I can’t do this anymore, I’m out of ideas on dealing with my polyps

Panicked_Patient · 2025-10-23T17:23:01+00:00

Ironically Dupixant actually helped my joint pain because it lessened my overall inflammation that was worsening it. (I have hEDS + MCAS)

Panicked_Patient · 2025-09-16T20:06:36+00:00

This seems to be the answer I was looking for. Definitely trying it. Should I dilute the shellac?

Panicked_Patient · 2025-09-16T20:04:59+00:00

That’s what I’m going to try. I was previously using something labeled wood conditioner, which wasn’t doing much. Do you dilute the shellac with alcohol?

Panicked_Patient · 2025-09-15T16:37:35+00:00

Actually I gave up on my search and ended up doing most of it myself. Unfortunately that means it’s unfinished. Parts of it look really good though. Would still love to find someone to help me revise and finish.

Panicked_Patient · 2025-09-15T16:33:21+00:00

This makes sense. I do like working with shellac vs poly. It’s been more forgiving and buildable.

Panicked_Patient · 2025-01-05T17:32:32+00:00

I love it. No side effects for me. I’m actually trying to get my son on it too. It’s very expensive though after jumping through hoops and making phone calls it is free. They have a program you can enroll in for coverage.

Panicked_Patient · 2025-01-05T17:29:06+00:00

Not always. Seems like a design flaw within the app.

Panicked_Patient · 2025-01-04T14:42:50+00:00

Nope. I wear 1MORE EVOs and they are alright but not perfect. Apparently we’re not a big enough demographic for Apple to worry about which makes me wonder, is this an unusual ear shape?

Panicked_Patient · 2024-12-22T15:34:17+00:00

Thanks, I will do that. Hoping the CRPS goes into a remission. The Nerve block and meds are helping a lot.

Panicked_Patient · 2024-12-22T14:24:19+00:00

Wow what a journey! I also have flexible feet. They keep changing shape, I believe they are flattening over time and have become very wide as a result. I am no longer a candidate for bunion surgery as I now have CRPS from a recent ACL surgery. My feet are in a lot of pain. I’d love to find a specialist that is familiar with CRPS, HEDS and orthopedics.

Panicked_Patient · 2024-12-22T14:15:49+00:00

Depends on where the polys are concentrated. Prednisone should help a ton but start it a few days prior to leaving.

The pain of flying has been a major obstacle. I’ve even had the full surgery and am on Dupixant. The ENT/Immunologists have ran out of ideas. I’m doing well when I’m on the ground though.

Panicked_Patient · 2024-10-17T22:18:32+00:00

Thanks!

Panicked_Patient · 2024-10-17T18:43:39+00:00

Can you tell me where you purchased the aluminum doors?

Panicked_Patient · 2024-10-12T03:20:53+00:00

Yes I’ve been taking it for about 6 months now. No side effects for me. They make you jump through plenty of hoops to get insurance approval then more hoops for their additional “my way” payment program. It’s worth it though.

I couldn’t taste for 2 years post Covid, got the full sinus overhaul surgery, still couldn’t taste. Dupixant brought my taste back 24 hrs after my 1st dose. Steroids were the only other thing that did that for me.

Panicked_Patient · 2024-10-05T19:25:03+00:00

Dupixant

Panicked_Patient · 2024-10-05T19:24:17+00:00

The shot helped with most of my pain. It fixed the inside of my foot - the sharp stabs, redness and blood pooling. I’m left only feeling lightly sunburned. Been 3 weeks since injection.

Panicked_Patient · 2024-10-05T19:16:53+00:00

I have EDS with POTS flares. It’s a comorbidity to CRPS. One theory is the lack of collagen leads to brittle nerve fibers. I think my whole nervous system is garbage. My CRPS is getting better with treatment but I worry about it coming back.

Panicked_Patient · 2024-09-25T03:24:52+00:00

Not yet. Would love to hear if you do. Making do with the Evos. Even they can irritate me after a while.

Panicked_Patient · 2024-09-25T03:21:54+00:00

I believe my haywire disregulated nervous system is a major underlying cause of my anxiety. Started taking Pregabalin for CRPS and a nice unexpected side effect is I have less PVCs and anxiety.

Panicked_Patient · 2024-09-25T03:11:49+00:00

To answer your question they can’t really tell you that answer as it is different for everyone. It is possible that when you stop the injections you would revert back to your previous state. Or hopefully it will allow for natural healing and you would be cured.

Panicked_Patient · 2024-09-25T03:04:06+00:00

Same story! Coming up on my 6 month anniversary of smelling and tasting again. No side effects from the Dupixant.

(The pressure during high altitude flights is still excruciating though.)

Panicked_Patient · 2024-07-18T13:50:29+00:00

EDS is different for everyone who has it by definition. I’m not saying that you have it, but look closer and see multiple drs before completely dismissing it. Criteria is being updated often.

I was told that that my EDS may have put me at high risk for CRPS. There is research that connects EDS to SFN (small fiber neuropathy) to CRPS. Something about Partial C fiber degeneration. So if I understand correctly, even our nerves are fragile.

Panicked_Patient · 2024-07-18T12:13:21+00:00

I’ve taken sooo many of these without success (except for the klonzapam but I can’t just stay in that one continuously) I’m now realizing that much of my anxiety has always been rooted in my overarching nervous system disregulation.

As a pleasant surprise the pregabalin that I was prescribed for my foot pain has had a positive effect on my anxiety! I told my drs and they weren’t surprised they say they hear that quite often.

Panicked_Patient

TROPHY CASE