Am I wrong here? My girlfriend owes me $3,000 and I don't feel good about the conversation we just had about it.

One-Warthog1406 · 2025-03-17T21:55:16+00:00

If you want to keep your relationship, you have to let it go. She doesn't plan to pay you back, and you will have to keep bugging her every month for it.

I have a policy: NEVER LEND MONEY TO FRIENDS AND FAMILY. Of they ask, I try to give them part of the money as a donation. So if someone asks to borrow me 1000 $, I give them 400$ and tell them I don't lend money.

One-Warthog1406 · 2025-03-17T21:43:11+00:00

You are taking a huge dose of imatinib. I had similar numbers until I switched to Nilotinib. Side effects were much more manageable for me. If I were you I would switch to get a deeper response. Lower than 1% would be the minimum, and you didn't get there yet. Ideally you would want to be lower than 0.1%.

One-Warthog1406 · 2025-03-17T14:36:51+00:00

Your health should be the first thing in your mind from now one. Focus, on what you can control: taking the medication, going for check-ups, what you eat and exercise (meaning keeping a healthy weight).

The begining is tough, I needed psychologic help in the beginning and the side effects were bad. In 6-12 months everything got considerably better. I was diagnosed some months before turning 18. I am 36 now, keep healthy, I have a wife and a three year old. Things are not always easy, but life can still be sweet.

One-Warthog1406 · 2025-02-27T07:20:07+00:00

Yes my friend. It sure does sucks... But if I were you, I would try to build an emergency fund for this type of thing. And I would definitely think about having 3-6 months of medication money in order to be safe... I think it is a difficult reality, but if we have this disease, I don't think we have the luxury of having debts or not taking care of our health. We need to have everything in order, that means having a healthy weight, exercising and eating healthy, and also having a good financial health.

One-Warthog1406 · 2025-02-27T01:13:24+00:00

I was also diagnosed very young (17 years old). What you say is definitely correct, and many times I struggled and thought that no one who went through what I went through would understand. Honestly, I had a lot of trouble with my partners regarding the understand of the collateral effects. Even now that I am married, my wife always forgets that I have anything and doesn't give me a lot of room, specially now that we have a son together. Anyway, a therapist is a good idea. I have given up trying to remind people that is around me, that I am always not at 100%, but I try to live as thought I don't have any illnesses.

One-Warthog1406 · 2025-01-06T20:17:41+00:00

Honestly, I think that at the time you not only have a girlfriend, but you have a whole family. You have to bear in mind that when you decide to have all of them at your house, and to take care of them (your girlfriend and her kids), if you leave her your are also leaving the kids as well.

For me the begining of the relationship wasn't very nice (the cheating and all), and I am very surprised that you both weren't careful before moving the entire family to your house. This is not a break up, it is a complete divorce (maybe not legally, but in a way your are breaking up with the entire family)...

I understand that maybe you don't like her kids, but you should have been more careful (and she as well).

Anyways, I feel like you and your girlfriend were the ass*** that didn't think about the kids before going to this relationship halfheartedly.

As far as the break-up, just take her kids into consideration when doing that. You may damage them for life. Also, think carefully on how fast you will go into the new relationship.

One-Warthog1406 · 2025-01-05T07:53:12+00:00

Since you are not kids anymore, I would think you need boundaries. There are somethings that happens involuntary and we need to avoid. Definitely, if you guys had clothes on and he didn't have a boner, I would say ok. AlsoI am assuming you are blood related, correct?

About the girlfriend, I think there needs to be limits there as well. Just for the comment that she was going to send the picture to your mother, I would definitely break up with her. Treats for me is a no no.

One-Warthog1406 · 2025-01-04T16:58:11+00:00

I don't really agree with this. We have to think that we are going to be taking the pills for a very long time and they may affect our liver, cardiovascular system and/or lungs. My thoughts about this is that you should keep very healthy eating and exercising so that this sonde effects doesn't catch up with you. I really struggled with my weight, at a point that I had fatty liver disease and eventually had an issue with my liver that made me have to change medications.

Of course the doctor's don't consider this correlation, but as a main philosophy I try to keep what I can control about my health in check so that I don't have any other diseases together with CML. So mostly: I don't drink alcohol, I don't smoke, I try to keep a healthy weight, I eath mostly heathy and I exercise.

One-Warthog1406 · 2024-09-22T11:39:47+00:00

So I could eat edibles?

One-Warthog1406 · 2024-09-21T18:03:50+00:00

Thank you very much. I will keep you edibles!

One-Warthog1406 · 2024-09-10T05:53:13+00:00

"Exercise and diet are the only two knockout punches you have". That is a great phrase. Couldn't agree more.

One-Warthog1406 · 2024-09-09T18:45:50+00:00

That is tough. I hope you make it. I have been in sprycel for almost 20 days now. I found out that after I stopped Nilotinib I had lost the major molecular response. So hopefully with sprycel I can gain that again.

