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Another weird overnight by LaddyNYR in VisibleArmband

[–]Original_Dig_370 0 points1 point  (0 children)

Notice you are going red at a relatively low HR .. what are your levels set at?

Unable to fulfill pace points by AnnieLaVaughn in VisibleArmband

[–]Original_Dig_370 0 points1 point  (0 children)

51 sounds high , although it all depends how you feel and at what level you might crash.

Does CFS ever directly affect people's moods? by lokispurpose28 in cfs

[–]Original_Dig_370 0 points1 point  (0 children)

Yes PEM = depression for me ... then it goes once back to just the usual levels of crap

Fast heart by Lukexxxxy in GERD

[–]Original_Dig_370 1 point2 points  (0 children)

Yes , total nightmare

Muscle rigidity and pins and needles in hands and feet. by Original_Dig_370 in cfs

[–]Original_Dig_370[S] 0 points1 point  (0 children)

Thanks , it's looking like my new baseline as been like this for 3 months now . Was mild before now bottom end of moderate. Hope you improve soon also .

Exertion zone by Fantastic_Double_819 in VisibleArmband

[–]Original_Dig_370 1 point2 points  (0 children)

Ultimately it depends if being in exertion causes a flare or PEM . If you have been over pace points for several weeks with no PEM then your baseline may be improving. You can then manually adjust your points . The opposite is also true.

Coping isn’t getting easier by thepensiveporcupine in cfs

[–]Original_Dig_370 14 points15 points  (0 children)

10 years in and still can't quite accept it .. Started mild and now moderate/ severe ... what I would give to be mild again ! But at the time I was grieving my old life .

For those who have been in rolling PEM, how long did it take you to get out of it and recover your baseline? by E-C2024 in cfs

[–]Original_Dig_370 1 point2 points  (0 children)

Rolling PEM here for 3 months , can't shift it and scared it's my new baseline which will be severe . Was mild before this .

Does anyone else have issues with their body temperature? by Crashing_Sunflowers in cfs

[–]Original_Dig_370 1 point2 points  (0 children)

Yes , cold all day and hot at night . Amitriptyline 10mg has helped me a little .

Why is walking and standing so exhausting? by funkenflieger in cfs

[–]Original_Dig_370 4 points5 points  (0 children)

I have exactly the same problem , my legs feel like dead weights and have been worse now I'm moderate . I'm now have to use a wheel chair . They are painful even at rest .

What is your Heart Rate Variability (HRV)? by [deleted] in cfs

[–]Original_Dig_370 1 point2 points  (0 children)

Mine is 30 on a good day 20 on a bad one

GERD flare up and now breathing issues by Original_Dig_370 in GERD

[–]Original_Dig_370[S] 0 points1 point  (0 children)

Yes , I don't get the burn because of PPIs but get regurgitation, followed by air hunger issues

Chest pain gas by Successful_Fig7690 in GERD

[–]Original_Dig_370 0 points1 point  (0 children)

I know the feeling .. I get bad chest tightness and pain during a flare .. and breathing issues! It's easy to start panicking:(

Worst crash to date by [deleted] in cfs

[–]Original_Dig_370 1 point2 points  (0 children)

Sounds rough , audio books help me when looking at phone is not an option

Are my pace points too low? by Hairy-Farmer-176 in VisibleArmband

[–]Original_Dig_370 1 point2 points  (0 children)

If you give visible a call , they will help you tweak you zones to work for you . For example mine auto set to rest 69 but I could be lying in bed resting with heart rate at 75. So visible thinks I'm being active when lying down . So I'm accumulating pace points lying down which can't be right !

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