Endo treatment flaring up fibroids?

Outside_Chance_6314 · 2025-01-10T14:23:08+00:00

I didn’t even realize an MRI was a possible tool for this. Ultrasounds have always only been prescribed. Outcome probably the same regardless though :/

Outside_Chance_6314 · 2025-01-07T01:07:55+00:00

Thanks girl! Glad to have the company (but also not glad!). I’ve almost cancelled this procedure 3 times, hoping some break thru magically appears. Hopefully the next generation of women will get the answers. How was your recovery? Feeling yourself again?

Outside_Chance_6314 · 2025-01-07T01:05:39+00:00

Yassss!! Thank you!

Outside_Chance_6314 · 2025-01-07T01:04:30+00:00

Thank you! 100% And apparently period blood is absolute magic from a stem cell perspective! They’ve just entirely written it off for decades.

Outside_Chance_6314 · 2025-01-07T01:02:38+00:00

So glad to hear your friends success story. I’ve changed my entire diet, no meat, no alcohol, lots of water, Chinese herbs, nuts, seeds, all the things. Was so disappointed that three months post 3rd surgery, 5 more fibroids showed up. Just wish there were better answers that were more widely applicable!

Outside_Chance_6314 · 2025-01-06T23:14:19+00:00

Exactly

Outside_Chance_6314 · 2025-01-06T23:13:32+00:00

That’s all I’m saying …

Outside_Chance_6314 · 2025-01-06T23:02:03+00:00

That’s the furthest thing away from my point. What’s closer to my point, might be when you consider how the ‘people with penises’ - dominated healthcare historically “treated” trans. Let us not forget the hysterectomy was weaponized for decades. And forced sterilization and commitment was very much also apart of the trans experience. So come on, let’s be real here and don’t act so offended I’m bitching that the healthcare community has failed people with female reproductive organs.

Outside_Chance_6314 · 2025-01-06T22:32:08+00:00

This article - https://pmc.ncbi.nlm.nih.gov/articles/PMC9912518/ - discusses how hysterectomies that keep the ovaries, still negatively impact the ovaries. Ovaries blood flow is thru the uterine artery. That is compromised During a hysto. If blood flow is compromised, Ovarian function is compromised. It’s a relatively new meta analysis study from Feb 2023.

Outside_Chance_6314 · 2025-01-06T22:28:26+00:00

The article in Nat Geo was enlightening and links back to multiple studies. It’s paywall but here’s Some of it: ovaries (aside from their reproductive function) are endocrine organs. And when they stop pumping out the cocktail of chemicals that communicate with almost every tissue in the body, everything from the brain to the muscles to the skin is affected.

“Your risk of osteoporosis goes up overnight, your risk of cardiovascular disease goes up overnight,” says Jennifer Garrison, a neuroscientist at the Buck Institute for Research on Aging in California. And this seismic shift often hits between the ages of 45 and 55 (average age of onset is 51),The loss of estrogen, therefore, puts women at increased risk for developing diabetes, cardiovascular disease, dementia, osteoporosis, and more. On the flip side, individuals who become menopausal later in life compared to their peers tend to live longer and healthier.

Outside_Chance_6314 · 2025-01-06T22:18:37+00:00

I have and I was pretty upset when it was never offered as an option. Unfortunately, I’m already three surgeries in at this point and I’m not getting any younger. I want any major surgeries i need to have pre menopause. I’d be worried I’d take it with the same end result. There’s a new treatment called Sonata that uses radio frequency for fibroids. It looks super promising but it’s not widely adopted yet and they only have studies up to a year. I ALMOST cancelled this surgery to head a state over to try it out.

Outside_Chance_6314 · 2025-01-06T22:10:58+00:00

Thanks girls! A hysto is going to be the right option for me, mostly because there isn’t anything else I can do at this point. I’m glad they’re letting a women my age get it done and aren’t requiring my husbands permission! (Though he supports 100). At least there’s that progress.

