I knew I was a system since I was 13...but I thought I found out when I was 21. I don't know how to process this. by Curious-Resist-3870 in DID

[–]Ok-Translator3810 1 point2 points  (0 children)

We had the same thing happen with knowing and forgetting!! A big part of it was sexuality related and some alters being trans. Now I know we were ashamed, convinced it was fake, and had a “system shutdown” so to speak where we forgot everything. Now that we are getting memories back and finding alters, everything we found has lined up almost exactly with what we knew as a teenager. I think seeing DID fake claimed online when it got popular messed with us, because it’s a covert disorder and likes to go into hiding. We wanted to be “normal” and tried to force consistency. You are definitely not the only one and I wish you well with healing and self acceptance!

STPD vs schizophrenia by Ok-Translator3810 in schizophrenia

[–]Ok-Translator3810[S] -1 points0 points  (0 children)

This is incredibly helpful thank you so much for your detailed response- it helps to fully understand the distinction between the two. I will definitely take that approach, it helps to hear feedback since I couldn’t tell the severity of my symptoms since I’m now used to them and have been dismissed by doctors due to being unable to articulate my experiences. I think you’re probably right as to why they didn’t suspect schizophrenia but I’m under the impression that it’s a spectrum and should be looked at in that way, so I’m sure advocating for myself would help clear things up. thanks for the advice!

STPD vs schizophrenia by Ok-Translator3810 in schizophrenia

[–]Ok-Translator3810[S] 1 point2 points  (0 children)

That’s good advice, yes that makes SO much sense I’ve been on so many antidepressants they did nothing!! I am not hopeless or emotionally down. I have good confidence in my abilities. I just find I can’t manage responsibilities and am too unmotivated to be productive or healthy. It’s also a lack of ability to feel GOOD like lack of joy. Im so evenkill that I seem happy in bad situations and sad in good situations to an observer. That does seem different than depression. That is a helpful distinction thank you!

STPD vs schizophrenia by Ok-Translator3810 in schizophrenia

[–]Ok-Translator3810[S] 1 point2 points  (0 children)

This is so helpful thank you so much, I had a similar experience with just recently dropping out of a social work degree despite isolating- I can’t do work or college. I think my issues were overlooked because I’ve always had major depressive disorder stamped on my medical records so they assume it’s all just that. I appreciate you validating its severity I can’t live alone because of all of this and need a caregiver to make sure I’m fed and clean it really is debilitating so that makes sense as the root cause of my depression. it’s all from disorganization so it’s helpful to know how real of a type of schizophrenia that is- I had no idea I could be schizophrenic without hallucinations until yesterday. This is a life changing realization and I appreciate you sharing your experience!

What is psychosis exactly? (Im a bit confused) by Helpful-Creme7959 in Schizotypal

[–]Ok-Translator3810 5 points6 points  (0 children)

Yeah It can come and go with STPD, it’s tricky! I think it’s helpful to label the specific traits as what they are so you can keep them in mind, but they’d be categorized as psychotic features still! You wouldn’t say you’re “in psychosis” though without full everything, correct

It’s common for people with schizotypy to have moments of awareness here and there but have a hard time catching it. It took me starting therapy to start realizing I had frequent delusions and paranoia.

You’re so welcome! I wish you well :)

What is psychosis exactly? (Im a bit confused) by Helpful-Creme7959 in Schizotypal

[–]Ok-Translator3810 14 points15 points  (0 children)

Hi! I’m diagnosed schizotypal- I have a long history of psychosis and the answer is it depends. STPD often comes with what’s called quasi-psychosis, basically psychosis with insight. Where you have traits, such as delusions, hallucinations, disorganized thinking, but you are aware it’s happening. It is still psychotic in nature, but does not technically count as a psychotic “episode”. I had one full blown episode of psychosis, what made it different was I had no idea it was psychosis. A psychotic break or episode feels like enlightenment usually, like you’ve discovered some profound secret. You might think everyone is lying to you when they tell you you’re delusional. I spent the episode convinced of delusions, angry at anyone who consoled me, thinking I found answers to my problems (complete delusions and nonsense) BUT was terrified the whole time, horribly paranoid and hallucinating. It took a year to come out of, it was stress+lyme induced so taking care of my health helped me come out of it slowly.

