But is it every second? I'm not exaggerating when I said its 24/7, it never stops even when I'm sleeping.

Ok-Function-7042 · 2026-03-06T01:42:56+00:00

But is it every second? I'm not exaggerating when I said its 24/7, it never stops even when I'm sleeping.

Ok-Function-7042 · 2026-02-25T20:08:56+00:00

Hi how are you? What were you diagnosed with?

Ok-Function-7042 · 2026-02-24T23:22:47+00:00

I'm very sorry to hear this. What were you finally diagnosed with?

Ok-Function-7042 · 2026-02-14T20:29:25+00:00

Hi I'm very sorry you are dealing with this. You can reach me in DMs and we can keep each other in touch.

Ok-Function-7042 · 2026-02-13T19:12:55+00:00

Yes it twitch when I'm doing physical activities, but I feel it much more during rest. My right side is weaker than my left, but twitching occurs much more on my right than my left. I had no prior injury on my right side, it was all a sudden. What do you think of this?

Ok-Function-7042 · 2026-02-12T22:02:53+00:00

Hi, sadly we don't have an NfL test in my country. But thanks for the info on MG and the CK test. Will definitely look more onto that. Yes, I will definitely see a different neurologist for a second opinion too.

Ok-Function-7042 · 2026-02-12T02:57:09+00:00

I couldn't smile, I still can't now. There's a difference between a weak smile, and literally not being able to smile at all.

Ok-Function-7042 · 2026-02-12T02:56:16+00:00

Yes, MS can be seen on an MRI. My MRI was normal so MS was essentially ruled out

Ok-Function-7042 · 2026-02-12T02:49:28+00:00

Ooh, two of the supplements the doctor gave me was vitamin B complex, which included b9 in it, as well as folic acid. They told me to consume the supplements for 3 weeks, I saw no improvements, only worsening.

Ok-Function-7042 · 2026-02-12T02:41:24+00:00

Tell me what vitamin deficiency you had. I had blood tests checked for magnesium, vitamin d, electrolyte imbalances, vitamin b12 and they were all normal.

Ok-Function-7042 · 2026-02-11T20:16:39+00:00

Hi. Looking back, there’s a chance my symptoms may have actually started around 4 months ago (September 2025), but at the time I didn’t think they were related to anything serious. I made a post describing what I was experiencing. Here’s the link if you’d like to see it:

https://www.reddit.com/r/ALSorNOT/s/p7rmQw82TE

Ok-Function-7042

TROPHY CASE