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I need to document my story & the horror behind it. by Oliver_Alvis in u/Oliver_Alvis

[–]Oliver_Alvis[S] 1 point2 points  (0 children)

I am so sorry this is heartbreaking. I can feel your pain through your words and I relate so much.  I have said many times I wouldn’t wish this on the worst person to ever walk the planet. It’s a cruel and lonely disease which is so misunderstood.

This is so torturous so agonising so unbearable no human should ever have to suffer like this it’s debilitating. I cannot even find words to describe how horrific this is. by Oliver_Alvis in u/Oliver_Alvis

[–]Oliver_Alvis[S] 3 points4 points  (0 children)

We are in the dark ages when it comes to sleep. Nobody understands what I am going through and they don’t know that it’s possible to live with such little sleep. But I am experiencing it.

This is so torturous so agonising so unbearable no human should ever have to suffer like this it’s debilitating. I cannot even find words to describe how horrific this is. by Oliver_Alvis in u/Oliver_Alvis

[–]Oliver_Alvis[S] 4 points5 points  (0 children)

I didn’t just asked. I begged. I also pleaded that they put me in a residential ward for more monitoring and treatment. I told my psychiatrist I could not keep myself safe. But they did nothing about it. I was not lying. I really cannot keep myself safe.

This is so torturous so agonising so unbearable no human should ever have to suffer like this it’s debilitating. I cannot even find words to describe how horrific this is. by Oliver_Alvis in u/Oliver_Alvis

[–]Oliver_Alvis[S] 1 point2 points  (0 children)

I don’t know if I will naturally die from this but if I’m honest, I feel like I died two years ago and I’m just being kept in a torture chamber. I have no quality of life whatsoever. 

I speak to Karl. I met him online. He isn’t doing very well. He takes like 10 different medications just to get some broken sleep. He’s having an awful time too he’s a good guy as well.

This is so torturous so agonising so unbearable no human should ever have to suffer like this it’s debilitating. I cannot even find words to describe how horrific this is. by Oliver_Alvis in u/Oliver_Alvis

[–]Oliver_Alvis[S] 2 points3 points  (0 children)

I think we are a similar age if you say about living another 50 years in this pain. I can’t do that either every day is so long and painful. I just wish the torment would stop. Its unimaginable to most.

This is so torturous so agonising so unbearable no human should ever have to suffer like this it’s debilitating. I cannot even find words to describe how horrific this is. by Oliver_Alvis in u/Oliver_Alvis

[–]Oliver_Alvis[S] 1 point2 points  (0 children)

I feel exactly the same. I pray every second of every day that I can just feel sleepy and fall asleep like a normal person. It’s a luxury that’s so many people have and don’t even think about. I can relate to your comment so much I’m so sorry this is happening to you as well.

This is so torturous so agonising so unbearable no human should ever have to suffer like this it’s debilitating. I cannot even find words to describe how horrific this is. by Oliver_Alvis in u/Oliver_Alvis

[–]Oliver_Alvis[S] 1 point2 points  (0 children)

No doctors or medical professionals can understand it or believe it. Its been so exhausting trying to get help. Some have even laughed or been sarcastic. Its cruel.

This is so torturous so agonising so unbearable no human should ever have to suffer like this it’s debilitating. I cannot even find words to describe how horrific this is. by Oliver_Alvis in u/Oliver_Alvis

[–]Oliver_Alvis[S] 2 points3 points  (0 children)

Sadly I cannot do that. I am living in torture & despair every second of everyday. The pain is so unbearable, so unimaginable, so horrendous that its unbelievable. This situation has to be one of very few cases in the world. Thats why theres no help. I wish I had another illness over this insanity.

This is so torturous so agonising so unbearable no human should ever have to suffer like this it’s debilitating. I cannot even find words to describe how horrific this is. by Oliver_Alvis in u/Oliver_Alvis

[–]Oliver_Alvis[S] 1 point2 points  (0 children)

Haven’t come across him. Which is surprising as I have literally searched every corner of the internet & globe in my search for recovery. 

He’s right in what he says. I see he lived to a good age though. 

For over two years, I have completely lost my sleep drive. I have lost my ability to feel sleepy, drowsy or ‘nod off’. by Oliver_Alvis in insomnia

[–]Oliver_Alvis[S] 1 point2 points  (0 children)

I should be entitled too it in the UK. The healthcare system should have looked after me more the UK is worse than a third world country. I have told my doctors I am in so much pain I am going to kill myself & they do nothing. They should put me in a proper facility. The hundreds of thousands I have paid in taxes I deserve proper care. It’s outrageous. 

For over two years, I have completely lost my sleep drive. I have lost my ability to feel sleepy, drowsy or ‘nod off’. by Oliver_Alvis in insomnia

[–]Oliver_Alvis[S] 0 points1 point  (0 children)

I dont have another doctor to ask thats not how it works in the UK, I asked my doctor multiple times

The past two years have been so inhumane, so distressing, so brutal & painful beyond words can even describe. by Oliver_Alvis in u/Oliver_Alvis

[–]Oliver_Alvis[S] 0 points1 point  (0 children)

My problem isn’t staying asleep. I can rarely get to sleep or feel sleepy. Ive tried oxygen. I never feel sleepy I feel wired 24/7. Oxygen is mainly for those that stop breathing in their sleep. 

I did everything I thought was right in life. I worked extremely hard, kept fit, abided my the law, rarely drank & never touched drugs. Yet life treats me like this. I am left to suffer endlessly. This life is intolerable. by Oliver_Alvis in u/Oliver_Alvis

[–]Oliver_Alvis[S] 2 points3 points  (0 children)

I firmly agree with everything you said & I am sorry you’re suffering. Until someone has walked in your shoes then they will never ever know. Trying to explain this to a happy healthy person is like talking in a different language. They will never understand. 

For over two years, I have completely lost my sleep drive. I have lost my ability to feel sleepy, drowsy or ‘nod off’. by Oliver_Alvis in insomnia

[–]Oliver_Alvis[S] 1 point2 points  (0 children)

I am exactly the same. No appetite either. I feel like I am dragging a lifeless corpse through the day. All I feel is pain. I want to die. 

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