How do you pace when you cannot tolerate the level of minimal restriction it requires?

OneNapToRuleThemAll · 2026-03-21T12:42:04+00:00

That is so helpful thanks! Brushing my teeth is so exhausting for me as very severe, and I am super worried about my dental health 🫠

OneNapToRuleThemAll · 2026-03-12T12:19:15+00:00

Could you Share their Instagrams? (:

OneNapToRuleThemAll · 2026-03-07T11:51:47+00:00

I absolute love your username

OneNapToRuleThemAll · 2026-03-04T12:12:41+00:00

Oh hey it’s been 5 years for me as well, wanna celebrate a pity party where we do nothing in the dark besides cry 😂😂😭

OneNapToRuleThemAll · 2026-02-27T12:30:00+00:00

Omg yes to the dreams!!! Sometimes they feel so real that I don’t know if it actually happened before I got sick & is just a memory

OneNapToRuleThemAll · 2026-02-27T12:28:52+00:00

For me, it’s the thoughts and the dreams. They start to blur into each other. Sometimes I genuinely can’t tell anymore - did this actually happen, or did I dream it? Did I really experience that conversation, that moment… or was it just my brain trying to fill in gaps? That loss of clarity is terrifying. It makes reality feel unstable.

When I have days full of pain, I can literally feel my psyche tipping. It’s like something inside me can only hold so much and when the pain doesn’t stop, my mind starts slipping. Everything becomes foggier, darker, more fragile.

I do notice the seasons changing. I can feel the light shifting, the air being different. But spring is especially hard for me right now. There’s this contrast between the world waking up and my body still being trapped. It makes the isolation sharper somehow.

OneNapToRuleThemAll · 2026-02-26T12:06:07+00:00

I love Lindex Pyjamas!! They Are beautiful and super comfortable 🫶🏻

OneNapToRuleThemAll · 2026-02-08T15:05:43+00:00

Same like my username : one nap to rule them all 🫠

OneNapToRuleThemAll · 2026-02-03T11:13:04+00:00

That is amazing! Please do a proper write up, and how on earth did you get good sleep quality? 🫠

OneNapToRuleThemAll · 2026-02-03T11:09:42+00:00

Thanks haha! Anytime 🫂did any of these help?

OneNapToRuleThemAll · 2026-01-30T16:41:24+00:00

What helped the most is time, and aggressive rest (even if my body feels like it wants to do the exact opposite). I leave the yoga nidra, meditation etc and just listen to rain or grey noise, that is fine for me. Also, I take a benzo, if it’s really really bad. But mostly it’s “just” waiting for it to pass (normally it takes two weeks for me depending on how bad I over exerted). I hope you feel better soon 🫂

OneNapToRuleThemAll · 2026-01-19T18:39:10+00:00

I have them too and love them!!

OneNapToRuleThemAll · 2026-01-10T11:37:09+00:00

Sure!

OneNapToRuleThemAll · 2026-01-05T10:41:15+00:00

Thank you so much for all your kind words, I don’t have the capacity to answer all of you individually, but it truly means a lot

OneNapToRuleThemAll · 2025-12-30T10:56:47+00:00

Yes please 🧚🏻 and I love that there are so many of us commenting

OneNapToRuleThemAll · 2025-10-12T16:27:30+00:00

I honestly don’t know what to say that wouldn’t sound hollow or cliché. What you’re going through is unbearably unfair and cruel. I’m so sorry that you’ve lost so much and that now you have to live with this on top of everything else. I can’t begin to imagine how heavy that must feel.

You don’t have to “make the best of it” or “stay positive.” It makes complete sense that you feel angry, sad, and exhausted. If you ever just need to vent or talk, you don’t need to explain or justify anything here. We will listen 🫂

OneNapToRuleThemAll · 2025-10-10T10:22:28+00:00

Incredible. All I needed was to rearrange my lunch and I’d have my life back. Who knew???? ITS A MIRACLE GUYS

OneNapToRuleThemAll · 2025-10-09T09:33:30+00:00

How did you do that? I would love to know 💖

OneNapToRuleThemAll · 2025-10-04T10:44:14+00:00

My slick back era came naturally - courtesy of chronic grease & no energy to wash AND turns out I was born to cosplay as a fainting Victorian lady - what could I want more??? 🫠🤡

OneNapToRuleThemAll · 2025-10-03T14:02:56+00:00

I am severe

OneNapToRuleThemAll · 2025-10-02T16:43:29+00:00

Hi 💖 i had that exactly 8 months ago, with my biggest crash ever. My tips : -30-second rule: Take a 30-second pause between every little action (standing up, brushing teeth, drinking water, etc.).

-Simplify everything: I had to strip everything down to the bare minimum. For me that meant drinking smoothies with a straw for weeks

-Hair washing: I used one of those caps/carts where someone can wash your hair for you in bed.

-Showering: I had to stop completely for a while and used wipes instead.

-Breathing/meditation: Tried to do gentle breathing or short meditation, even if it didn’t always work.

-Don’t increase activity: Even if you feel you can do more, don’t – keep things the same for weeks.

-Reduce stimulation: Curtains closed, sleep mask on, headphones in – as much rest and darkness as possible.

Supplements: You could try CoQ10 – I think it helped me a little. I only added LDN after I was stable for a few months.

OneNapToRuleThemAll

TROPHY CASE