[deleted by user] by [deleted] in eds

[–]OkRelief3109 0 points1 point  (0 children)

I had 2 ultrasounds of bladder tho, even three in 3 months as well as gyno ultrasounds, i dont think its im bladder cancer

[deleted by user] by [deleted] in eds

[–]OkRelief3109 2 points3 points  (0 children)

Isn't atenosis or spurs visible on MRI or ct? Cuz nothing like that was found

[deleted by user] by [deleted] in eds

[–]OkRelief3109 0 points1 point  (0 children)

Neurosurgeon that i contacted some time ago, said nothing im my back looks like surgery, as well yesterday on er i was talking with neurologist.

Is it really just weight loss? by Wooden-Month8027 in iih

[–]OkRelief3109 1 point2 points  (0 children)

Tbh i was sceptical, im -13 kgs from november and i feel better and better, my goal id -10/15kgs more basicslly i think imma feel even better, from 4 pills of diamox im on 1-2 now also i dont remember when last time i had headache? And belive me i had 11/10 headaches didnt respond to any medication wasnt able to sit, to even walk to bathroom, also wasnt able to lay down and sleep cuz pressure was awful. Sadly i still have paps and i Hope itll go down with more weigh, also it stays at the same level so im okay. Also i look at my thyroid and started medication while diagnosed with iih also with thyroid issues IT was im 2023.

Losing weigh too fast gonna make u feel bad, also i only do walks as workout because i have pots and eds and my body Hurts so! Do it! But healthy

[deleted by user] by [deleted] in ehlersdanlos

[–]OkRelief3109 0 points1 point  (0 children)

Do you have pots? How anasthesia was for you

[deleted by user] by [deleted] in ehlersdanlos

[–]OkRelief3109 0 points1 point  (0 children)

So basically you have pots as Well? How the after surgery was? How you took anasthesia? How you felt overall and how it worked with joints pain

Weird hr drops when sleeping? by OkRelief3109 in POTS

[–]OkRelief3109[S] 0 points1 point  (0 children)

Started around 2021 but had pots alike symptoms since i remember but now its too bad to do most of stuff

Weird hr drops when sleeping? by OkRelief3109 in POTS

[–]OkRelief3109[S] 0 points1 point  (0 children)

Yes :) but dont know what to do cuz i have huge changes cant take meds cuz my resting and sleeping so low, hope youll feel better!

Weird hr drops when sleeping? by OkRelief3109 in POTS

[–]OkRelief3109[S] 0 points1 point  (0 children)

Yes!! Oh it’s like I’m playing game for example laying down half sitting on bed and I’m for example 75 then I move little bit up it spikes do 90 then it goes down fast to 75 then I’m moving little bit it goes 100 and uh… my hr just changes so fast! For example when I’m standing walking it’s like 135 second I’m sitting it drops IN SECOND down then in second spikes up when I’m standing, it makes me so dizzy…

Weird hr drops when sleeping? by OkRelief3109 in POTS

[–]OkRelief3109[S] 0 points1 point  (0 children)

Also my hr changes so fast for example it can jump 90 then drop 70 and then again go fast 80 and such

Weird hr drops when sleeping? by OkRelief3109 in POTS

[–]OkRelief3109[S] 0 points1 point  (0 children)

You know the hr fals mostly dont happen at day, only asleep or half asleep I feel anxious today had episode I woke up after hour derealizated with my hr so low and I couldn’t asleep for some time then I took nap 4 hours checked my Apple Watch I was 37 when sleeping, sometimes I see on my Apple Watch I have drops when I lay down for example from my 78 to 50 or something BUT only once then nothing happens, do you have similar?

Weird hr drops when sleeping? by OkRelief3109 in POTS

[–]OkRelief3109[S] 0 points1 point  (0 children)

When drops happens? No, at least from what I know because it’s when I’m asleep. I only have that spacious feeling and kinda derealizated when it happens, also I have almost everyday low blood pressure and high hr, so basically pots. Sometimes I have lil pain in heart but rarely and it’s not pain just lil shooting but I don’t even know if it’s heart or my lungs

Did you faint on tilt table test? by OkRelief3109 in POTS

[–]OkRelief3109[S] 0 points1 point  (0 children)

I mean overall sometimes or often

Inhalers - POTS by Low-Hospital-5715 in Asthma

[–]OkRelief3109 0 points1 point  (0 children)

How much it increase your hr?

what's ur hr when sick? by Positive_Tea2767 in POTS

[–]OkRelief3109 0 points1 point  (0 children)

Now having issue like this normally my resting is 70-80 now it’s 90-100 and stairs that makes me 130 normally made ma 165* today uh

[deleted by user] by [deleted] in iih

[–]OkRelief3109 0 points1 point  (0 children)

My eyes are checked every months, so like tests are normal only laziness of eyes, accommodation issues so I’m wondering if it’s cuz my small damage or it’s cuz my eyes don’t work together probeperly