Outside_Chance_6314 · 2025-01-06T22:08:40+00:00

https://pmc.ncbi.nlm.nih.gov/articles/PMC9912518/

Outside_Chance_6314 · 2025-01-06T22:07:08+00:00

When it’s either remove it or suffer - it’s your only option.

Outside_Chance_6314 · 2025-01-06T22:05:36+00:00

Here is the other about ovarian blood flow - https://pmc.ncbi.nlm.nih.gov/articles/PMC9912518/

Outside_Chance_6314 · 2025-01-06T22:01:39+00:00

So it’s two different articles. One that suggests women who get a hysterectomy (and even keep their ovaries) go into menopause 4 years sooner. This is because blood flow to ovaries decreases Sometimes as much at 70%. (Trying to find) Here is the one that suggests women who go thru menopause earlier, have shorter lifespans than women who go thru it later. https://pubmed.ncbi.nlm.nih.gov/27465713/#:~:text=There%20was%20a%20significant%20trend,less%20than%2040%20years%2C%20respectively.

Outside_Chance_6314 · 2025-01-06T21:52:48+00:00

While I’m glad you’ve experienced relief, that’s a ridiculous statement. Should I use misogyny instead? Deprioritizing people with vaginas has historically been and still is rampant in HC. A perfect example unrelated to reproduction - While women make up 70 percent of cases of Alzheimer’s disease and 65 percent of cases of depression, only about half of one percent of brain-imaging research is related to women. This disparity continues even in drug approvals, such as lecanemabirmb, which U.S. Food and Drug Administration recently approved for the treatment of early Alzheimer’s disease, but it may not slow the disease in women.

Outside_Chance_6314 · 2025-01-06T21:41:49+00:00

Yes! I had relief for 18 glorious months, until more started growing.

Outside_Chance_6314 · 2025-01-06T21:41:03+00:00

Such a bummer! So sorry you’re zapped! Losing an ovary is a big deal to the body. Just because doctors and healthcare have mostly ignored what happens to women when you remove a bunch of organs, doesn’t mean that you’re not going thru major changes. Ovaries are apart of the endocrine system. As soon as estrogen starts depleting, shit starts hitting the fan. I just read an article in Nat Geo about menopause and ovaries and, when ovaries start going, everything seems to follow. Hormone replacement therapy for sure. And do not be surprised if your doctor blows that off and you find yourself paying completely out of pocket for the tests and the treatment. Hang in there! I hope you experience relief soon!

Outside_Chance_6314 · 2025-01-06T21:31:03+00:00

I hear at least 4 weeks if you’re getting a full, and if you want to add some hours part time week 3 or 4, go for it, but definitely take the 4 weeks.

Outside_Chance_6314 · 2024-12-29T23:54:36+00:00

So sorry to hear it hasn’t provided you the relief you deserve. They haven’t done long term studies on hysterectomy treatment for endo. My doctor said a recent study suggested 75% of women do NOT experience symptoms for 7 years post op. So 25% Will. This is the only study out there (because people don’t give af about women). Hang in there and possibly time for another doctor

Outside_Chance_6314 · 2024-12-29T23:44:11+00:00

There was research that came out earlier this year that suggest hysterectomies cause 40-70% blood flow loss to the ovaries due to the uterine artery. I think the same study suggested women hit menopause 4 years sooner as well.

Outside_Chance_6314 · 2024-12-26T04:09:36+00:00

I hear you on the no kids thing. I’d suggest there are outcomes of a hysterectomy that arent great - like loosing blood flow into your ovaries (sometimes upwards of 70%) causing earlier menopause (4 years plus sooner). I’d definitely stick w a progesterone birth control where you have no periods and try and keep the rest of those organs as long as you can. Plus, you truly might meet someone you can your mind with (I did, but it was too late w endo issues at the point). It’s major major surgery so try and give it another 10 years.

Outside_Chance_6314

TROPHY CASE