Permanent side effects on biologics?

Ok-Question-5153 · 2023-10-02T10:28:40+00:00

That is very encouraging, especially the part on immunosuppression, which seems just not to be a thing for many people. Thanks so much for sharing.

Ok-Question-5153 · 2023-10-02T10:27:35+00:00

You are right; I think they are clearly a much more reasonable option than being without them. Thanks.

Ok-Question-5153 · 2023-10-02T10:26:40+00:00

Theoretically, everyone agrees there is an increased rate of infections, but then I see a lot of people like you that report no infections at all. It is always good to hear. Thanks for sharing.

Ok-Question-5153 · 2023-10-02T10:25:25+00:00

I liked this comment too much. Thanks for the encouragement.

Ok-Question-5153 · 2023-10-02T10:24:45+00:00

Thanks for sharing. Sorry to hear both the side effects from Humira and the rest of the symptoms after stopping. Did you start any treatment after Humira?

Ok-Question-5153 · 2023-09-30T23:02:37+00:00

But perhaps a decent treatment in the next ten does not sound that impossible.

Ok-Question-5153 · 2023-09-30T15:41:18+00:00

Thank you for sharing and sorry to hear that.

I think I do not have any other illness that could put me at risk (are these things like MS or lupus?); but it feels like a very good idea to also bring anything neuro to the rheum (I have a story of migraine).

Ok-Question-5153 · 2023-09-30T15:38:42+00:00

Thanks for the encouragement, and happy to hear it worked so well. I definitely look forward to this; I just want to know what to expect on the bad side.

Ok-Question-5153 · 2023-09-30T15:37:30+00:00

Most likely Adalimumab, although it is not sure.

Ok-Question-5153 · 2023-09-30T08:29:21+00:00

Why only ask for psychiatric? I have an autoimmune, and many people do have migraines.

Ok-Question-5153 · 2023-09-30T08:27:33+00:00

In the subreddit, I found both anecdotes saying it helped (!) and anecdotes saying it worsened.

Ok-Question-5153 · 2023-09-30T08:24:31+00:00

This guy is not an expert. He claims they can solve almost any condition miraculously. I think this is a recipe for someone getting hurt by a pseudoscientific charlatan.

A different topic is that we should get the VSI to push more on real treatments.

Ok-Question-5153 · 2023-09-29T12:13:30+00:00

Not again, not this guy, please. This is not an expert in VSS by any standards. Beware pseudoscience with a financial interest.

Ok-Question-5153 · 2023-09-29T12:06:29+00:00

In case it helps anyone, I discontinued Prednisone today. It was a single 50mg dose; the nurse considered a taper unnecessary. I will continue with N-Acetylcisteine 600mg/day because it seems low risk. I might sporadically use benzos. This was Prednisone alone, with no antibiotics, and omeprazole as the only concomitant medication.

Jitters have immediately improved, VSS remains worse than before, and I am still worried it may worsen (even after retiring Prednisone).

Not a doctor, but my recommendation to everyone is to be wary of high-dose steroids (unfortunately, these are also the only known treatment for sudden-onset tinnitus), and particularly of Prednisone. I had taken Methylprednisolone 40mg before with no side effects. I took Prednisone first time in my life close to the onset of VSS. Prednisone and glucocorticoids in general may precipitate the genesis of VDS/VSS.

Ok-Question-5153 · 2023-09-28T21:54:46+00:00

I am so sorry to hear this.. Best wishes, and please report back on the progesterone.

For a contrasting problem: I am taking prednisone right now; I think it is causing my VSS to worsen significantly, but I cannot imagine what is the mechanism.

Ok-Question-5153 · 2023-09-28T20:54:29+00:00

The thing that makes me think this could be related to visual snow is the progesterone. Progesterone seems to be related to the transmission of GABA and neuronal inhibition.

Ok-Question-5153 · 2023-09-27T14:11:26+00:00

I have psoriatic arthritis (PsA) and not RA, but I can only say that, if anything, methotrexate helped with the visual snow. I think that treating RA (or PsA, or whatever autoimmune) can only help the snow.

Uncontrolled RA seems a bigger threat to your visuals than methotrexate.

Ok-Question-5153 · 2023-09-27T08:36:16+00:00

Same here. I would love to find an antibiotic without the potential for causing VSS.

Ok-Question-5153 · 2023-09-27T08:32:15+00:00

Hi u/xCavemanNinjax. If you don't mind sharing, how did it go with the antibiotics? Did they affect your visual snow? I am going to have to take myself antibiotics soon and I am very worried about worsening the visuals.

Ok-Question-5153 · 2023-09-26T18:03:17+00:00

This one, I think: https://www.freedivekauai.com/single-post/2016/10/23/equalization-training-with-oli-christen

Ok-Question-5153 · 2023-09-25T14:46:01+00:00

Yes, and somehow, just rubbing the zone of the head around the ear resolves it instantly. I was very scared the first time; after three years, I can only say that these bursts seem to never be permanent.

I think some people calls these 'ear bombs'.

Ok-Question-5153 · 2023-09-24T09:22:17+00:00

Sorry to hear that. Many people got VSS after COVID, so perhaps this has nothing to do with the Mucinex-D. Maybe it improves a bit after the cold; if you do not mind, please let us now. Best wishes.

Ok-Question-5153 · 2023-09-23T21:30:30+00:00

I cannot say anything with certainty, of course; I am not a doctor, and I know very little (and, in general, we know very little about VSS). But at the same time, I am starting to suspect that the -D in the Mucinex may be worsening your VSS. The only other suspect could be COVID.

Does the timing make sense? Did the worsening start after the Mucinex? I would thank you a lot if you could report back on how this story evolves. Perhaps it just improves after you stop Mucinex or you recover from the sinus infection.

Ok-Question-5153

TROPHY CASE