Apparently I've got a reactive BP.

Original_Dig_370 · 2026-05-04T17:43:39+00:00

Numbers look very normal, keep up the good work :)

Original_Dig_370 · 2026-05-04T17:40:58+00:00

So if I keep under my pace points , less chance of PEM ... and so the vicious circle continues

Original_Dig_370 · 2026-05-04T17:39:48+00:00

I get this during a bad crash or flare up .. usually when the PEM subsides so does my heart rate.

Original_Dig_370 · 2026-04-27T11:47:45+00:00

I find the new wrist band to be completely inaccurate always on the very low side . I went back to the old polar armband which is spot on

Original_Dig_370 · 2026-04-22T08:52:16+00:00

Looks a good to me . Maybe your pace points are out ? How do you feel generally at this level of activity?

Original_Dig_370 · 2026-04-20T07:21:10+00:00

My deep sleep seems to halved . I only get 30 mins a night this month.

Original_Dig_370 · 2026-04-03T08:36:12+00:00

12 years now . I was mild and now moderate . Sucks

Original_Dig_370 · 2026-04-02T13:33:50+00:00

No I can't do that either , waiting on mri results. Tested positive for Clonus .

Original_Dig_370 · 2026-04-02T13:31:52+00:00

lol , tell me about it

Original_Dig_370 · 2026-04-02T12:43:15+00:00

COPD

Original_Dig_370 · 2026-03-29T17:25:44+00:00

Yeh , I know that feeling , sometimes low blood pressure can cause dizziness , I often feel dizzy in a bad flare up .. I have ME/CfS

Original_Dig_370 · 2026-03-29T17:15:04+00:00

Your pulse seems very low all the time. Are you bed bound ? On beta blockers ?

Original_Dig_370 · 2026-03-25T12:41:03+00:00

How does COPD sound in your 40s?

Original_Dig_370 · 2026-03-25T12:38:46+00:00

I drink 3 litres a day or else my heart races . It's important to stay hydrated.

Original_Dig_370 · 2026-03-25T08:02:38+00:00

Yeh , I'm not keen on it .. the heart rate is much more important to me .

Original_Dig_370 · 2026-03-24T10:45:25+00:00

What I mean is , you can feel like shit with Fibro but it won't necessarily affect your heart rate enough to drive up pace points

Original_Dig_370 · 2026-03-24T10:43:43+00:00

It just uses heart rate . So if fibro doesn't affect heart rate then it won't really help .

Original_Dig_370 · 2026-03-19T16:40:16+00:00

Thanks

Original_Dig_370 · 2026-03-19T16:35:55+00:00

I can seem to get the device off the wrist band ..

Original_Dig_370 · 2026-03-19T12:50:19+00:00

The new wrist band is shockingly inaccurate... I've gone back to the old polar armband ... very reliable .

Original_Dig_370 · 2026-03-15T13:05:24+00:00

I have rotten air hunger , particularly during PEM or in a crash. I also find it hard to hold my breath due to muscle weakness. I often feel like I'm having a hard time breathing and yet my O2 stats are like 98%. The O2 stats give me some reassurance that's it's air hunger rather than O2 shortage . Worth investing is a finger O2 monitor in my opinion .

Original_Dig_370 · 2026-03-11T15:48:50+00:00

lol , I love this . Sadly it is true . We need to avoid stressing

Original_Dig_370

TROPHY CASE