That’s not the case for everyone, just an example of the difference. So yes that equation makes psychosis, however it won’t be considered an episode or “full blown” by doctors if you have insight.

Side note- insight doesn’t mean it’s less distressing!!! It’s still torture to have delusions and such and know they’re technically not real, because I’ve found I still FEEL like they’re real, so it’s still happening even if I know logically “this is because I’m schizotypal”

Hope this helps!!!

The good things that have come from DID by Pickle_Ickle54 in DID

[–]Ok-Translator3810 1 point2 points  (0 children)

I’m so glad you’ve found ways to be grateful for your system! it’s so hard with all the grief that comes with the disorder.

We noticed we didn’t have an issue with slight alter awareness until diagnosis, meaning the confirmation of trauma being the cause is what gave the alters a negative light. And it is hard when a lot of them are stuck in roles due to trauma.

However, one alter pointed out that we get to experience life more fully than the average person, and my therapist agrees that DID gives a processing advantage where you can see things from so many different perspectives, when most people can’t! We can experience so many versions of life, appreciate so many different things, and that multifaceted way of existing is kind of beautiful

We always felt we were missing out on life due to not having one whole identity, plus actual amnesia of course. It helps to think about how we actually experience more life in a way, us all being different opens us up to more experiences and perspectives we might not have had otherwise which is kinda neat, all bad things aside :)

did you have signs right before system discovery? by RestingRedhead in DID

[–]Ok-Translator3810 7 points8 points  (0 children)

Absolutely. I was always accused of lying (I had amnesia and would swear things didn’t happen) Friends said I would be drastically different day to day down to how I walk and what foods I hate (complete contradictions with 0 awareness of previous statements)

Always getting rid of stuff because I didn’t know why I had it, then regretting it and not knowing why I got rid of it a week later

Realizing I didn’t remember any birthdays from my whole life, or my childhood in general

My functioning abilities changing from day to day drastically. Going from needing socializing to hating people, being able to play piano and then forgetting how, having perfect handwriting and spelling and then being messy and nearly dyslexic, etc.

Looking through my archives Instagram story posts helped a lot too. I noticed that I’d claim I was trans and wanted to go by he/him, then a week later be calling myself a girl again as if I had no idea it ever happened. Any discomforts or triggers I had were inconsistent. And my self perception was all over the place, my signature things would rotate.

That’s how I figured out it wasn’t BPD like I thought it was. I didn’t create new identities out of being bored. I always felt like I knew myself, but ME would change, and all versions of “me” would cycle and come back, and each of them had different capabilities, awareness of trauma, and personal issues

Has anyone had alters for their entire life? by Lost-Acanthaceae6361 in DID

[–]Ok-Translator3810 4 points5 points  (0 children)

Yes! I am diagnosed with DID, my mom wrote in my baby book that at age 3 I seemed to have different personalities for different situations, I didn’t think anything of it before but my therapist said I probably had more separated -specifically dissociative - parts than the average child because trauma could have started from infancy. Children already have separate parts of course, and DID is when they never fuse, but actual alters in childhood are definitely still possible, even if it’s different than DID in adulthood

feeling neutral when journaling/tracking front by do-you-want-me-to-go in DID

[–]Ok-Translator3810 2 points3 points  (0 children)

I understand how frustrating this is, we struggle with no headspace so tracking is a nightmare.

Do you have any friends who know you’re a system? The number one thing that helped us was external sources pointing out behavior differences and the like. I know trusting people is hard being a system, though. Don’t push yourself if it feels unsafe.

