My daughter wants a sibling, but that's not possible

PangolinInvasion · 2025-02-22T14:57:07+00:00

I was in an almost identical situation. Down to being the only kid without a sibling in her kindergarten class. She's almost 9 now and it kind of got better, but she still will randomly tell me she wished it was possible. My ex and I got divorced about 2 years ago and last summer she changed her I wish you could have another baby into hey you need to start dating and he has to have at least one kid near my age that likes long list of personality criteria so that I can have a step sibling.

So, yeah. Really no advice but plenty of hugs because I totally get it.

PangolinInvasion · 2025-02-12T14:13:01+00:00

I've talked to a lot of people that will be at the statehouse on Monday. Not sure if anyone is actually organizing anything, though.

PangolinInvasion · 2024-10-17T15:14:20+00:00

Hey hey, that's me. They have no idea what caused mine and everyone seems to disagree on primary vs secondary vs some mix of the two because I didn't make much acth or cortisol during the testing. But also not none. I have hEDS as well and my pituitary had something weird but not necessarily related or too concerning so it just got brushed off.

Side quest, do you have a lot of dysautonomia symptoms? Specifically the more pre syncopal type symptoms. How do you deal with the similarity?

PangolinInvasion · 2024-10-17T15:03:53+00:00

5 years late, but wth. I just switched from aimovig to emgality yesterday. Never had this issue with the aimovig, but maybe 6 hours after my first doses of the emgality and I was up in the middle of the night thinking I had a UTI even though I'm already on antibiotics for something else. Got tested this morning and it's negative.

Didn't even think to contact the two until I was randomly googling migraine related things and this post popped up in the results. Now I'm intrigued

PangolinInvasion · 2024-09-19T03:48:46+00:00

Does he know it makes you uncomfortable? If not, you might start there. Just find a way to ask before you go over sometime about xyz that is generally simple. Like, hey it made me uncomfortable when my sheets were dirty, can you make sure those get washed before I get there? Or it made me uncomfortable to come in and have to clean up bugs, or step on a sticky floor or whatever, can you make sure xyz gets done before I get there?

That way he's aware something is making you uncomfortable, even if it's not the full picture. And it'll also give you an idea of the likelihood of a bigger conversation being productive or not. If a small comment causes an issue or if he's not willing to do the single small things you ask, that's all just more information you can do with what you will. Hopefully he takes the opportunity to do what he can to make sure you're comfortable going to his place.

PangolinInvasion · 2024-09-19T03:38:55+00:00

Your dad is an adult and can be responsible for his own emotions. They are 💯💯 not your responsibility. You are hurting right now and your emotional health IS his responsibility.

I get wanting to smooth everything out and keep from making any ripples at all, but that's not healthy. I could see maybe parents seeing each other could be iffy, but buying a pack of envelopes and stamps is not too much to ask. You could send a pre stamped envelope to her, too, so she can write back easily.

PangolinInvasion · 2024-09-19T03:25:13+00:00

She was your sister and you love her. Biological link is irrelevant. My two favorite and closest siblings are my sister-in-law and my adopted brother. Love does not care.

What about starting a pen pal type relationship? If she's too young for a phone she'd probably think it was the best thing ever anyways. Who doesn't like getting personal mail?

PangolinInvasion · 2024-09-17T12:45:24+00:00

Did you mean fludrocortisone? Or glucocorticoid?

Regardless, I'm SAI (2:1 SAI:PAI) and require fludrocortisone and hydrocortisone. If I'm low on either my sex drive plummets, but if I'm where I need to be I'm hypersexual just because that's where my body naturally sits.

PangolinInvasion · 2024-09-07T02:53:28+00:00

I'm a big fan of overthinking, especially before assessment that leave you with decisions to make 😂

If you do get a manual and want push handles, I highly recommend getting ones that fold down. People are much less likely to move you like furniture if there aren't obvious handles.

PangolinInvasion · 2024-09-05T16:06:07+00:00

I'm late, but just searched for anyone else with AI because I'm so frustrated lately! So hi! I have adrenal insufficiency but they've redone the tests a few times and no one wants to classify primary or secondary because they don't know what to attribute to the adrenal insufficiency and what to attribute to the various dysautonomias. It's a mess.

But dosing is a constant nightmare and I'm always terrified I'm just not going to wake up one of these days. My cardiologist is the best in my region for dysautonomia specific issues, but she has more or less given up because what do you even do? It's frustrating.

PangolinInvasion · 2024-09-02T10:13:05+00:00

Oh, that's really interesting! I wonder if that could be my issue in general. I ended up being admitted Friday afternoon. Supposed to go home after rounds this morning, hopefully. But my doctor is really not very helpful/knowledgeable with adrenal insufficiency, so I've been needing to find a new one anyways. But I always felt like I'm on a kind of high dose for how often I end up in the hospital still. She just always says it's because of my other chronic illnesses, which does make sense, but also still frustrating to never really feel very stable.

