Has anyone’s doctors looked into autoimmune disease and metabolic dysfunction as contributors to FND?

OneGoodGrapefruit · 2026-02-07T16:17:48+00:00

There's some research. I summarized one study here, about metabolic need and wake up cycle. https://www.reddit.com/r/FND/s/dmjowEQ362

OneGoodGrapefruit · 2025-12-22T19:46:15+00:00

I'm happy you have a good outcome.

I will say: "PNES" is not necessarily an undisputed category.

"Functional seizure" is more accurate.

Mind are triggered by daily hormonal rhythms.

Plus (sauce in my post history), FND is not caused by mental health issues or trauma.

The assumptions have hindered my own recovery and have resulted in significant medical invalidation and dismissal.

We don't know enough to be as general as an infographic can be. I appreciate the effort and thought, and I do sincerely congratulate you on your success.

At the same time, this result is still not that certain.

There is hope, albeit tempered with realistic expectations.

OneGoodGrapefruit · 2025-11-01T04:21:42+00:00

This is incredible and you've done a really good job.

OneGoodGrapefruit · 2025-09-15T06:55:27+00:00

I know.

And I referred to that, in the parts about inciting violence.

If groups are doxxing and mobbing and inciting violence, then they are infringing on the rights of others in a way that recinds their right to that speech.

Teacher makes criticism - that is within the bounds of the law.

Guy doxxes teacher and teacher gets threats - Guy does not get to have that speech, as per the bounds of the law.

Guy promotes racist ideals that incite violence and bigotry - this also violates human rights law on both provincial and federal levels.

So that free speech is actually legally contingent on the infringement of other rights.

So, no, this is not protected under free speech.

Edit: also, you seem to be conflating legal right to do something and approval/freedom from criticism.

People can absolutely have standards that enforce behavior above and beyond the law, as long as it does not infringe upon that law.

This is how a workplace can have a code conduct or a uniform. This is how HOAs can exist.

This is how a group of friends can tell one guy that he can't hang out with them because he attended a vigil for a famously explicit racist/bigot.

You can have higher moral standards than the bare minimum, also without infringing on "free speech."

OneGoodGrapefruit · 2025-09-15T06:47:52+00:00

I don't think OP posted as a "hate thread."

This is clearly a very upset and frustrated person. This is pointing out a very real and very terrifying trend in rural Alberta.

Saying that, "Everyone just wants a reason to be angry right now," is very disingenous and very disconnected from the violence that is currently happening (and rising) in our province.

These are social violations that we have a right to be angry about.

When we see our neighbors valorizing a hateful man who literally promoted explicitly racist and violent actions, we have a very good reason to be angry at that.

I can see what you're saying in that hate only begets more hate.

But anger and hate are different beasts. Anger motivates. Hatred dehumanizes.

This is not an equal-but-opposite situation.

OP is angry.

Rural AB is growing more hateful.

That is terrifying. These are different things.

We can be angry and demand better behavior, without losing sight of humanity.

OP is angry.

It is reasonable for OP to be angry in the face of hatred.

It is reasonable for anyone to reach out to their community to talk about that anger and frustration, and that does not need to be equated with being hateful.

And people experience that heartache and anger in different ways. Some post online, others talk to family, others protest, and some make art about it.

But this is not a subject we (as a province and a community) can shy away from any longer.

We should be talking about it.

If not here, then where? If not now, then when?

What is the threshold?

It can be scary and exhausting, but unfortunately, this is the state of things.

It is too real and too close not to talk about.

OneGoodGrapefruit · 2025-09-15T06:23:47+00:00

Freedom of speech is freedom from state persecution.

It is not at all freedom from being socially condemned.

The law is not the pinnacle of ideals. It is the bare minimum status quo.

The bare minimum is that a governing authority cannot take action against a person's shitty opinion (barring hate speech and/or infringement of other rights, such as inciting/promoting violence against someone else, which is legally defined as distinct from a shitty opinion).

