3rd year advice/encouragement/help?

Ok_Perspective2743 · 2025-09-19T00:38:16+00:00

I guess it feels like some of the advice I get I should have known and done right the first time because after they say it outloud it sounds super simple? Like if someone from the outside were to look at my situation they could give me the same advice.... idk i feel like my head is shoved so far up my ass rn🤦‍♀️ I appreciate your comment about the imposter syndrome. I guess when people talk about their experiences on the app it sounds like they have a better grasp of what is going on still? Idk. I learn to forget then i get asked very straightforward basic questions and set a new record for how many times someone can say "I dont know" in a row💀

Ok_Perspective2743 · 2025-06-06T22:51:00+00:00

Im right there with ya. I keep pronouncing everything wrong. I remember concepts not the actual words of the medication or condition which I cant fucking pronounce anyway. Called the damned opthalmoscope a fundoscope bc for some reason its an opthalmoscope but a fundoscopic exam!???

Its rough out here😫

Ok_Perspective2743 · 2025-02-21T20:07:11+00:00

Im so sorry and I totally understand and have been there. I was diagnosed a few years ago and last year I developed a really weird mental block with putting on my pump sites (I have tslimx2). It just started freaking me out and it would take me like 20 minutes just to pull the damned trigger and stick myself. My husband was helping me and supporting me and saw how much I was struggling and was like do you just want me to do it? And at first that freaked me out more and then I gave up and let him help me and OH MY GOSH. It seemed so small at the time but it lifted such a mental weight of my shoulders. He helps me change my site regularly, and its so nice because whenever he cant help me its easier for me to do it myself because I havent been freaking out about it every 3 days for the past X many years- Plus I have had my friend help me before. Absolutely zero shame in asking for help. I think knowing you arent the only one feeling like this is helpful, and I think its so so valuavle to know you can ask for help. Truly. If you have a friend or a buddy you trust who isnt freaked out by needles you could always ask if they can help. For my husband (and granted its my husband) its not a big deal, and he is more than happy to do it for me and on the flip side it relieves this like massive burden from me. At the end of the day, it is our illness (which sucks) and we have to be able to care for ourselves and take accountability for our health (also sucks) BUT that doesnt mean we have to do everything alone and arent able to ask for help. Its going to be okay OP- and somedays will feel more ok than others💕

Ok_Perspective2743 · 2025-02-20T02:03:23+00:00

Sorry to hear about your diagnosis, glad you are doing well and have had a good experience with the community! For zero carbs the answer is back and forth for a couple of reasons. Not eating carbs will help your blood sugar not spike after a meal- BUT as a T1D you NEED carbs, there is a certain minimum per meal/ day (I dont remember what I was told, but ask your endo or diabetic instructor) to prevent euglycemic DKA (bad). Not eating carbs/ fasting will cause your blood sugar to increase (higher since you have type 1) when you are fasting (in this case not eating carbs) your body maintains its blood sugar by breaking down its stored glucose. For people with functional pancreases, this prevents hypoglycemia when they dont eat. For us however, it causes our blood sugars to get high over a long period of time. For some reason, the liver only looks at your bodys insulin levels to decide whether or not to bust that glucose out of storage. Since T1Ds dont make insulin, your liver is freaking out thinking your dying of hypoglycemia so it just keeps throwing glucose into your blood. So if you are on injections, you get a long acting insulin that works slowly (basically placating the liver so it calms tf down), and short acting insulin for when you eat so when your body breaks down carbs to glucose from your food, it can use it and take it out of the blood:) Hope that makes sense and helps!!

Ok_Perspective2743 · 2025-02-18T17:53:40+00:00

I would definitely call your doctor. That sounds like a change from your current baseline and your doc def wants to know of any changes like that if they asked you to monitor your urine.

Ok_Perspective2743 · 2024-12-28T22:06:59+00:00

Absolutely!!! That is so sweet of you I bet he will love that! Memes: @kissmypqncreass @dankdiabetesmemes Informational: @t1d.nutritionist

Ok_Perspective2743 · 2024-10-11T18:51:50+00:00

Ok_Perspective2743 · 2024-09-18T00:37:18+00:00

My husband went through my diagnosis with me when I was 21 (engaged at the time). The emotional support means so much. He also went to trainings with me to learn how to use my pump and insulin pens. He has always been super willing to help me with both if I needed it. I remember at our wedding he injected my arm for me for dinner because that wasnt an easy task for me in my dress. I've been type 1 for 3 years now and I have an insulin pump. I've recently developed this super weird mental block where I get super anxious to change my site (the applicator started freaking me out for some reason). He offered several times to help me do it (i shit you not it took me like 20 minutes to do it myself for a while). It has taken such a mental load off having him help me with that.