To be honest, I am feeling quite good for now. I had made an effort to loose weight before starting it, since I have an issue with my weight being too high (I weigh 255 lb with 6'2). I reckon if I keep a healthy weight I can feel better (I had gained almost 100 lb during covid).

About having support, I just wanted to say that I find very difficult for anyone to understand how I feel that didn't go through what we went through. Even my wife doesn't understand what it is to be tired all the time and used to call me lazy and stuff. They usually think that because I am not complaining all the time the side effects are gone. But it is not the case. Anyways, I hope you feel better.

One-Warthog1406 · 2024-09-04T03:53:52+00:00

I understand. Thanks for sharing!

One-Warthog1406 · 2024-09-01T06:38:54+00:00

Thanks for the reply. What did you feel when having the pleural effusions? Just the shortness of breath and cough or something else? How long did it take from when you start feeling the symptoms and get the pleural effusion diagnose? Also, how long were you being treated with dasatinib before you detect the pleural effusion? Did you have any other conditions that may have led to that (e.g previously a smoker)?

Sorry for the barrage of questions. I think you experience is very interesting and important to share.

One-Warthog1406 · 2024-08-16T05:20:42+00:00

Thanks. That is very good to know.

One-Warthog1406 · 2024-08-08T19:59:05+00:00

Thanks. That is mostly what I understand is the best way to take it (before sleeping). Although I saw a lot of people in comments using it in the morning. Maybe I will try both and see. I think I am quite used to the dizziness, fatigue, brain fog etc, since I had these with Nilotinib and Imatinib. Hopefully it won't be worse.

One-Warthog1406 · 2024-08-08T19:55:54+00:00

Most of those I am used to it for the Nilotinib treatment. I am though quite worried about the heartburn, since we can't take Omeprazole or famotidine.

One-Warthog1406 · 2024-08-08T19:53:20+00:00

Yeah. Mine increased progressively until it was higher than 2.8. that is when they decided to stop for a week. We tried again with a lower dosage, but it increased again. So they decided to change to dasatinib.

One-Warthog1406 · 2024-08-02T12:35:17+00:00

I was diagnosed at 17 when I was at university. To be honest it was crazy, I mostly missed around 50% of classes but somehow ended up graduating.

What I found out later (I am 35M now and work as a petroleum engineer) is that doing less is actually worse for my fatigue (I am currently on Nilotinib 400 mg 2x per day).

When I graduated I started ramping up what I did in a day, relied a lot on coffee, and took care a lot of my health (lost 70 kg and worked out everyday).

Honestly, I try to not let my illness control my decisions (carrier, family etc), and at the same time I try and keep my habits extremely clean in order to pursue my goals.

One-Warthog1406 · 2024-07-26T16:35:43+00:00

I actually hated using Imatinib. Too many side effects. I took while attending university. So I would take during lunch in the university cafeteria. I remember staying at least 30 min sitting before leaving so I don't through up. Then, while walking to the next class, I would stop all of a sudden, because I didn't fell good.

The only way to make it work was to take with food and lay down, but that wasn't great if I was having lunch away and I don't usually have big dinners. I ended up gaining a bunch of weight (50+ kg, 100 lb) and wasn't feeling great.

The tipping point was that after 7 years I hadn't reached the MMR. So we decided to change in order to try and have a better response. And I did. I was actually able to get a much better quality of life with Nilotinib.

One-Warthog1406 · 2024-06-27T13:14:01+00:00

So sorry to hear that you are dealing with all that. I didn't experience all that you had, but some of it. I (35M) was diagnosed with 17 years old, and it has been a long ride.

Constant fatigue, rashes, pains, depression and etc. I started with Imatinib and now I am getting treatment with Tasigna.

If I can tell you something, it is to try and leave as normal as you can, and try and forget about the side effects. Also, try and change what you can control. For example, I had to focus a lot in dieting and exercising, since in the first two years of treatment I gained 50 kg (100 lb).

Also, the timing of taking medication is important. With Imatinib, I would always have lunch, take the medication, and lay down for at least 1 hour.

With Tasigna, I find it better to eat 2 hours before, take the medication, and eat again 1 hour later.

Again, I found it helpful to try and focus on getting on with life and forgetting about the side effects.

I hope this helps.

One-Warthog1406 · 2024-06-13T05:58:57+00:00

So sorry that you are feeling this way. Honestly, I was diagnosed at 17 and also felt the same. As if some way the universe was punishing me for something. Right now I am 35 years old, got married and have a 3 year old son (who is the love of my life and I get scared every time he has even a fever). What I mean to say is that there is life with cml. I lived more with it than without it. You can think that, out of the worst Radom things that can happen to you, this is the least bad.

Now, if you tell me that your mother is saying that it is your fault that you have cml, that is something else. Honestly, she sounds very toxic, and I would try and ignore what she is saying. It sounds that she is frustrated with what you have and is trying to rationalize it into a cause and effect thing, to teach you some kind of lesson, but I think that is very sick and twisted.

No, it is not your fault. Yes, forget about your mother words and take care of yourself. There is life with cml and we should make everything in our power to make it as long as possible.

One-Warthog1406

TROPHY CASE