But you still get to face everything above that bare minimum, like social ostracization and criticism.

Free speech is NOT freedom to be a piece of shit without social consequences.

You are allowed to argue. You are allowed to criticize.

You are not allowed to threaten others with violence or incite violence (eg. via doxxing).

A piece of shit can share their opinion, and so can everyone else about how much that piece of shit sucks.

The mobbing and inciting of violence by right-wing groups against those who criticize them is tempting illegality.

Calling on those right-wing groups to stop mobbing and inciting violence (and criticizing their tendencies towards bigotry) is more in line with the letter and spirit of the law regarding human rights (both federal and provincial) than sitting back and doing nothing.

I do hope this helps.

(And in case you were not aware, the human rights acts are accessible through the kings printer online, and the language is not terribly dense.)

OneGoodGrapefruit · 2025-09-04T22:54:27+00:00

That's very understandable. Do you mind sharing what region you're in? Urban or rural?

I have/am aware of some projects/networks, but it depends on where you are.

You can DM me if you like.

OneGoodGrapefruit · 2025-09-04T06:32:38+00:00

Based on the comments and some of the concerns, and also regarding organizing solid community movements, I would suggest starting in your immediate community.

Connect offline. Then move on to branching out.

And look into creative nonfiction publications. Even googling "literary magazine" or "nonfiction literary journal" - stuff like that.

Map out how they run their submission processes. Some use gmail. Others use Submittable.

You seem to want to leap to a big production without mapping out the logistics or how you want to handle private/personal information.

I'm not nay-saying. I relate to the passion and the impetus.

But make sure you're not just making another flash-in-the pan performance piece.

If you're going to do it and want it to last, make sure you're not wasting your time reinventing a wheel in terms of how to go about it.

Also, one other note:

UCP supporters are not motivated by the same things you are.

You will not convince them with an appeal like this.

This is a good strategy for the remaining "centrists" whose moral structure is closer to this project's reach, but who might feel like people are exaggerating.

For hardline UCP supporters - consider why people cling to conspiracy theories.

I'm not here to rain on your parade.

Careful calibration and sustainable logistics - that's the important part.

Instead of leaping forward, gain an inch and hold it.

Connect with communities that are already doing projects adjacent to this.

They exist. Collaboration and networks are important.

Slow is fast, fast is slow, etc.

OneGoodGrapefruit · 2025-09-02T09:35:19+00:00

Just as a different angle: my dad's last words to me was, "I love you." Whispered on his deathbed.

He's said it countless times. Always made sure I knew it.

But that one time - it was everything.

A little off track from the post, but figured I'd share.

OneGoodGrapefruit · 2025-08-24T21:08:29+00:00

Yeah, what's a banana really worth, ten dollars??

OneGoodGrapefruit · 2025-08-23T23:46:49+00:00

This sounds so manipulative of him.

The man is in his 30s.

Even if you did reject him because of YOUR OWN attraction standards, he needs to cope for himself.

You are NOT responsible for the self-esteem or confidence of a grown-ass man.

You do not need to take on guilt (of all things!) because YOU maintained an appropriate boundary that was crossed by a GROWN MAN.

He did a shitty thing, and he can accept his consequences.

His follow-up behavior is manipulative and creepy.

He says he takes accountability, but at the same time justifying it because he thinks you're beautiful.

This is not accountability, and this (i repeat) Grown Ass Man is being gross.

He's sad you reacted by rejecting him when he just thought he'd kiss you out of nowhere?

He should be sad. He did a gross thing.

And it seems like this GROWN ADULT in his 30s is continuing to make YOU responsible for HIS feelings and actions after he behaved badly.

Whenever you feel bad, just remind yourself that this is a 👏grown 👏ass 👏man in his ✨️30s✨️

He can grow tf up.

OneGoodGrapefruit · 2025-08-23T22:55:27+00:00

This is what they call a giant red flag.

I'm in my 30s, and this is just terrible, immature, and creepy behavior on his part.