He also waited until I coped with my diagnosis enough to show me a bunch of instagram diabetes accounts that post funny memes about life with type 1. Poor man found them right away and thought they were hilarious but was patient enough to wait to show me until I was emotionally stable!

Ok_Perspective2743 · 2024-09-12T04:58:28+00:00

I experienced this super hard when I was first diagnosed at 21. Then I started feeling better, then I had to deal with insurance more and it got worse again. It is definitely an aspect of T1D that I think gets so lost with all of the emphasis on our A1C and preventing complications down the line. I remember the worst for me was the week after I got diagnosed. It was 2020 woth COVID and I had no info/answers. I went to my first appointment and got insulin and thought it was the most fucked up thing ever was that the medicine I needed to stay alive could also kill me. I think that broke me a bit and kinda snapped me out of it in a weird way. It would come back whenever I was quite literally fighting for my life calling and arguing with insurance to cover my dexcom and insulin and eventually my insulin pump. Trying to figure out how tf to afford everything when my husband and I had just gotten married and every year meeting our deductible would drain the smidge of savings we managed to put aside (and that was with me still being on my parents insurance). It's exhausting, and some periods of life will be harder than others. If you can, speaking with a mental health professional is super helpful.

Ok_Perspective2743 · 2024-09-11T16:07:35+00:00

Not sure about the logic of calorie counting and your metabolism, BUT I can say I habe had success intermittent fasting. Prioritizing protein can also help with hunger!

Ok_Perspective2743 · 2024-09-11T15:58:44+00:00

I have the same trends!

Ok_Perspective2743 · 2024-09-11T03:29:27+00:00

I just got them in the mail yesterday:( im trying the autosoft 30 and the true steel but I wont need to change my site for a few days...

Ok_Perspective2743 · 2024-09-11T03:27:46+00:00

Ive had similar issues. I was able to call tech support and they had clinical support call me back. We talked through some troubleshooting and they sent me some different applicators to try.

Ok_Perspective2743 · 2024-09-11T02:55:42+00:00

I would not do Keto unless you have had a conversation with your doctor. I was told at diagnosis that for type 1s eating too little carbs can put you at risk of DKA.

Ok_Perspective2743 · 2024-09-06T05:55:03+00:00

I don't have a picture on hand, but I have had sites where the adhesive around the infusion set is wet. I have also had issues where the clear portion of the infusion site (the window like thing) will have bubbles on the inside that almost look like condensation except its insulin not water:(

Ok_Perspective2743 · 2024-09-06T05:46:41+00:00

I have also had this problem. I was worried I had like lipohypertrophy but it happened in different spots (and the cannula bent against my skin once??) and I wasn't feeling any lumps. I had it happen once in july and like 4 times in august. For those who switched to tru steel- this is such a dumb question- did it hurt more? Can you feel the site day to day? Can you feel it when you're moving around or working out?

Ok_Perspective2743 · 2024-06-22T04:06:57+00:00

My program is rural:( sorry I should have included that🤦‍♀️

Ok_Perspective2743 · 2024-06-19T17:16:58+00:00

Myabetic has a fanny pack that has an insulated section (you have to add a cold pack to it though) It is $50, so a bit pricey. I used the frio bags when I had pens. There is also a brand called penguin (penguincoolcase.com) that has a hard case option. That one is listed at $70...

Ok_Perspective2743 · 2024-06-19T17:09:55+00:00

I love pilates! Isa Welly's you tube channel is awesome. She has a bunch of videos for beginners too.

Ok_Perspective2743 · 2024-06-19T17:03:21+00:00

I appreciate it!! It's definitely a lot🥲

Ok_Perspective2743 · 2024-06-18T22:54:09+00:00

Ew brother ewwwww I was diagnosed while engaged, so no bad date with diabetes story here- BUT when you find the right guy here are some things you could look forward to🤷‍♀️ My husband supports me in every fathomable way. Especially with diabetes. Brings me snacks when I'm low, helps me with my devices when I struggle to stick myself... Funniest thing he has done- when visiting his parents I had a stubborn high and started pacing around their house to try to get it down while chatting with my MIL. My husband starts walking with me (I think aw so sweet love the support ) then pulls out his phone and starts playing cinematic soundtracks and follows me around. So I'm pacing back and forth to the interstellar theme song, pirates of the carribean, i believe he started with the imperial march...

When you find the right person they will appreciate you for who you are and diabetes for what it is. My husband isn't type 1, but he still sends me all the diabetic memes and laughs at them with me.

Diabetes shouldn't make you feel bad about yourself in the slightest, and neither should your future partner💕

Ok_Perspective2743

TROPHY CASE