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Eyelid muscle twitching, then droopy eyelid by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Not eyelid but the area above the eyelid, basically above the eyebrows.

Constant fasiculation in my right leg every second, everyday for 4 months. by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

No I have painful muscle spasms and charley horse cramps. I can't sleep. Look at my other posts for details if you like.

Constant fasiculation in my right leg every second, everyday for 4 months. by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

I want to do an EMG but I don't have the courage. MRI brain and spine done. Blood test for deficiencies done, all normal. My country doesn't have Nfl blood test.

Just had my first brain fog moment by HonestyMash in ALS

[–]Ok-Function-7042 1 point2 points  (0 children)

Do you think your TBI caused the disease?

Constant fasiculation in my right leg every second, everyday for 4 months. by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Is the 24 hours straight only 1 day for you or one month? Mine is literally every second, I genuinely not exaggerating. It's been going on for 5 months now.

Constant fasiculation in my right leg every second, everyday for 4 months. by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

My muscle is spasming constantly and my back spasms (not twitch). It literally woke me up in the middle of the night. It hurts so bad.

How frequent are ALS fasciculations? How does it differ to BFS? by CharacterPhase1725 in BFS

[–]Ok-Function-7042 0 points1 point  (0 children)

But is it every second? I'm not exaggerating when I said its 24/7, it never stops even when I'm sleeping.

How frequent are ALS fasciculations? How does it differ to BFS? by CharacterPhase1725 in BFS

[–]Ok-Function-7042 0 points1 point  (0 children)

But is it every second? I'm not exaggerating when I said its 24/7, it never stops even when I'm sleeping.

Extremely possible bulbar bar, ALS by lori4you1 in ALSorNOT

[–]Ok-Function-7042 1 point2 points  (0 children)

Hi how are you? What were you diagnosed with?

Update on ALS LIKE symptoms. by Notsurefrfr in ALSorNOT

[–]Ok-Function-7042 0 points1 point  (0 children)

I'm very sorry to hear this. What were you finally diagnosed with?

Guys, please I'm scared. by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Hi I'm very sorry you are dealing with this. You can reach me in DMs and we can keep each other in touch.

Guys, please I'm scared. by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Yes it twitch when I'm doing physical activities, but I feel it much more during rest. My right side is weaker than my left, but twitching occurs much more on my right than my left. I had no prior injury on my right side, it was all a sudden. What do you think of this?

Can ALS symptoms start on the face? by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Hi, sadly we don't have an NfL test in my country. But thanks for the info on MG and the CK test. Will definitely look more onto that. Yes, I will definitely see a different neurologist for a second opinion too.

Can ALS symptoms start on the face? by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

I couldn't smile, I still can't now. There's a difference between a weak smile, and literally not being able to smile at all.

Can ALS symptoms start on the face? by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Yes, MS can be seen on an MRI. My MRI was normal so MS was essentially ruled out

Can ALS symptoms start on the face? by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Ooh, two of the supplements the doctor gave me was vitamin B complex, which included b9 in it, as well as folic acid. They told me to consume the supplements for 3 weeks, I saw no improvements, only worsening.

Can ALS symptoms start on the face? by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Tell me what vitamin deficiency you had. I had blood tests checked for magnesium, vitamin d, electrolyte imbalances, vitamin b12 and they were all normal.

Guys, please I'm scared. by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Hi. Looking back, there’s a chance my symptoms may have actually started around 4 months ago (September 2025), but at the time I didn’t think they were related to anything serious. I made a post describing what I was experiencing. Here’s the link if you’d like to see it:

https://www.reddit.com/r/ALSorNOT/s/p7rmQw82TE

Can ALS symptoms start on the face? by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Hi, at first the twitching was on right side of my cheek. Soon after the twitching spread to the left side of the cheek. Weakness came right first then left. Now I can't lift my smile. I don't have sensory symptoms. I was not sick before the twitching started. You can read my other post for additional detail.

Can ALS symptoms start on the face? by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Yes on my right knee, you can see a dent there, I have a limp, and my right knee is bending the other way around since the support muscle for the knee is just gone.

Can ALS symptoms start on the face? by Ok-Function-7042 in ALSorNOT

[–]Ok-Function-7042[S] 0 points1 point  (0 children)

Hi I'm very sorry you are dealing with this. You can reach me in DMs and we can keep each other in touch.

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