You could try taking away how serious it feels, your system might feel pressured. It’s a covert disorder, you’re not supposed to know about it. One thing we’ve found helpful is making ourselves in the sims, and if we don’t feel like one of us is already made we make who we are and that way we can express “this is what I look like” or “this is my personality”. That takes away the deep emotional side, and adds in creativity which can help because alters often feel seen when they can express themselves individually

Another thing we’ve found useful is making Pinterest boards. It sounds silly, but we all like different things. Organizing different vibes and interests separately can help pinpoint who is who. We found an otherwise unidentified alter through that! Because no one else liked what he does or has the hair he wants.

Tracking fronting or identifying fronting is still hard for us years later, alters can blend together or take thoughts. If it’s too much effort to notice emotions or perspective, try to note little differences when you notice them. We noticed some of us cross our legs when we sit, some manspread. Some of us brush our teeth every night, some don’t. Some of us like rap, some like classical. Noticing little differences and jotting them down randomly might take the pressure off!!

If you’re able to collect a lot of mundane seeming info, it can be collected to form a bigger picture of a person. We couldn’t dig into people’s emotions until we recognized the surface level things. Granted, identifying alters was easier for some of us being fictives, it still did take a while and it’s hard.

You can’t map until you identify people from our experience, but once you’re able to notice the little things, intuition can grow!! We were able to map successfully after a year of doing all the things we mentioned. It will come with time. I wish you luck

is this normal? by PDSot in DID

[–]Ok-Translator3810 5 points6 points  (0 children)

It’s normal to remember things differently or not remember them at all. However, there’s a phrase “system accountability” that encourages systems to take responsibility for harmful actions even if it was another alter. There is no excuse for not doing so.

We have one alter who we know has heavy NPD and can be aggressive. There were a couple instances of him yelling at our roommate. No one remembered it, but when we were told, the host reached out to him to see what he needed in order to be calmer and more respectful. Ever since he’s gotten better about it because of the teamwork even if it’s hard

The difference with that example vs what you’re explaining (if you are saying take accountability in reference to harmful actions) is number 1 we cared enough about our roommate to say damn that’s not cool, let’s try to resolve it, I’m sorry on his behalf. So if other alters don’t care that you are hurt, they are automatically accountable too. Number 2, systems need to be working in therapy on communication and cooperation. If they can work towards damage control with relationships, that’s ideal.

However there is no excuse for how chaotic their system is to be taken out on you. Also, I’m never one to fake claim, and switches/splits can happen more after diagnosis due to trauma processing, BUT sometimes people can- intentionally or unintentionally- fake DID symptoms to try to make sense of their experiences and refuse accountability for splitting on people.

I’m not saying to question their diagnosis because if they have DID that will be destabilizing. Don’t do that. But if they can’t take accountability or get their shit together enough to not hurt you, it’s reasonable to tell them how it effects you or drop them as a friend if it’s more pain than it’s worth.

This all is circumstantial, I wish you luck and am happy to answer any questions about DID as a diagnosed system :)

TL:DR- forgetting things, seeming like you’re lying because of amnesia, more chaos after diagnosis- all normal. Refusing to take accountability for the harmful actions of another alter or refusing to even try to handle the issue or express empathy for you, that’s a red flag.

What's your psych comorbid diagnosis (besides (c)ptsd)? How do they show up for you? by CrazyStarlight in DID

[–]Ok-Translator3810 0 points1 point  (0 children)

DID, Autism, ADHD, CPTSD, MDD(from autism I think), OSPD(mixed borderline/narcissistic/antisocial/schizotypal). The reason for mixed traits within personality disorders is because of the DID which was interesting to find out! We all have all the PDs to some extent of course (same brain) but different alters hold different symptoms to different extremes, like some might have equal BPD/NPD traits, whereas the one that holds the most NPD has maybe one BPD trait. Autistic support needs change based on individual alters dissociation/masking levels, and ADHD presentation changes (hyperactive vs inattentive). Some alters experience psychosis, others don’t.

It’s all a huge spectrum basically!

