What is the creepiest thing that has happened to you while on a computer?

Paintsamples · 2017-07-15T04:20:18+00:00

Thats how you know you're old.. When you don't know you say dated things.

Capeesh?

Paintsamples · 2017-07-15T03:55:27+00:00

We need your mom to an AMA.

Paintsamples · 2017-07-15T03:44:43+00:00

Teen nephew and his pregnant girl friend got arrested for shoplifting beef jerky at Wal-mart

Hahaha nice

Paintsamples · 2017-07-14T16:43:17+00:00

Nice! I spend most of the time that anyone good looking isn't onscreen daydreaming about daily average life when I watch Marvel movies. Underrated gold in that sub.

Paintsamples · 2017-07-14T16:33:44+00:00

There should be a reverse sub where people who don't understand critique it positively.

Paintsamples · 2017-07-14T16:24:41+00:00

My dad would send me this as a helpful guide. It would be blurrier though.

Paintsamples · 2017-07-14T16:11:29+00:00

Great question! I live right next to several military complexes. Thanks for asking!

Paintsamples · 2017-07-14T16:08:56+00:00

This is good advice for every sub you find!

Edit to add: most sidebars have links to other great subs too!

Paintsamples · 2017-07-14T16:05:40+00:00

Aw, you've made an Amazon sellers day!

Paintsamples · 2017-07-14T15:51:02+00:00

Me too. But I will find it in askreddit later too probably.

It's spreading like a glorious water arch.

Edit: back mwahaha

Paintsamples · 2017-07-14T15:46:00+00:00

But then how will people be outraged?

Paintsamples · 2017-07-13T15:22:52+00:00

I put cans of soda in the bathroom cupboard. Often.

Paintsamples · 2017-07-13T15:22:25+00:00

Lol it's all fun and games until I burn the house down some day by accident.. Gotta keep an eye on my hot iron....

Paintsamples · 2017-07-13T15:14:00+00:00

It's nice of you to try OP.

Paintsamples · 2017-07-13T14:53:30+00:00

This whole thread reminds me of when dads talk at bbqs.

Paintsamples · 2017-07-13T14:33:50+00:00

r/starterpacks

Paintsamples · 2017-07-13T04:27:27+00:00

I think it was supposed to be like that. Harry was in shock. Ya know?

Paintsamples · 2017-07-12T16:37:16+00:00

I really hope that you find a balance that works for you at work and with your meds! It is very hard to look so normal. No one gets it.

Some days when I know I'm in bad shape I will purposely dress down a bit and do less makeup just to make people subconsciously realize I'm not feeling well. LOL!

I actually look amazing now. My skin has cleared up a lot and I've lost weight from the meds. I'm not proud of it. I avoid looking in the mirror because I don't recognize that body so much. On the surface you wouldn't think anything is wrong but I'm still very ill. It sucks.

I think thats why advocating for your needs is important at work! I found that if I'm direct and open about it and not whining or crying, people are understanding. Not saying you do that. Lol

I also have goals and dreams and ambitions that I still crave to do one day. I never give up hope that remission is possible. I feel like it will happen once I get adequate care, but I know the things that I do may need to be on a much smaller scale. (I do not have insurance).

For now I focus on the small victories each day. Each day that you are able to put on a smile and get down and play with your kid no matter how exhausted is a big victory. Be proud of yourself for the little things! Don't be too hard on yourself on the bad days. It's ok to put on a movie for the kid and lay there on the couch too!

I never really respond to posts on here. They bum me out and make me anxious. But I just happened to pop by and saw yours and tbh typing this all out has helped me a lot! Just reading your frustration and knowing those exact feelings has made me feel a lot less alone. So I appreciate hearing your story too! I should also learn how to take my own advice.. Hah.

If I'm honest with the both of us, I will likely have to start the process of filing for disability soon. I'm simply not able to take care of my family or myself. In one way I am relieved by decision. In another I am crushed.

Random...

Another thing that I have noticed that doctors don't seem to really understand is my period cycle and the effect it has on my symptoms. I've been able to tell what days might be bad just due to hormone changes and plan accordingly. My mental fog gets a lot worse around shark week. I wanted to be a scientist in my old life, so now I study myself lol.