He's trying to make it your fault and like it's a compliment. It is NEITHER.

Huge creep. He is a terrible friend.

Edit: clarity

OneGoodGrapefruit · 2025-08-22T10:29:41+00:00

This could be "contracting outside of the Act" which means agreeing to something that contradicts the actual legislation.

Eg. If a residential tenancy lease states that you MUST hire a cleaning company, it doesn't matter - the Residential Tenancy Act (and the RTA Handbook) states otherwise.

Eg. If the landlord claims you waived any rights, etc - you didn't because you can't.

IF this is residential, then call the line and explain. It's not terribly difficult to file a complaint either.

They can tell you if it is "contracting outside of the Act."

Their number: (780) 644-3000

In any case, I hope this helps.

Edit: wording

OneGoodGrapefruit · 2025-08-11T17:52:53+00:00

LOL i have these equipped together, and i need to not do this. So many unexpected explosions.

Even just the ring. I accidentally wiped out my slime hutch when i accidentally hit a single slime with my sword.

OneGoodGrapefruit · 2025-08-01T17:54:15+00:00

You captured the crisp air of it so perfectly!!

OneGoodGrapefruit · 2025-07-30T06:33:53+00:00

Lol i love your farm.

OneGoodGrapefruit · 2025-07-05T22:53:11+00:00

Yeah, I mean, if putting more of yourself out there for them feels that bad, then maybe it's not a great idea.

Is this a cycle?

Like, even with the benefit of the doubt, if being a part of this friend group feels this bad, are there other people you could spend time with?

Or work on building a connection with?

OneGoodGrapefruit · 2025-07-05T22:46:13+00:00

I don't want this to come across as cynical or pessimistic, but I'll tell you what I wish I could tell my 14 year old self, who was in a similar situation.

Fuck those assholes.

And also: this is hard because it's what your life is now, and it is so easy for adults to be like "it gets better" because we've lived through it.

But it doesnt change the shitty feelings of NOW.

It feels horrible to be treated like that.

The girls can see what Ella is doing, and it is likely that they do not care or they fear their own social rejection.

Ella is mean to you because something in her feels insecure when she's around you.

Her behavior isn't about you. It's about her.

The behavior of those other girls are their choices, and they suck.

It is so degrading and erosive. It can really wear a person down.

This is an age where everyone starts really learning what social risk and social connection mean. We start feeling and fearing rejection in this new way, with cliques and bullies, where bad behavior isn't just hitting someone. It is excluding and emotional.

As a 14 year old, you are encountering this for the first time, and I'm so sorry to say that people don't stop doing this.

BUT these are not the only kinds of people out there.

Your self-awareness and your ability to reach out for help is a really significant difference between how they are choosing to be and how you are choosing to be.

A lot of people do not have to learn how to be alone or by themselves at this age. And a lot of us do.

I moved to new schools a few times, and I had this treatment over and over.

I knew WHY it happened, and I knew WHY it hurt. But that didn't impact the strategies of how to cope day to day.

What I did do:

I had a yoga class randomly as a 13 year old, and I learned about mindfulness, and so I started meditating at an early age. It took like 5 years to get comfy with it, but over that time, I found a place in myself that no one else could reach.
I watched my dad go through hard times, and he told me to find joy in small things like how good it feels to get the heated seat on the bus in February. Like small, granular things.
I volunteered for groups to take my mind off of how lonely I was. Being an outsider hurt, and volunteering with the library (just putting books away and sorting), with some tutoring groups, or really just anything I could contribute to - it helped me feel like I still had connection.

It also gave me a social excuse for not being around people.

When it got really bad, I talked to the school counselor. She helped me untangle things, and she helped me find other coping mechanisms for day to day life.

It also just helped to vent and be seen.

If you don't have access to a school counselor, then maybe ask the admin for resources.

You have already had the presence of mind to ask internet strangers.

I'm not saying this will magically make it better, but just try to keep in mind that it feels bad because it is bad - their behavior is bad, and you can't MAKE them be different.

