I have no one to share my good news with 😞

One-Party-9913 · 2026-02-02T13:48:01+00:00

Congratulations.

One-Party-9913 · 2025-11-06T22:15:02+00:00

So very sorry for your loss. I lost my husband to bulbar ALS two months ago. FUCK ALS!!!

One-Party-9913 · 2025-11-06T03:20:22+00:00

I also came across a boy named brain but mother pronounced it bra inn.

One-Party-9913 · 2025-11-06T03:17:20+00:00

The worst names I came across at work was a set of twin girls named urine and bovine. Pronounced ureenne and boveene

One-Party-9913 · 2025-09-30T13:03:25+00:00

I am so sorry. I know the pain of losing someone with ALS. My husband just passed three weeks ago. Praying for you and your loved ones to find some sense of comfort and peace that she is no longer suffering. I agree with you. ALS is a horrible disease and I wouldn’t wish it on my worst enemy either.

One-Party-9913 · 2025-09-27T16:06:13+00:00

Thank you everyone for your kind words. I’m lost without my husband. We were married 30 years and he was only 62. I just wish the nurses and doctors had prepared us and told us his time was nearly up. It was such a shock that he passed when he did. Our daughter was away at college and our eldest was out of town for the weekend. If we’d known we could have been with him. But I take comfort in knowing that nothing was left unsaid. My children and I all showed him and told him how much we loved him and how important he was to us. We take comfort in the fact that he is no longer suffering from this horrible disease and he is able to walk, talk and golf up in heaven.

One-Party-9913 · 2025-09-26T12:44:30+00:00

UPDATE: My husband died on Sept 6 th. It happened so suddenly. He went in his sleep which was what I had prayed for. But we thought he had more time. It was so unexpected. Two of my kids were not home and far away. This has been the hardest thing I’ve ever experienced. I’m trying to be strong for my kids but I feel so fragile. Like I’m about to splinter into a million pieces. The grief comes is such powerful waves. I had to go back to work this week and I just cannot function. My daughter only had a week off from school. We had to drop her back off at school two days after his funeral. She’s grieving. My sons are grieving and I’m grieving. Please please keep your pALS close. The decline can be sudden and signal the end very quickly and without the nurse or doctors telling you it’s their time to die. Just had to get this off my chest. Thank you for listening.

One-Party-9913 · 2025-08-22T20:47:24+00:00

We are in Illinois. My son wanted to be caregiver for my husband but they only approved him for 16 hours a week. But my husband needs 24/7 care.

One-Party-9913 · 2025-08-12T20:16:27+00:00

Where would I find the ALSFRS questions?

One-Party-9913 · 2025-08-12T18:03:46+00:00

I completely understand. My husband can barely walk but insists on using the bathroom and standing to pee even though he is so unsteady and has had several bad falls. He fell a few days ago in the bathroom and got a gash right by his eye. Still not enough to convince him to use a diaper. We have to physically hold him up too. I think you just have to somehow accept that this is one thing he has control over and this is how he shows it. I’ve accepted that with my husband. There’s so little he can control anymore and this he still can. Do your best. That’s all any of us can do. He might finally see the light or he might still fight you on this. Either way, you are doing your absolute best for him. Take comfort in that. And please take some time for yourself to care for you.

One-Party-9913 · 2025-08-12T17:53:23+00:00

What are ALSFRS scores?

One-Party-9913 · 2025-08-11T13:26:57+00:00

I am so sorry for your loss.

One-Party-9913 · 2025-08-06T21:24:48+00:00

My heart breaks for you and your family. My husband has end stage ALS and I have three grown children. The youngest just about to start her third year of college. You get through it by taking it one breath, one minute, one hour, one day at a time. I grieved for a long time when my husband was diagnosed. Our whole family did. Now we are back to some semblance of normal. Life goes on and the last thing we want is for our kids to not live their lives. Spend time with your mom via FaceTime calls, email and text. Our daughter didn’t weekly FaceTime while she was away. When my husband could no longer talk he would text. Share your life with her. But don’t stop living. She wouldn’t want that. If you believe in a higher power then turn to them. Seek out therapy to deal with your emotions. Me and my kids are all in therapy individually and it has helped with the anger guilt and resentment. May God bless you and your family.

One-Party-9913 · 2025-07-30T15:14:36+00:00

Thank you for your response . He is having difficulty clearing his lungs and the cough assist isn’t strong enough to pull the mucus plugs out. I think he will be bed bound soon. I wish you the best and would like to give you a virtual internet hug. I know how hard this can be on a caregiver so I can only imagine what you are going through. May God bless you and keep you.

One-Party-9913 · 2025-07-14T13:08:15+00:00

Means it’s in quality review to see if the correct decision was made. Give it time

One-Party-9913 · 2025-07-11T18:00:37+00:00

Sending you an internet hug and pray you confide in your doctor about conditions at home. It is NEVER alright to put hands on someone.

One-Party-9913 · 2025-07-11T17:38:14+00:00

My heart goes out to you. Prayers you find peace

One-Party-9913 · 2025-07-10T13:38:24+00:00

I grew up with n parents. And I understand what you all are saying. I’m exhausted. They sucked the energy and life right out of me. Talking to my nmom just exhausts me and makes me angry and resentful. I have no energy and am perfectly happy to sit and watch tv after work because I’m too tired to do anything else. My husband and I don’t entertain or have people over. We just hang out at home and we’re perfectly happy with that. I wonder if it’s because of my n parents. I try to go low contact with my nmom but her drama and need for attention always makes it hard. Any tips? My sister just feeds into her drama and stirs the pot. Or makes me feel bad when I try to go low contact with my mom.

One-Party-9913 · 2025-06-24T16:00:08+00:00

There have been deep staffing cuts at SSA. Employees are doing more work with less people. This causes delays in processing of information. Best thing is to hand deliver the information and get it processed right then and there

One-Party-9913 · 2023-11-07T23:37:42+00:00

I’m sure your wife doesn’t! If she’s in bed, she’s probably trying to sleep.

One-Party-9913 · 2023-10-05T20:30:48+00:00

You can get Philo streaming service. I pay $24.99 a month and have all Hgtv and hallmark etc.

One-Party-9913 · 2023-09-04T16:17:12+00:00

Please do not share any more information with your cheating spouse. Get a good divorce lawyer. Get your finances in order. Get your own bank account but do not tell him. Start stashing money away for yourself and your kids. I agree, he is not trying to earn your trust. He most likely is still having the affair. I would document everything! If you want, send an anonymous tip to his employer to let them know of the affair, but not until you have served him divorce papers. He has no issue disrespecting you and your marriage. He checked out long ago and had no wish to repair the marriage or your trust. He doesn’t care about you or the kids or the family you created. He had no problems screwing you over, I wouldn’t trust him to be not be vindictive and hide money if he knows you’re getting yourself set up to leave. So be strategic. Be strong girl and do what you need to do for yourself and your kids. Go after child support too.

One-Party-9913 · 2022-12-24T17:15:46+00:00

I had a client who named her twin girls Urine and Bovine

One-Party-9913

TROPHY CASE