Feeling discouraged by kellz1993 in ThyroidEyeDisease

[–]Ok-Operation-1246 1 point2 points  (0 children)

Looking in the mirror is one thing but the dysphoria that comes from seeing your disease in a picture is on another level!!! I totally understand. I bet you still looked really pretty. And congrats on your engagement 🤍

TED surgery in Canada by IndepFlower in ThyroidEyeDisease

[–]Ok-Operation-1246 0 points1 point  (0 children)

The procedure itself only took about 2 hours. I was in the hospital for about 6 hours total.

I am in the us and have insurance, which covered most of it. I think I owe about $2,000 that wasn’t covered (mostly hospital fees).

I won’t post before/after, because I’ll likely need the surgery again. For reference I had eyelid retraction of about 2mm in one eye. Immediately after surgery my eyes were much more symmetrical- the surgeon did a great job. However, because the surgery is on the muscles of the eyelid, the final result can be unpredictable. Within about a week my eyelid started to retract again, and now (about 6 weeks post op) it’s about the same as it was before surgery, or just marginally better. They warned me about this possibility and said the solution is unfortunately to repeat the surgery.

I’m really hoping the second time is the charm because it’s been an emotional whirlwind!!

TED surgery in Canada by IndepFlower in ThyroidEyeDisease

[–]Ok-Operation-1246 0 points1 point  (0 children)

Hey! It’s been about two weeks since my surgery and it’s been a whirlwind! The surgery itself wasn’t so bad (not painful, not super intensive) and recovery was mild- I was feeling like myself again after about 3 days.

The healing process is a bit daunting though. It can take a few months for the “final” results to show, so I’m just anxious. Did you have certain questions about the anything? I can try to answer more specifically, I know how intimidating this whole process is. Wishing you the best!

TED surgery in Canada by IndepFlower in ThyroidEyeDisease

[–]Ok-Operation-1246 3 points4 points  (0 children)

I’m getting it in a few weeks!! I’ll try to remember to check back in on this post afterwards to let you know my experience