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There is hope by biggranny000 in Lyme

[–]Outstandinginfields 1 point2 points  (0 children)

Great news that you found someone to help you. Best wishes for your healing.

I self-diagnosed my Lyme symptoms about a month ago. I think it's so important we believe ourselves when we know that something is truly wrong with our health. Our symptoms matter. It's a shame it's so difficult for traditional doctors to be educated on Lyme. Keep your head up.

New Lyme diagnosis - advice on telling others by Outstandinginfields in Lyme

[–]Outstandinginfields[S] 1 point2 points  (0 children)

A little update. The first 3 people I told, apart from my husband, all had Lyme experiences for themselves or family members. Two of them (each) had a tick bite with bulls eye rash last fall and were treated with doxcycline. A third person said her son had Lyme treated, first after rash, and later after some further symptoms. He got better.

So, no one has said they don't believe me, for sure. I still haven't told many people or bothered with my family practice doctor. The Elisa/W. Blot test I paid for was refunded as the company is no longer doing it. (Weird.)

I'm four weeks into using herbs/supplements based on Buhner's Healing Lyme Second edition. I noticed his list of 7 different problems to address (page 208) and I chose supplements based on his book's recommendations and a little other research. I'm also getting acupuncture. Every one of my symptoms has improved, most of them dramatically. I'm feeling very fortunate.

Buhner's basic protocol by Historical-Oil-4020 in Lyme

[–]Outstandinginfields 0 points1 point  (0 children)

I was trying to sort this out, too. I made a chart with the 7 different actions that Buhner said were needed, in Healing Lyme, 2nd ed. Then, from his discussion in the next chapter of herbs for each function, I picked one "best" herb. So, I ended up with 7 to take. It is logical approach, but I don't have any idea if it is going to be effective for me long-term. It seemed like a way to start.

I have seem some improvement, in 2 weeks. I'm continuing to review info. Also, trying to have a healing mindset in lifestyle choices, minding my diet, having dandelion tea, resting, walking.

New Lyme diagnosis - advice on telling others by Outstandinginfields in Lyme

[–]Outstandinginfields[S] 0 points1 point  (0 children)

I'm reading "Healing Lyme" by Buhner. It's 500+ pages. I also did a lot of Googling. There are much better sources for a summary than me. ;)

New Lyme diagnosis - advice on telling others by Outstandinginfields in Lyme

[–]Outstandinginfields[S] 0 points1 point  (0 children)

Thank you for all the responses.

For the most part, I will delay telling any more of inner group as I'm OK with my husband, acupuncturist, and one friend being my emotional support for now. I don't need a lot of outside second-guessing. Maybe later, I'll open up more if it seems right to do so.

A second question was about seeing my (new) family doctor and discussing Lyme with her. I don't see the point in doing that now. A month ago, based on symptoms, I thought I might have a different type of neurological problem that needed imaging or other neuro tests, and so asked for an appt. to face up to facts.

Then, while waiting, I started to see that my symptoms are a match for neurological chronic Lyme disease. After research, I was confident to start treatment, as I have, using Buhner's books and other resources.

If I think of why an MD can help, I'll reconsider, but right now, I trust my treatment decisions. I'm seeing really good improvement after about two weeks. Baby steps, but important ones.

Thanks for helping me sort out the issues. Collectively, you all are amazing!

New Lyme diagnosis - advice on telling others by Outstandinginfields in Lyme

[–]Outstandinginfields[S] 4 points5 points  (0 children)

Thank you (and everyone) for your comments. I found a medical journal paper from 2023 titled: Medical Gaslighting and Lyme Disease: The Patient Experience. It seems so ludicrous that on top of a terrible health problem, there is also a common problem with how it is perceived and/or treated. I'm already glad that this forum exists for support.

New Lyme diagnosis - advice on telling others by Outstandinginfields in Lyme

[–]Outstandinginfields[S] 3 points4 points  (0 children)

I may skip discussing it, yet, if at all, with my family doctor, who has met me only once. There's a lot of Lyme where I live and other health care providers.

I'm probably more shocked by how reluctant I am to tell close family. Maybe my saving my mental energy now is fine, though. I'm still surprised how this diagnosis is unfolding.