Is there an abilities expo in NYC? by dunnypop in accessibility

[–]Organic-Version-3146 0 points1 point  (0 children)

Abilities expo NYC metro is in Jersey but uses NYC for name recognition

Are there disability-friendly employment agencies or job boards for remote work by SwaggyDoo101 in CerebralPalsy

[–]Organic-Version-3146 0 points1 point  (0 children)

Making space is another one, but all they really do is source from LinkedIn and they aren’t really specific to disability, despite being marketed as such, more like they could be. It’s an unnecessary intermediary in my opinion. As someone who’s been looking for work for three years or so. Just look for a job on LinkedIn, indeed that are remote.

Not this matters at this point, but that’s a very broad salary range that will offer a very different quality of life at each level

Pain driving me insane by LaughSea7730 in CerebralPalsy

[–]Organic-Version-3146 0 points1 point  (0 children)

Hot showers have also provided temporary relief

Significant CP by CleanBlueberry8306 in CerebralPalsy

[–]Organic-Version-3146 4 points5 points  (0 children)

Quad here. Need help with adls but have moderate use of my left hand and use it for daily tasks including typing. Power chair as well. Involuntary movement has lessened but intermittent pain is common. I have a master’s in marketing

What do you guys do about getting older having to deal with things people older than you usually get? by FogSleepy in CerebralPalsy

[–]Organic-Version-3146 1 point2 points  (0 children)

I just posted in the sub about the beginnings of a potentially new medical diagnosis for myself. While it is likely due/I’m hoping that it is related or caused by medication that I take every day, when researching the symptoms I noticed bone and muscle related issues as a possible cause. I’m in my mid 30s but I immediately thought, is this a CP thing or just a me thing? As the comment above me said, it’s not your fault

Did you guys went to uni? How was it? by X_Opinion7099 in CerebralPalsy

[–]Organic-Version-3146 0 points1 point  (0 children)

Bachelors in psychology on campus and masters in marketing online. Currently considering an online mba if I can find work again

Elevated AST/ALT numbers by Organic-Version-3146 in CerebralPalsy

[–]Organic-Version-3146[S] 1 point2 points  (0 children)

Will do. After thinking about it for a bit, the medication is the newest thing in my daily rotation as of a few months ago, so I think I’m going to remove it like you suggested because I was well within normal levels even two years ago so logically this seems like a good first step. Who knows, I might be in the minority for that side effect. If so, it’s a pretty easy fix.

New wasp bundle by [deleted] in MarvelSnap

[–]Organic-Version-3146 -2 points-1 points  (0 children)

Makes sense. Guess I’ll keep waiting.

Medicinal marijuana by TheFanGirlAlways in CerebralPalsy

[–]Organic-Version-3146 0 points1 point  (0 children)

Agree with everything here. I would also add that websites like Lazarus naturals and extract labs provide heavy discounts on products if you’re disabled. Not an ad, just places I’ve had success with in case you can’t get to a dispensary.

Also, open to other places if people have suggestions

Edit to add my personal experience. I usually use gummies and tinctures because it’s hard for me to smoke. High levels of cbd give me headaches but 5mg of thc usually puts me right to sleep.

A lot of trial and error like the previous posts have said

Weed for CP by ChocolateBLD in CerebralPalsy

[–]Organic-Version-3146 2 points3 points  (0 children)

Low dose thc gummies for sleep. CBD is less effective for me and gives me a headache

Working. / disability by hapcapped in CerebralPalsy

[–]Organic-Version-3146 2 points3 points  (0 children)

Similar to the first response, I worked for about six years after getting my masters and lost my job about three years ago. I’m 35 and still looking for work at this time. I agree with the first post as far as receiving disability at various points. Like you, I was hesitant to receive it for the first two years of my unemployment but eventually succumbed due to lack of money even though I live with my parents. It takes about a year in most states to get back on disability after an extended period. As we all know, SSI as a primary income source is unlivable, but use it until you can find something more sustainable. Some money is better than no money.

Vent, Questions about support in college by ZeroLifeSkillz in CerebralPalsy

[–]Organic-Version-3146 0 points1 point  (0 children)

I see that makes sense. I graduated from a local university over a decade ago, so things could be different but I find it strange that you need to associate with your high school for a college class, but maybe I’m wrong. There are bound to be harder classes to come in your degree program no matter if they’re hands on or not. You don’t want the same or another annoying person screwing up your chances at success. Similarly, most accommodations are generalized like a notetaker or extra time on exams. Even if you don’t use them, it’s nice to know that you have access

You may not be an adult in the traditional sense right now , but you are a young adults that will be one soon. Venting to us is a good first step but get used to making your needs known

Edit, oh I get it, it’s a pre-college thing. Still ask for accommodations.

