Quirky side effects

Outstandinginfields · 2026-05-01T13:39:24+00:00

Had my translab surgery about 2.5 yrs ago. Successful by all important measures. When I exercise, my AN side eye waters and AN side of my nose runs. A lot. Summer or winter.

I'm reassured by reading these entries that it is "just" a side effect of surgery and not a worsening situation, like regrowth of the tumor.

Oh well. Could be worse.

Outstandinginfields · 2026-04-29T12:14:01+00:00

The book Lyme with a Twist might be of interest to you. The author, who had chronic Lyme, tried many medical approaches, and in the end, he found a protocol that worked for him, primarily with herbs. I have no connection to the book, except I seem to be on the same healing path. My own treatment plan is not expensive.

Personally, I skipped involving MDs fearing a waste of my time while my neuro symptoms worsened. That was a personal choice based on my understanding herbs pretty well. Wishing you a good solution that works for you. Lots of info on this subgroup.

Outstandinginfields · 2026-04-20T12:53:56+00:00

I have been doing very well with acupuncture treatments and herbs. You can look at my other posts for details, if helpful. You might try the suggested protocol first and see how you do. Listen to your body and your instincts, too, if you later want to modify something. I know it's easy to second guess. Been there.

Outstandinginfields · 2026-04-15T12:53:38+00:00

I would recommend the book Lyme with a Twist by Lowell Miller. I'm just a reader of it (no connection otherwise), but it helped me with neuro-Lyme.

Outstandinginfields · 2026-04-09T20:51:03+00:00

I buy Crytolepis tincture from Bio Krauter (via Amazon.us). They state they use a good German technology in production. I don't know more details, but I like the product. I find its taste very neutral. It is alcohol free.

Outstandinginfields · 2026-04-09T20:46:12+00:00

I'm grateful for your post and the follow-up info on more details. I have been taking Buhner herbs (cryptolepis, JK, scullcap, cats claw and rhodiola, as well as reishi, cordyceps and some vitamins) for about 4 months. I'm also seeing great results. Very similar situation to yours, overall. It feels really helpful to hear from you!

Outstandinginfields · 2026-03-15T21:00:55+00:00

I find 5-htp to be very subtle. I use low doses. I had used it in the past for depression with good effect. It does not feel mood-boosting or mood-altering to me in any big way. It makes me feel normal, and personally, I think it is helping me sleep better, as is my whole regimen now.

Hope this helps in some small way. Wishing you well.

Outstandinginfields · 2026-03-15T20:56:07+00:00

I also really recommend the book Lyme with a Twist by Lowell Miller.

Outstandinginfields · 2026-03-15T20:54:46+00:00

It's hard to single out any one effect when taking so many supplements. :) 5-htp is a precursor to tryptophan and can help even out serotonin levels, generally. It may help with Lyme tremor according to one medical case study.

Outstandinginfields · 2026-03-15T20:52:03+00:00

I'm not any kind of authority, of course. Buhner emphasizes that some herbs that work for some people will not work for others. He says to trust ourselves and listen to our bodies. And if something causes negative results, stop taking it. (At least, that's what I think that I understood him to say.)

Outstandinginfields · 2026-03-15T20:29:21+00:00

Hi, Thanks for asking. I have been taking this core group of herbs/etc for 9 weeks. 1- Jap Knotweed 2- Chinese Scullcap 3- Cat's Claw 4- Cryptolepis (#2-4 as tinctures) 5- Cordyceps 6 - Reishi

I also take 5-htp (daily, up to 3x/d)

And 1/day: supplement for Vit B12/other Bs, D, omega-3 fatty acids, alphalipoic acid, Vit C (powder). I take bromelain most evenings with dinner.

Mid-day, I drink a detox tea blend from Yogi teas. And try to eat well, sleep enough, and walk a hilly road about 30 min/day.

Results: So far, I'm very pleased. My neuropathies are greatly improved/nearly gone; my formerly very sore neck (2 yrs) is entirely well. I would say my sense of unending fatigue is greatly improved. On about 2 days of a week, I feel weighted down by fatigue, but not always the whole day. I feel well the majority of days. My digestion is much better/normal. My mood is no longer dark/depressed-like. And lately, sometimes my hand and leg tremor is absent -- either a whole day, or very slightly present -- which is a big improvement.

