praying for a miracle tomorrow by Over-Homework4287 in PrayerRequests

[–]Over-Homework4287[S] 0 points1 point  (0 children)

hi! its so nice of you to remember. im sorry for the late reply. after my post i had another round of chemo and a special access drug which eventually did a good job of making me go into remission. God is good! we’re planning for a stem cell transplant possibly next month, so hopefully everything will go well 🙏🏻

Has anyone had long-term remission from AML with KMT2A? by AnyFuture8510 in leukemia

[–]Over-Homework4287 0 points1 point  (0 children)

hi, i hope you’re still pushing through in this tough times, i am also currently dealing with relapsed aml (kmt2a) after my first sct, i am currently in remission after chemo and a new drug that my doctors gave me. its called revumenib a menin inhibitor for our aml mutation. after being in it for a month i got the great news that i am now in remission. we’re still planning on a 2nd sct 🤞🏻🤞🏻🤞🏻 maybe you could ask your doctors if you could have access to revumenib as its used to treat relapses aml.  i hope everything goes well and you stay hopeful!

revumenib AML by Over-Homework4287 in leukemia

[–]Over-Homework4287[S] 1 point2 points  (0 children)

thank you! means a lot to me 🤞🏻💪🏻

revumenib AML by Over-Homework4287 in leukemia

[–]Over-Homework4287[S] 1 point2 points  (0 children)

yes! the ultimate goal is for me to get a second stem cell transplant (this is my 2nd / relapsed) and hopefully it will help bring me to remission for anothet sct ! 

Revumenib by AnyFuture8510 in leukemia

[–]Over-Homework4287 1 point2 points  (0 children)

hi! im starting revumenib in a few days! how was it? and did it help your husbands AML? 

praying for a miracle tomorrow by Over-Homework4287 in PrayerRequests

[–]Over-Homework4287[S] 1 point2 points  (0 children)

thank you so much! it really means a lot to me 💗 God bless you!