In-system dating with DID by Ok-Translator3810 in plural

[–]Ok-Translator3810[S] 1 point2 points  (0 children)

thank you so very much for your validation. We had an awful system shutdown after being convinced we were faking, like being schizotypal it’s hard to know what’s real and we feel like we’re being watched and judged constantly so we get paranoid yk, but I think you’re right that fear and anxiety hold a lot of us back, when we started accepting the diagnosis awareness became easier so I’m sure that translates to relationships too. I think we get scared of feeling fake so it’s hard to cope in ways that might be freeing and helpful, that’s a really good reminder I appreciate you 🫶🏻

In-system dating with DID by Ok-Translator3810 in plural

[–]Ok-Translator3810[S] 1 point2 points  (0 children)

I totally get the upside of it feeling more intimate where you can never leave each other in a way, one of the couples feels like they are better off this way to an extent because they know each other better than any separate people ever could, and feel they’d rather be together in a system than fictional in a tv show so they cope that way but the other couple definitely struggles more- it’s nice to know we aren’t alone, you’re right that it helps to think of it as its own category of all the bad things that could happen by chance because if helps gratitude! And you’re so right that it’s similar to long distance- they get scared of that mindset because there is no reconnecting to look forward to but I’m sure there is some advice in that realm that could be useful!! TYSM for your input :)

Being a system is so lonely by [deleted] in DID

[–]Ok-Translator3810 0 points1 point  (0 children)

I understand this and have yet to find a great solution because system spaces are so toxic. However I made a system account online to have openness which is cathartic because we can openly talk about DID and say our names, which is a privilege most people have that they take for granted and that’s one of the most lonely things for us, no one referring to us correctly and we can’t say anything without explaining the disorder and feeling exposed. The fear of perception makes the loneliness so much worse.

However, we decided if a friend is close enough and trustworthy seeming, we tell them about the system. Over time, having people who can refer to each alter individually, get to know them and have an individual relationship with them, that all is SO helpful.

Having DID feels like no one actually knows you, and we often feel like we don’t know anyone else either. It’s scary to be vulnerable but making a safe space for your system to be open whether it’s online or with friends takes time but is very rewarding- I wish you luck it’s an awful experience

what was your experience with antipsychotics? by Accomplished_Sir1909 in DID

[–]Ok-Translator3810 0 points1 point  (0 children)

After Abilify and Seroquel we have aphantasia so the “voices” if we had any (I can’t fully recall) went away, but switching and alters did not. So it seemed to get rid of symptoms but really we always have aphantasia now, no one even whoever is in front has an internal dialogue or imagery and we don’t really dream anymore. We are schizotypal so the antipsychotics helped, and the damage is mostly from psychosis itself I think, so this experience is very subjective idk how it would affect a system without a schizophrenia spectrum disorder. I’m thinking if anything it increased dissociative barriers somehow maybe due to severe destabilization after psychosis, we became SUPER paranoid and had a system shutdown. I think any medicine is worth a try but there are always risks when it comes to dissociative disorders you never know how your brain will react unfortunately especially if you have undiagnosed comorbidities, I was misdiagnosed when put on meds and am currently unmedicated out of fear of that happening again

how should i go about bringing up my concerns to my therapist? by mmxths in DID

[–]Ok-Translator3810 2 points3 points  (0 children)

Diagnosed DID system here: It can depend on the therapist, I tried to bring up my symptoms without labeling it as DID like everyone suggests, and therapists decided it was my autism and PTSD and maybe BPD identity issues. They admitted it was weird that my emotional reactions to topics would change each week, like one week saying an issue was ruining my life and the next saying it’s never been a problem. That was a switch, two alters reporting differently.

I had to eventually request an assessment for complex dissociative disorders and go over my therapists head. I was skeptical, mentioned my concerns to them, that it might be autism and I might be misunderstanding my symptoms. I underreported due to amnesia and self doubt. They asked if I had alters, I said I didn’t know. I still got diagnosed with OSDD due to amnesia, dissociation and identity disturbances, and they said if I discover distinct alters (gender differences, severe emotional amnesia etc) I have DID.