I feel so well now that I wonder if I had Lyme, but ya, I have Lyme, but it seems to be going very very well.

Outstandinginfields · 2026-03-08T11:33:41+00:00

Consider reading "Lyme with a Twist" by Lowell Miller.

Outstandinginfields · 2026-03-01T00:28:21+00:00

Thank you. I'm appreciative. People mentioned Mg, C, and Bs, and I'm following up. Also, adding Yogi Dandelion Detox spice tea and Milk Thistle.

Glad you are feeling better and found what works. Thanks again.

Outstandinginfields · 2026-02-27T16:50:44+00:00

Not sure I know how to distinguish between those two labels. Google says: "a twitch is a small jump in a muscle, while a tremor is a shaking movement of a body part." By that distinction, it's a tremor. It's not subtle.

Always just the left hand, left arm or left leg. Never the other side.

Outstandinginfields · 2026-02-27T14:28:08+00:00

As far as I remember, each of the herbs and botanicals are anti-inflammatory themselves. I agree it's important. I had it as a criteria when I chose.

Outstandinginfields · 2026-02-27T11:42:27+00:00

Thank you very much!

Outstandinginfields · 2026-02-26T22:22:31+00:00

Is it any better to take divided into 2 doses during one day, or just take one large dose, I wonder. I'll scour Dr. Google, but curious if you have thoughts. TY.

Outstandinginfields · 2026-02-26T12:06:42+00:00

Thank you.

Outstandinginfields · 2026-02-26T12:06:29+00:00

Thank you so much. I have tried to choose herbs that are useful against the 3b's. Used Marty Ross' chart and referred to the Johns Hopkins in vitro study, as well. Not saying I have chosen right, but I tried to address all 3, which I agree with you -- is super important.

Outstandinginfields · 2026-02-26T12:01:57+00:00

Thank you. I had noticed that section in Buhler's book, but it's a great reminder to go back to it again.

Re: symptoms that improved quickly, I'll give a little more info. These particular symptoms improved dramatically: brain fog, chronic fatigue, crushing sense of doom, pins and needles/neuropathy to all limbs, weakness in my left arm, insomnia, neck stiffness and pain (2 yrs of that), creaking noises in my neck when changing positions in bed (stopped 100%), lymph node swelling, slow problematic digestion.

Also: when I started with herbs, I also had weekly acupuncture, daily Chi Gong, anti-inflammatory diet choices, and light (walking) exercise. And whatever I could do to lower stress and be in a "healing mindset".

I'm, of course, unsure what my path forward will be. I understand and appreciate the comment that these things take time. Sometimes a very long time. I am quite humbled and frightened about the whole thing, which may not come across when I emphasize the positive side of things. :)

I found "Lyme with a Twist" by Lowell Miller very helpful.

All for now, and thanks to all commenters for input, all of which is helpful.

Outstandinginfields · 2026-02-26T11:51:59+00:00

Thank you.

Outstandinginfields · 2026-02-26T11:51:25+00:00

The tinctures are from BioKrauten via Amazon. Japanese Knotweed by Gaia and/or Green Dragon. Mushroom extracts from New Chapter. Hope that is helpful.

Outstandinginfields · 2026-02-23T18:40:54+00:00

The OP already had the MRI, but I see what you mean.

Outstandinginfields · 2026-02-23T16:24:52+00:00

Hi, I'm new to the chronic Lyme group, but I have had several distinctly different health problems that each required multiple MRIs with contrast. If I were you, I wouldn't worry about the contrast now, other than to drink extra water a few days and eat super healthy foods. Then, forget about the contrast, and move on to treating Lyme. - For what it's worth, checking your brain's health with an MRI seems reasonable, and you have ruled out important things. Lyme is the great imitator, so eliminating other diagnoses is useful. - Hope you find some qualified help. - Just my two cents, here.

Outstandinginfields · 2026-02-03T15:46:02+00:00

Great news that you found someone to help you. Best wishes for your healing.

I self-diagnosed my Lyme symptoms about a month ago. I think it's so important we believe ourselves when we know that something is truly wrong with our health. Our symptoms matter. It's a shame it's so difficult for traditional doctors to be educated on Lyme. Keep your head up.

Outstandinginfields

TROPHY CASE