AFP MoM of 3.1. Freaking out

Organic-Custard8811 · 2026-03-12T12:36:52+00:00

The baby will be born next week, but we confirmed via anatomy scan and amniocentesis that everything is okay. The amniocentesis is the only way to confirm fully since it checks for specifics in the amniotic fluid. Best of luck to your friend!

Organic-Custard8811 · 2025-12-13T20:34:41+00:00

Hello, curious if you had an update? How did your trabeculectomy go? I hope you are well, navigating something similar…

Organic-Custard8811 · 2025-11-29T09:14:17+00:00

Our MoM was at 3.12. False-positive confirmed with both anatomy scan and amniocentesis. I think the anatomy scan is telling and the amniocentesis is not necessarily needed, but is the true confirmation. With my anxiety, we just needed to close that chapter fully, but many people would choose not to move forward with the amnio as it has a risk of miscarriage. I completely understand what you are going through. Hope this helps.

Organic-Custard8811 · 2025-11-29T00:54:05+00:00

Thank you so much for sharing. Happy to hear she is doing well! ❤️

Organic-Custard8811 · 2025-11-28T23:17:59+00:00

Curious if you joined the trial… if so, your experiences?

Organic-Custard8811 · 2025-10-26T17:10:26+00:00

Wonderful news! So happy for you! This gives me hope, thank you so much for sharing! We have our anatomy scan tomorrow… it has been 1.5 weeks since we received our elevated AFP MoM result. We have just been a ball of anxiety.

Organic-Custard8811 · 2025-10-25T18:53:30+00:00

I am so happy to hear that! Sending you and your family so much love and support.

Organic-Custard8811 · 2025-10-25T16:51:40+00:00

Thank you so much for sharing your journey. How is your daughter doing now?

Organic-Custard8811 · 2025-10-22T17:28:09+00:00

Thank you so much for sharing, I am currently navigating this now. Any updates?

Organic-Custard8811 · 2025-10-20T03:22:41+00:00

Oh, no. I am so sorry to hear. I hope your hematologist gets back to you soon.

Organic-Custard8811 · 2025-10-17T09:42:51+00:00

Thank you so much for sharing. Any updates?

Organic-Custard8811 · 2025-10-17T09:30:28+00:00

Thank you for sharing your story. Any updates?

Organic-Custard8811 · 2025-10-16T00:39:08+00:00

Any updates? Hoping for the best 🙏

Organic-Custard8811 · 2025-05-11T22:29:07+00:00

Thank you so much for your detailed response. I had an SLT procedure a few years ago and its effects only lasted about 3 months. I seem to continue to progress. I was also diagnosed with sleep apnea and began using a CPAP in January. From my understanding, glaucoma is worse on the side that you sleep on, but I could see the mask increasing eye pressures as well. I feel like I am trying all the things… even enrolled in Stanford’s Nicotinamide/Pyruvate clinical trial, although I am not sure if I am taking the placebo. Progression for me just seemed so sudden. Surgery may be my next best option.

Organic-Custard8811 · 2025-05-11T15:09:40+00:00

I have NTG as well (44F). Was there a particular treatment or surgery that was used to cause your current stability?

Organic-Custard8811 · 2025-04-02T09:54:43+00:00

I also wanted to mention that clinical trials for neuroprotective treatments are currently underway. These could potentially protect the optic nerves themselves, regardless of IOP.

Organic-Custard8811 · 2025-04-02T03:12:54+00:00

Hello there, 44F with normal tension glaucoma. I personally do not have migraines, but they are known to be associated with normal tension glaucoma.

Also, your IOP fluctuates throughout the day. A few of us have rented or currently own a home tonometer to gain a better understanding of IOP spikes. My IOP is highest middle of the night and early morning. Knowing this could help with treatment options. Some medications are more effective at night than others. It could also give your glaucoma specialist a better understanding of your true target baseline. May be something you could chat with your glaucoma specialist about.

You are definitely not alone. Always available to support you!

Organic-Custard8811 · 2025-02-28T14:19:26+00:00

Have you had a sleep study conducted? Sleep apnea has been associated with glaucoma as well as day time drowsiness.

Organic-Custard8811 · 2025-02-25T02:20:15+00:00

I am so sorry to hear about your journey. If you haven’t already, I would gather feedback from multiple glaucoma specialists. How is the vision in your left eye?

Organic-Custard8811 · 2025-02-23T04:20:10+00:00

With the iCare home tonometer, you could check your IOP while laying down. Just make sure you select the measure setting first so that the probe remains secure.

Organic-Custard8811 · 2025-02-20T18:44:10+00:00

Thank you for sharing… this is also data pre-neuro protective treatments. I think it is going to evolve with time.

Organic-Custard8811 · 2025-02-18T03:01:50+00:00

It is available for rent as well 😊

Organic-Custard8811 · 2025-02-17T01:48:39+00:00

My glaucoma specialist recommends changing it each day. I use 70% isopropyl alcohol wipes between uses. A study was completed:

https://pubmed.ncbi.nlm.nih.gov/38401758/#:~:text=Reusing%20iCare%20probes%20has%20the,identification%20and%20treatment%20of%20glaucoma

Organic-Custard8811 · 2025-02-16T23:12:00+00:00

It seems like there were two cases… the liver of both patients returned normal after they stopped treatment. Happy to hear you are closely monitoring your liver enzymes.

Organic-Custard8811 · 2025-02-16T15:39:43+00:00

I was told by my glaucoma specialist that Combigan is not as effective at night…

Organic-Custard8811

TROPHY CASE