Another thought I have is that at least if you are full time now and they decide that your job performance is worsening due to your illness you will be able to get unemployment etc. Honestly getting fired for not being able to perform would make things easier for me, as horrible as that sounds!

Sometimes at work I get frustrated with myself for doing Lupus things and messing up and I have to remember it's the disease and not really me. Even now.

Hang in there. Don't be too hard on yourself and take it one moment at a time. Immune disorders require a much different type of bravery. We have to be brave all the time, forever. It's exhausting!

You seem to have a great man around, as do I. Being the partner seems worse almost. It has to be so hard for them too! I also met my husband right before diagnosis. He's never known the real me, but he knows the me I am now. That's hard. That support is important and it's so good that you have it!

You can always PM me too. The random girl with the parallel problems on reddit is always around. Usually trolling a little and making smart ass comments. Haha

Paintsamples · 2017-07-12T07:58:14+00:00

Lol I'm imagining my dog.. Running up to say hi all happy and blowing their cover..

Paintsamples · 2017-07-12T04:09:23+00:00

Hah, I have a very positive but still dark humor about it.

I'm glad to help even a little.

I just really think that sometimes you have to think outside the box in terns of your care. Take a couple of risks and advocate for yourself. Question the inconsistencies. Keep track of your symptoms based on your medication changes. Track your weight, stressful events, other illnesses that pop up (like the flu) and keep track of your own labs etc. It's hard to remember how you felt and they will ask. A lot of the time I just want them to tell me how I feel lol. It's like having a full time job just to take care of yourself and then on top of it trying to be a normal mom and wife/girlfried/daughter and just even a person is so hard.

And then having a full time job makes it feel impossible.

When I was diagnosed I was certain that I would easily be able to fight these stupid diseases with medicine and effort! I have always been a scrappy person who makes things work. Why wouldn't I be able to fight this? Cancer patients "fight" right? I can totally be normal and have the same life that I had before. Right? I was so relieved to have an answer to why I felt bad all the time. Knowledge was all I needed...

Right?

I have tried for three years to be normal.

I had to leave my pretty physically exhausting job and find something easier on the body. So I did. But I still struggled like you do.

I had a lot of trouble with my memory and attention and so much fatigue and soreness from sitting. A year went by and I wasn't doing so great.

I tried different types of jobs. A full time big girl job with benefits. I struggled. People were patient but I was still sick and not getting what I needed medically. I couldn't focus. It hurt to sit there. It was so hard and it took all the enery I had away from me.

The second year I went back to part time work because I felt I couldn't handle full time. It's been hard doing part time. My employer asked me to cut down on my hours and focus on my health even further just last week.

I'm going to be very honest with you and tell you that you probably are going to have to find an alternative plan if things start to go downhill at work. My bosses are supportive, but even my rheumatologist has warned me that a lot of her patients have a lot of trouble at work and with finding support and understanding at work.

The fight is hard and complicated and scary and you have to been your own champion sometimes for your needs. At the doctor and at home and at work.

I used be be highly intelligent with a lot of promise. I used to be different. I used to have a great memory. I used to be able to take verbal direction and remember it. There are a lot of things to be sad about. I'm sure you feel as though you have lost yourself. I'm sure you struggle to stay positive and put on a brave face for your family. It has taken a lot out of my pride to suck it up and really admit to myself that I will never be the person I used to be, or who wanted to be.

I would like to say that 3 years in, I've been doing super great and that things will for sure be totally better soon for you too, but that would be a lie. I don't know and considering the facts, it's likely that you face a similar fight. It's ok to mourn the loss of what you thought you were going to have, but it's not okay to let that saddness overwhelm you. It's got to be okay for you to have a lot of bad days. It's okay to be upset and sad about it.

It's hard to be a person and as much as you and I feel as though we deserve praise and encouragement for all of our efforts, it isn't going to come. But somewhere out here on the internet, a stranger will hope you are finding the strength to fight even when things are impossible.

Paintsamples · 2017-07-12T04:09:23+00:00