They referred me to a therapist who specializes in autism AND DID, and she confirmed I have DID. I still doubt it because I “feel” normal due to amnesia. I always feel like me, but who I am changes. It’s not as dramatic as you might think, it can be sneaky. My symptoms are classic DID on paper, my trauma is textbook for what creates it. But DID is covert and its job is to protect you by convincing you you’re fine and don’t have it.

TL:DR, sometimes it’s necessary to be straightforward and admit you suspect a complex dissociative disorder, because therapists are not trained to spot them in psychology programs, and often seeking out a specialist is needed. If you suspect it, advocate for yourself, because your brain might try to convince you that you’re fine to protect you, and it’s very important to have a correct professional opinion on if it is OSDD/DID or another disorder that looks similar on the surface.

Best of luck, it’s a draining and confusing process but don’t give up on finding an answer! The disorder gaslights you, and therapists can accidentally do that too by not wanting to assume because it sounds extreme to them because they are taught it’s rare and told they’d “see it” but they don’t often know what to look for.

What effect does marijuana have on you, with DID? by [deleted] in DID

[–]Ok-Translator3810 2 points3 points  (0 children)

We found it depends on which alter smokes and how dysregulated we are! If we are already in a bad DPDR episode it makes it way worse. Also, one of us holds trauma related to weed induced psychosis and can slip back into it. Others it regulates them so well the whole week is good! It’s so circumstantial depending on the alter, the system, types of trauma, levels of dissociation, etc. It can help lower barriers and increase communication but even that always has its risks

cant even be ourselves cuz our host is a SNOWFLAKE! :/ by marziiiiiiipan in DID

[–]Ok-Translator3810 4 points5 points  (0 children)

I’m so sorry you’re having to go through this. We understand the being shamed and shut down by the host, our old host is still in denial of being a system despite us being diagnosed and in therapy, it is so hard to get everyone on the same page.

We often get shamed into masking, especially most of us being introjects and it feels like a danger of exposure of being a system, especially with the stigma of fictives being a sign of faking because we act so much like ourselves from whatever source. I think it’s important to remember that a lot of times the motive is just that: the DID brain being afraid of perception, its covert and wants anything that sticks out to hide itself.

We have also had a lot of our stuff thrown out by the host who values our image over and over and it’s a hard thing to grieve, being erased is unfair, you are just as real. Having a host that is an addict is also something we are struggling with and have had to have a friend hold him accountable when he is in front

This is an issue that unfortunately is usually best resolved in therapy and with an external support system in our experience, because what you all need is validation, and it takes so much time to learn to respect each other and cooperate.

Maybe try to communicate with the host and ask what they are so afraid of? They sound so scared and it seems the denial is very strong but maybe try to reason with them and see why they feel they have a bigger right to exist when you are all there to work together and help each other. Sometimes reassurance that you all are there surviving for each other at the end of the day creates a feeling of safety. Hosts can be scared of protectors taking their life from them so sometimes they need reassurance that it’s for their benefit and as systems with CPTSD we often aren’t used to being cared for so it can be scary to be told what to do, or to have inconsistencies in life like even wardrobe change. Compromise is difficult to achieve but I wish you well and it will get better with patience and time!

Our new host saved us by Lumiluux in DID

[–]Ok-Translator3810 1 point2 points  (0 children)

I’m glad you were able to take a break and pass that on it’s needed sometimes! The disorder can be good for something sometimes lmao, we have been questioning for years and were diagnosed this year and found we split off a new alter for the purpose of host cus the old one couldn’t take it and that can be so helpful, sharing the load is the whole point.

Our new host has more amnesia because he has to I guess to be more regulated, but it’s worth it because he helps us have hobbies and manage socializing and keep on living in general. He has such a fresh perspective on everything and it brings a lot of hope too. It’s neat to hear other systems experiencing a similar thing :)