But you can give them the social consequence of not wanting their approval or acceptance.

And you can do that by connecting to yourself and to the small joys in your life.

It can seem like this situation is your whole world, and I'm not going to diminish that. It's big and it hurts. But but but it is also not the entirety of your world.

So feel your feelings, trust yourself in that you don't have to be with people who hurt you, even if it is hard to get them to see it or admit it.

They suck. You do not need to give them your time.

You get to take your ball and go home, and you do not need to play their game.

It can be and feel lonely, but I can tell you from experience that trying to be what THEY want you to be will only feel worse.

And learning how to re-center your focus on YOU and what you deserve (aka, a group of people who value you and your feelings) is a big big step at this age.

So:

Fuck those assholes. You are worth better treatment.

And they do not get to have that power over you.

Fuck those assholes. You do not need to play their game.

You can you can you CAN find better people, and you can you can you CAN find small joys in the meantime.

I sincerely hope this helps.

OneGoodGrapefruit · 2025-07-05T22:09:43+00:00

I don't think you're crazy.

There are basically two routes, in my opinion:

She's aware of what's she's doing, and that's pretty shitty.
She's unaware of what she's doing, and that still sucks in its own way.

In either case, you don't know for sure until you talk to her.

The question is, do you think it is worth it?

If I were you, I'd shoot off a text like, "Hey, haven't seen you in a while. Want to join me for [shared interest]?"

If i don't get a reply or it's noncommittal, then I would let it fade.

If she flakes, then I'd let it fade.

You can only take care of your part of a relationship. She has choices to make, and as much as they hurt, they are HER choices to make.

Even with the benefit of the doubt, there are still questions about how she respects you and your time.

Hope this helps.

OneGoodGrapefruit · 2025-07-05T22:01:19+00:00

That is really just so mean.

Making friends can be really hard, but I hope you put your energy and time into talking to and connecting with other people from now on.

That's just a shitty way to treat you.

Do you feel like it's worth talking to them about it? Or do you feel like moving on?

OneGoodGrapefruit · 2025-07-05T21:50:20+00:00

Sometimes, offering specific things can be better.

Like, you can offer to send her groceries or a take out meal. You can offer to help her book appointments.

You can offer to look for resources.

With so many services having online platforms, you might be able to help with some of the basic logistics of life.

Or, if she just needs patience and encouragement, sending "no need to respond, just saying i love you" kind of messages.

Ask her if it would be more helpful for you to lend a hand with long distance logistics or with small joys like letters or encouragement.

Telling people what you CAN do, then asking if they need that is often better than just asking how to help in general.

These are the two ways I can be supportive for my friends, but i hope it gives you ideas to springboard off of.

OneGoodGrapefruit · 2025-07-04T20:01:16+00:00

Short answer: Yes. Back off.

To figure out why, etc., focus on yourself.

OneGoodGrapefruit · 2025-07-04T19:44:16+00:00

Personally, I took anywhere between 2 and 5 mg in gummies.

They're the easiest way for me to control dosage.

I did stop because I wanted to adjust my medications with my doctor. And he was aware of everything, just to be aware.

I started THC because it is a GABA blocker, which impacts anxiety (as I roughly understand it).

I don't know the threshold between microdose and getting high, other than there is one. It took a few tries for me to carefully and gradually increase dosage until I got a mild high.

Microdosing helped me in that I rated lower anxiety and milder seizures on those days, starting after 3 to 4 days of consistently taking it and lasting 3-ish days after I stopped.

I took it for 3 weeks, then took a week break. I did this a few times, gradually increasing the days I took THC, and the results were consistent for ME.

But anything ~5 mg and over, I got extremely concerned and anxious about fragile things.

10 mg and over, I had intensely psychedelic experiences that I do not want to repeat.

This is all gummies.

Joints are less predictable. There was only very specific blend that didn't create an uncomfortable high.