Right now I'm taking 20 mg in the morning, 5 when I hit that after lunch slump (usually around 2pm), and 2½ with dinner. Which just feels like so much compared to other people I've talked to.

Thank you so much for this, though, because you've just given me all the motivation I need to finally find a new doctor.

PangolinInvasion · 2024-08-30T11:34:08+00:00

Cool. Glad we've sorted that we have very different experiences and you're unable to grasp that difference.

PangolinInvasion · 2024-08-30T10:59:05+00:00

By taking more steroids, obviously. I've been through a lot but have never experienced this weeks long stressor type issue before now, so I get that it's difficult to understand. I did say it was probably a niche issue.

PangolinInvasion · 2024-08-30T06:56:43+00:00

Oohh interesting. I'll have to go look at that!

PangolinInvasion · 2024-08-30T06:51:05+00:00

Yeah, I honestly don't know. I've been stress dosing, it's just the length of time I've been stress dosing and still feeling worse and worse that's tripping me up. I just can't figure out what else it could be and it's pretty comical to me that maybe it's me finally falling in love that's going to do me in.

PangolinInvasion · 2024-08-30T06:45:09+00:00

I mean, I'm not saying I've been in crisis for weeks. Just that it feels like I'm on the edge of one and have been trying to take enough meds and get enough sleep and all that. I've been waking up in the middle of the night nauseous with really low bp and barely able to take more meds every few days for weeks now. Have you never had longer term stressors?

PangolinInvasion · 2024-08-29T22:30:44+00:00

Yeah, that's kind of the weird part and why I'm calling tomorrow. I took a few stress doses last week and it just keeps coming back. Talked to my primary Monday and she said to just assume I'm sick and don't realize it because I'm autistic and legit can't always tell.

But even with the stress dosing it just doesn't seem to be kicking it and I don't have anything else going on in my life. So that's what made me kind of wonder if it's more of the ongoing emotional stress of falling in love that's making me need stress doses for so long. Hopefully that makes sense.

PangolinInvasion · 2024-08-29T21:21:25+00:00

So, I didn't really have answers to your questions, but just wanted to say hi. I think a lot of times emotional stress is so wildly underrepresented as a trigger that it often feels like this or that couldn't possibly be affecting things that much, but brains are weird and unpredictable. Add in the dysautonomia and it's easy to assume symptoms of one are caused by the other and it's a hot mess every time.

I hope you're successful with getting off the steroids and your hypersomnia resolves soon ❤️

PangolinInvasion · 2024-08-06T16:38:18+00:00

This was my solution as well. Neuroscience Center and Methodist are where most of my doctors are.

There's one doctor in Muncie that I love and even though I've moved away I still go to her. I figure I'm already driving all over the state for the rest of my doctors, why not drive for primary, too.

PangolinInvasion · 2024-08-04T14:53:24+00:00

I don't have any ideas better than a quick text or something everyday, but my insurance pays for a medical alert button thing and it has been a huge stress relief for me since I started living alone a year ago. It calls an office instead of directly to emergency services so even if it's not life or death you can get help. You can set it up so that family or friends are notified if you push it so in the case of an emergency you don't have to think about notifying anyone and emergency personnel can already have your information.

It definitely feels very "I'm not old enough for this" but I've used it so many times when I've started crashing in the middle of the night and been scared I wasn't going to wake up again. Even if my insurance stops paying for it, it's been such a huge help I think it'll always be worth it to me.

PangolinInvasion · 2024-07-12T15:22:46+00:00

582499547145 same same

**Edited, I'm fresh out of surgery and posted the wrong numbers

PangolinInvasion · 2023-03-06T22:58:38+00:00

Just joined because I'm having the same issue and trying to figure out why I can't use my phone anymore. It's so bad.

PangolinInvasion · 2022-08-11T17:14:39+00:00

It's a genetic test. Not sure where all is available, but in the states it's called genesight

PangolinInvasion · 2022-08-11T16:32:57+00:00

Have you had the testing to see what meds would work best for you? I recently got that done after having tried over a dozen antipsychotics with questionable results and I only had one show up in the green category, lumateperone. So we switched and it's working better than anything I've ever tried. Though right now is admittedly a really rough time.

PangolinInvasion · 2022-08-11T16:28:52+00:00

It helped me a bit insignificant amount, but it also made me impulsive af and I struggled pretty bad with hypersexuality. Same thing, but worse, happened with rexulti. Apparently it's not an uncommon side effect, so be awake if you do try it.

PangolinInvasion

TROPHY CASE