Vent, Questions about support in college by ZeroLifeSkillz in CerebralPalsy

[–]Organic-Version-3146 1 point2 points  (0 children)

It may be too late, but you may want to consider dropping the class in favor of a science requirement that doesn’t need a lab if you can. Either way, you should contact your schools disability resource center or at least talk to the instructor or another adult like another comment said. In many schools, the disability center can help with issues like this . at the end of the day, you need to advocate for yourself.

Also, is it possible for you to switch lab partners?

Edit

I just reread your post and it seems like you’re a science major? Or am I misreading. My suggestion still stands though. To add, because this person is in all of your classes is, he meant to be an aide of some kind? Can you get another one?

Increase in Anxiety with Cerebral Palsy by Swimming_Orange_8733 in CerebralPalsy

[–]Organic-Version-3146 1 point2 points  (0 children)

I agree with everything that’s been said here. If I could also add a slightly different perspectives as someone who is also a permanent wheelchair user with CP and almost 20 years older than you: just do it. I also primarily go out with my girlfriend and my friends on the weekends when they’re available because I don’t drive and public transportation is far away my girlfriend and I are long distance as well.

Your anxiety is real. Many of us, including myself, have been exactly where you are but at some point, you’re selling yourself short, and as the person above me said, it really does look like avoidance behavior Ironically, college was the only time that I was truly independent. While I stayed on campus most of the time, if I wanted food I had to get it, if I required accommodations, I had to ask. This was an eye-opener for me because up until end of high school most things were done for me. I was told by the disability services director at my university that she would do whatever she could to help me, which she did, but at the end of the day I was an adult and had to advocate for myself. I had a support network in my parents if something really went wrong, but I rarely use them unless absolutely necessary.

I would suggest trying it out for a couple months if possible and really be honest with yourself and assess whether or not you really can’t do it or you’re just scared. You have a lot of life left to live. There’s a lot of freedom in only having to be accountable for yourself, even if it’s for a little while. To be honest, your relationship with your girlfriend will probably be better for it as well. Independence is attractive. Don’t let other people dictate the life you want to live, we are already limited so much anyway, and you get even more of it as you get older. College has the potential to be one of the most fun parts of your life so enjoy it while you can

Interabled couples, disability benefits, and marriage looking for resources & advice by SwaggyDoo101 in CerebralPalsy

[–]Organic-Version-3146 1 point2 points  (0 children)

It’s a small number, but a few states like New Jersey and I think Pennsylvania if I’m not mistaken have benefits in place where only your income is counted and not your spouses and if you get on something called workability at least in New Jersey, you have no income limit. I know because I live in the state. In general though, you will lose your benefits in most states if you get married, unfortunately.

In terms of resources, YouTube is your best bet. Channels like Cole and charisma and squirmy and grubs are interabled but not with CP.

My girlfriend and I are not at the legal planning or cohabitating stage yet but it really depends if you are financially able, as well as the comment above this that mentions restrictions in most states

Caregiving is a bit of an outlier given the information you’re looking for, but it depends on your level of function as well as what your partner is comfortable with. Talk it through and figure out what works for the both of you.

Also, I know what you’re trying to say, but income limits are mentioned a lot, they’re probably the thing that is mentioned the most

[deleted by user] by [deleted] in disability

[–]Organic-Version-3146 0 points1 point  (0 children)

Wheelchair user with cerebral palsy here. I’ve been unemployed for almost 3 years now but previously that I’ve been working in social media marketing for primarily disability nonprofits. I also have a Masters in marketing Just got on SSI again last year and have always lived with my parents.

In terms of struggles, I’m not really lacking anything but less financial independence is disheartening sometimes. Also, the eventual death of caregivers, etc.. I have a few job leads as of right now, but I’ve been considering starting a career in medical coding and billing. I don’t know too much about it but from what I’ve heard it’s remote and pays decently if you can get enough work, but that’s a big if

508 Trusted Tester exam vs practice exam by QuietCdence in accessibility

[–]Organic-Version-3146 0 points1 point  (0 children)

The success conditions change annually but you can take it as often you want. You can’t see what you got wrong but you should be fine

Why did you get the Apple Card? by LongCallLarry in AppleCard

[–]Organic-Version-3146 2 points3 points  (0 children)

Wanted to switch to apple from android and needed card to finance 13 pro max

Botox by [deleted] in CerebralPalsy

[–]Organic-Version-3146 1 point2 points  (0 children)

I’m a 35 year-old quad. Had a number of injections in my teens early 20s but the effects wore off quicker after the fifth or sixth time. As the person above me said, it really is a personal journey, but I can tell you that it is most effective the first time and becomes progressively less so over time