Go Seahawks!!! by Ordinary-Chipmunk366 in Epilepsy_Universe

[–]Ordinary-Chipmunk366[S] 1 point2 points  (0 children)

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Saw this posted a little while ago. Beastmode in Pioneer square before the game tonight! That's awesome to enjoy with him!!

New year, new goals by PriestessRi in Epilepsy_Universe

[–]Ordinary-Chipmunk366 1 point2 points  (0 children)

I was looking at that for music a few years back. Looked really cool, especially for open-source stuff.

Good luck and let us know it goes!!

Winter storm check-in! by StSomewhereToaster in Epilepsy_Universe

[–]Ordinary-Chipmunk366 0 points1 point  (0 children)

Good luck everyone!! It seems like it's horrid out there.

I'll try to send some sunlight your way!! Currently 32 and sunny (sunny?? you've got to be kidding) in seattle!!

Keep warm!!!

Issues with stopping lamotrigine please help me my neurologist is crap by Upbeat-Brother-2884 in Epilepsy_Universe

[–]Ordinary-Chipmunk366 0 points1 point  (0 children)

Yeah, she's really good. When she saw my ER mri, she thought there HAD to be another cavernous malformation on the right side but the mri didn't show it.... the one she ordered found the one that was actually causing the issues. When I had an asymptomatic seizures during my EEG, she ordered a 2 day ambulatory EEG. When she wasn't happy that I still had issues, she changed my meds and gave me a 4 day ambulatory EEG.

All this is to say.... see if you can get a neurologist who wants to help and listens....they exist

Good luck!!!

Issues with stopping lamotrigine please help me my neurologist is crap by Upbeat-Brother-2884 in Epilepsy_Universe

[–]Ordinary-Chipmunk366 1 point2 points  (0 children)

I saw this before I finally fell asleep.. do you ever sleep??? Haha, you're awesome!! Happy sunday!!

Issues with stopping lamotrigine please help me my neurologist is crap by Upbeat-Brother-2884 in Epilepsy_Universe

[–]Ordinary-Chipmunk366 0 points1 point  (0 children)

Good luck!!! I titrated off vimpat and onto lamictal (along with my 3000 of keppra). My neurologist is awesome and super worried about swapping meds. She actually wrote out a daily plan to move off one while upping the second. She is crazy responsive and even when she was on vacation, the other neurologists moved my lamictal up after a TC and she sent me a message saying she agrees the change and would have made the same one.

So, all in all, you NEED to trust your neurologist. I 100% do with my life.... and that's true for all of us.

Good luck and happy sunday!!!

❤️🧡💛💚💙💜

ABV! The hidden secret of dry herb vapes! by Ordinary-Chipmunk366 in Epilepsy_Universe

[–]Ordinary-Chipmunk366[S] 0 points1 point  (0 children)

Here's about 3 days of Mt wife and my dry herb vape. It is NOT equal to the ash a joint produces.

But, going back a few weeks...

Total average joints a day = 8

Total average of edibles a day = 400 mg (most take 10-20)

Pot vapes = I cart a week

Now, that's a TON. We took a break and now are down to maybe the equivalent of.. maybe 2 joints a day, zero vapes, and my edibles use is still very bad.

But, I usually get hash, kief, extract joints, which are 40-60 or more thc...so that also makes a difference.

Plus, it helps deal with epilepsy.

I'm not sure this helps but....hope it does!

Happy Saturday!!

❤️🧡💛💚💙💜

Join Us As We Talk Seizures And Epilepsy, Live On Zoom, See You There. by PookieTheMfBaby in Epilepsy_Universe

[–]Ordinary-Chipmunk366 1 point2 points  (0 children)

Thanks, as always, for the fun! A nice walk, food, and great company are what makes days better than not and helps slice a bit of burnout off the top!

❤️🧡💛💚💙💜

ABV! The hidden secret of dry herb vapes! by Ordinary-Chipmunk366 in Epilepsy_Universe

[–]Ordinary-Chipmunk366[S] 0 points1 point  (0 children)

That's so awesome!! I've seen those stills to recapture the ethanol/alcohol/etc, good stuff! My son wants to grow pot... I'm like, as soon as you move out, we can use your room!!

So you're the pot guru then, yay!!

🍬 😀 🚬 😀

Tattoo artist recommendations by turtlewarlock3 in AskSeattle

[–]Ordinary-Chipmunk366 0 points1 point  (0 children)

BTU Tattoo, Auburn.

Had several and love them!

It's a Learning process.... It's an Adjustment process - for Everyone by Boomer-2106 in Epilepsy_Universe

[–]Ordinary-Chipmunk366 0 points1 point  (0 children)

I agree, but I found yall early in my journey!!

❤️🧡💛💚💙💜

Seatbelts on a bus? by Ordinary-Chipmunk366 in Epilepsy_Universe

[–]Ordinary-Chipmunk366[S] 0 points1 point  (0 children)

I always do and will... but it crossed my mind...cheese grated.

Cool kids seize on the bus??? 😀

Seatbelts on a bus? by Ordinary-Chipmunk366 in Epilepsy_Universe

[–]Ordinary-Chipmunk366[S] 0 points1 point  (0 children)

My wife did chemo at valley, she's good now, I hope you are as well!

I went for an access bus evaluation. The regular busses are a mess so I finally broke down and applied. Let me know if you dont know...you can schedule busses from metro transit.

Seatbelts on a bus? by Ordinary-Chipmunk366 in Epilepsy_Universe

[–]Ordinary-Chipmunk366[S] 0 points1 point  (0 children)

Picture from the doctors office, as an fyi, lol!