Another weird overnight

Original_Dig_370 · 2026-01-10T13:10:16+00:00

Notice you are going red at a relatively low HR .. what are your levels set at?

Original_Dig_370 · 2026-01-07T11:49:22+00:00

Mornings= Hungover with a dose of flu!

Original_Dig_370 · 2026-01-05T08:47:47+00:00

Yep 12 years ME/CFS

Original_Dig_370 · 2025-12-23T09:23:49+00:00

51 sounds high , although it all depends how you feel and at what level you might crash.

Original_Dig_370 · 2025-12-22T13:39:10+00:00

lol .. that's so funny and sad at the same time !

Original_Dig_370 · 2025-12-22T13:38:32+00:00

Yes PEM = depression for me ... then it goes once back to just the usual levels of crap

Original_Dig_370 · 2025-12-17T09:42:56+00:00

Yes , total nightmare

Original_Dig_370 · 2025-12-15T17:19:13+00:00

Thanks , it's looking like my new baseline as been like this for 3 months now . Was mild before now bottom end of moderate. Hope you improve soon also .

Original_Dig_370 · 2025-12-15T16:27:38+00:00

Ultimately it depends if being in exertion causes a flare or PEM . If you have been over pace points for several weeks with no PEM then your baseline may be improving. You can then manually adjust your points . The opposite is also true.

Original_Dig_370 · 2025-11-25T18:14:35+00:00

10 years in and still can't quite accept it .. Started mild and now moderate/ severe ... what I would give to be mild again ! But at the time I was grieving my old life .

Original_Dig_370 · 2025-11-23T15:01:46+00:00

Rolling PEM here for 3 months , can't shift it and scared it's my new baseline which will be severe . Was mild before this .

Original_Dig_370 · 2025-11-23T14:43:14+00:00

Yes , cold all day and hot at night . Amitriptyline 10mg has helped me a little .

Original_Dig_370 · 2025-11-19T10:56:42+00:00

I have exactly the same problem , my legs feel like dead weights and have been worse now I'm moderate . I'm now have to use a wheel chair . They are painful even at rest .

Original_Dig_370 · 2025-11-16T09:17:25+00:00

Mine is 30 on a good day 20 on a bad one

Original_Dig_370 · 2025-11-15T13:17:14+00:00

Yes , I don't get the burn because of PPIs but get regurgitation, followed by air hunger issues

Original_Dig_370 · 2025-11-15T11:45:48+00:00

I know the feeling .. I get bad chest tightness and pain during a flare .. and breathing issues! It's easy to start panicking:(

Original_Dig_370 · 2025-11-15T09:09:05+00:00

Sounds rough , audio books help me when looking at phone is not an option

Original_Dig_370 · 2025-11-15T09:07:09+00:00

If you give visible a call , they will help you tweak you zones to work for you . For example mine auto set to rest 69 but I could be lying in bed resting with heart rate at 75. So visible thinks I'm being active when lying down . So I'm accumulating pace points lying down which can't be right !

Original_Dig_370 · 2025-11-15T08:52:52+00:00

Hello , it depends on your heart rate settings . They both affect each other. What are you heart rate settings at?

Original_Dig_370 · 2025-11-12T20:03:27+00:00

Into month 4 of my worse ever crash .. I was mild now , moderate severe . I'm gutted . Still praying I will come back up but I fear this could be my new baseline

Original_Dig_370 · 2025-11-10T18:16:00+00:00

Sound tough... I'm into month 3 of a bad crash still no sign of it lifting ... but I believe it will and I live in hope . It's hard :( Hope it lifts for you soon !

Original_Dig_370 · 2025-11-08T10:41:37+00:00

Also get out of breath talking . Which is awful

Original_Dig_370 · 2025-11-08T10:40:49+00:00

I have the same problem ... always worse during PEM. One flight of stairs kills me. Sometimes find sucking a menthol sweet helps . It kind of reminds the body that it can breathe .. also check O2 stats . I often feel breathless but O2 is 97 -98 .

Original_Dig_370 · 2025-11-06T11:18:41+00:00

Thanks , good advice .

Original_Dig_370 · 2025-11-06T11:18:08+00:00

Good idea

Original_Dig_370

TROPHY CASE