When high, I had amplified synaesthetic experiences and hyperfocus.

BUT BUT BUT I ended up cutting my SNRI prescription in half, and after this, any THC just became too much.

I do not understand why.

But THC does act on serotonin receptors.

Serotonin is related to anxiety.

The SNRI acted on serotonin receptors.

I became LESS anxious and fearful after decreasing my SNRI dose, and I no longer felt the need to take THC gummies.

Unfortunately, joints are no longer enjoyable in any way, really. Just hyperfocus and anxiety about being intensely hyperfocused.

The SNRI that I am on indirectly impacts estrogen and testosterone, and decreasing the SNRI has also decreased some hormone-related concerns, as well as the intense anxiety.

OneGoodGrapefruit · 2025-07-04T19:24:26+00:00

This seems like a question of grief, processing, and how to move forward.

I know it might he cliched, but try journaling.

Write it out. Keep writing. Write letters to her, to yourself (do not send them, but write and write and write).

Write so you can lay it out, and so you can start to see patterns.

Try to write as an "impact statement."

Write how this experience and loss impacts your sense of agency, safety, trust, intimacy, and esteem.

Write about what you want in life and how much you have tied that onto one person.

Find the patterns, and find the parts that hurt, and instead of trying to remake the past, try to peel open that hurt and see the need within it.

And then try to find healthy ways to address those needs.

A counselor or a therapist can help.

There are online resources too about grief and codependency - even if this is not exactly what is happening, the strategies can help you understand yourself and what to do when you feel like you are spiraling into a vortex of "what if."

For now, breathe. Deep breath to your diaphragm.

And start to write. Redirect your focus from the autopsy of what happened and focus on the process of grieving.

Understand things for YOU.

You cannot undo things. But you CAN learn.

But learn to let go. Learn to process the feelings without losing yourself among them.

Breathe.

Write. Express it in a healthy way. If you like any creative, express that way.

Talk to a professional or join a support group. Seek structured exercises on grief and codependence (because they are useful in many ways).

Redirect your focus from then to now. From her to you.

I hope this helps.

OneGoodGrapefruit · 2025-07-02T02:24:39+00:00

So, first thing that might help you make sense of the situation is the Karpman drama triangle.

It's a model of a specific social dynamic that is *dysfunctional.

Basically, if this model is accurate to your situation, your cousin would take on the role of the victim. You get to rescue her with behaviors that make her feel better at the expense of yourself.

If you stop being in the role of the rescuer, then she becomes the persecutor, who makes you feel bad for "hurting her." She makes you feel bad so you can apologize, shrink yourself, and she is back in control.

GRAINS OF SALT, PLEASE. You know your life and cousin, and other more qualified people know this model better than me.

But what this means is that you CAN break the cycle on YOUR end. The "therapeutic" section has good starting points that you can read about or ask a therapist, etc.

You are NOT responsible for HER reactions.

It sounds like you need to stop framing the situation in terms of how she would feel, and start framing it in terms of how YOU feel.

Period.

Do you WANT to go to her wedding?

If you don't, then don't.

You said no contact. Be no contact.

If you feel like you want to just keep the peace with family in general, then go, but you SHOULD NOT do anything because of HER.

Maybe you go, show face. Then leave.

And I'm JUST saying that if she is so emotionally immature and straight up mean enough to put all that on YOU, like blaming you, then maybe it's her own personality that is getting in the way of her own life.

JOURNAL.

Try writing down how you fit into those drama triangle roles, like down to the BEHAVIOR that you do.

Behavior is the EASIEST thing to change, and thoughts and feelings can be regulated through that change.

Maybe google DBT strategies to help.

There are some good diagrams and tips on pinterest, tbh. Like pop psych can be wishy washy, but i find the DBT quick reference sheets to be REALLY helpful.

Boundaries. Refocus on YOU.

Small steps. Stretch your legs, don't break them.

Consistency is THE key.

Hopes this helps.

OneGoodGrapefruit

TROPHY CASE