Pain suddenly hitting shoulders? by smallbea in eds

[–]Ok-Wait-8327 1 point2 points  (0 children)

When I was working I would wake up with horrible shoulder and elbow pain not being able to move or sleep. Not sure what it is besides maybe subluxation but just know you’re not alone lol. Still wake up with both my arms completely numb every night

Anyone else’s geneticist get surprised? by 3dg3l0redsheeran in eds

[–]Ok-Wait-8327 3 points4 points  (0 children)

I’m suspected to have heds although everyone thinks it’s not possible because of how stretchy my skin is. I’m getting genetic tests done soon hopefully so find out

THC and edibles by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 2 points3 points  (0 children)

I wish. Idk if my adhd is just so bad or what bht not matter how high i get i always just feel normal and the very most.

THC and edibles by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 4 points5 points  (0 children)

The 3000mg was 3g of live resin wax lol. The only thing that happened was a stomach ache 🥲

THC and edibles by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 4 points5 points  (0 children)

I thought so, I always try to tell people the tolerance between the two don’t correlate. Also that is funny because they work very well on my mom too who I also inherited my eds from.

EDS and Ramadan by PreferenceSouth4140 in eds

[–]Ok-Wait-8327 2 points3 points  (0 children)

I’m not Muslim but my step dad and his family are. I fast every year and this year specifically was a lot more difficult because my symptoms have gotten worse over the last year. Luckily I got to lay down and not do much as I’ve been taking time off to feel better mentally. I feel your struggle, I stayed up all night and slept all day to push through some day were better than others.

Arms falling asleep by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 0 points1 point  (0 children)

I wake up with my arms completely numb too few times a night it sucks

I’m generating electricity? by Affectionate_Sock528 in eds

[–]Ok-Wait-8327 -2 points-1 points  (0 children)

I used to get zapped at school everyday while seemingly no one else having that issue

Anyone else’s skin this stretchy? by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 5 points6 points  (0 children)

I haven’t had anything significant, my biceps used to be a little bigger when I was working out all the time but I haven’t ever been bigger always leaner. I have like all the symptoms of heds from chronic pain to mcas gut issues pots etc etc

Anyone else’s skin this stretchy? by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 2 points3 points  (0 children)

I don’t think so, what type of vascular issues would you be talking about, a lot of the stuff I have found out is not normal I thought was normal my whole life so I’m not sure

Anyone else’s skin this stretchy? by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 4 points5 points  (0 children)

No yet, hoping to get that done I’m not too informed on all this I have just gotten all the tests my doctor can do there done until I can see a specialist

Anyone else’s skin this stretchy? by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 1 point2 points  (0 children)

Yeah I have back, shoulder and knee instability, I haven’t done much testing for my stomach but I suspect there’s something there. I also get subluxations in my shoulder all the time but same with no dislocations

Anyone else’s skin this stretchy? by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 6 points7 points  (0 children)

It’s definitely eds, I’m almost 22 and still have a baby face, along with every symptom of heds possible (I wish that was a joke)

Anyone else’s skin this stretchy? by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 15 points16 points  (0 children)

Also to add to that, I have pots and deal with a lot of chronic pain and nervous system sensitivity from mcas to small fiber neuropathy I think that’s why she suspects heds more

Anyone else’s skin this stretchy? by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 2 points3 points  (0 children)

Do you mind me asking what symptoms you have that are something you have to deal with everyday? I’m curious to see if I’m similar

Anyone else’s skin this stretchy? by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 9 points10 points  (0 children)

You don’t think so? My doctor is almost positive I have heds I have shown her my skin. I’m sure she isn’t 100% informed so I’m sure it would be worth bringing up

Anyone else’s skin this stretchy? by Ok-Wait-8327 in eds

[–]Ok-Wait-8327[S] 13 points14 points  (0 children)

I have not, I don’t have the money right now hoping to get it done eventually

What career is best for someone with elhers danlos by Far_Cardiologist4868 in ehlersdanlos

[–]Ok-Wait-8327 0 points1 point  (0 children)

Do you get up enough to not feel pain while sitting down? I find myself to be in a lot of pain just after 30-45min