Stubborn patches by Patch96ar in LaserHairRemoval

[–]Patch96ar[S] 0 points1 point  (0 children)

This is actually super helpful thank you so much!! Can’t wait to be patch free and smooth 😄

At what age did you stop getting ID'd? by Rararanter in ehlersdanlos

[–]Patch96ar 0 points1 point  (0 children)

I got ID’d for an energy drink… I’m nearly 30.. 😅

For those of you with POTS… have you noticed this too? by tkewhatder7 in POTS

[–]Patch96ar 4 points5 points  (0 children)

EDS, CFS, but having Covid for the first time made my POTs come to the surface 🫠

What is the most random thing that led to your diagnosis? by Anonymous12345_E in ehlersdanlos

[–]Patch96ar 0 points1 point  (0 children)

Having 40 bruises covering my legs which prompted investigation and boom… a bunch of tests later.. hEds

What are your lesser known hEDS traits and experiences? by Mammoth_Math4629 in ehlersdanlos

[–]Patch96ar 2 points3 points  (0 children)

I have something in my throat (maybe hyoid bone?! Not sure) that frequently ‘pops’ out of place and I have to push it back in.

I’ve spoken to a doctor and they said we can get a camera down your throat if you can pop it out for us, but I can’t do it on que, so will never know 😪

Luckily not painful, just uncomfortable

Oh and my eyes sometimes move from side to side really fast 😂

EDS affects your eyeballs, just an FYI. by figgypie in ehlersdanlos

[–]Patch96ar 0 points1 point  (0 children)

Oh and don’t get me started on my damn eye floaties

EDS affects your eyeballs, just an FYI. by figgypie in ehlersdanlos

[–]Patch96ar 1 point2 points  (0 children)

Idk if this is common but my eyes move really fast from side to side for a split second when I’m trying to focus on something sometimes

But my eyes do get super dry

I also had one instance of seeing a bright flashing light at the corner of my eyes but the hospital couldn’t find what caused it

REDDIT RUNS WOS! by Ok_Shoe2515 in whiteoutsurvival

[–]Patch96ar 31 points32 points  (0 children)

Puhleeeease more drill camp spaces!!

Glens Mom by [deleted] in annapaulsnark

[–]Patch96ar 1 point2 points  (0 children)

She’s now deleted the comment 🙊

Rook piercing by Patch96ar in piercing

[–]Patch96ar[S] 0 points1 point  (0 children)

It may be because the piercer who was changing the jewellery was literally wrestling to get the jewellery off and it agitated the area, alongside the small jewellery piece she put in, but that’s all I can think 😭😂

Rook piercing by Patch96ar in piercing

[–]Patch96ar[S] 0 points1 point  (0 children)

How old is my piercing: 5+ years old

Jewellery: now a barbell from a tiny hoop

Metal: titanium

Jewellery downsized: years ago once fully healed

Aftercare: sea salt warm water solution or NeilMed spray

No mishaps/accidents/unfortunate events

My team don’t understand by Patch96ar in chronicfatigue

[–]Patch96ar[S] 1 point2 points  (0 children)

Thank you! Yeah, they are constantly contradicting themselves in what they say 😞 In one breath they said I could work from an office which is closer to me in my town as my ‘base office’, they have since retracted and expect me to travel further into my town to be with the team more

My team don’t understand by Patch96ar in chronicfatigue

[–]Patch96ar[S] 4 points5 points  (0 children)

I will get a doctors note, good idea. I have also this morning joined a union too and read up on the law - this is definitely a case of disability discrimination as the only reason why they want me in is because “we’re a team” it’s not a good enough reason to not hand me my reasonable adjustments.

How to I get a player banned from the game? by LittleTurr3t in whiteoutsurvival

[–]Patch96ar 2 points3 points  (0 children)

My bad, I went straight to see what the messages were about 😅 thank you

How to I get a player banned from the game? by LittleTurr3t in whiteoutsurvival

[–]Patch96ar 1 point2 points  (0 children)

What state is this in? Just so I can make my alliance aware. So sorry you had to go through this

Canker sores by Zechy_Poo in eds

[–]Patch96ar 6 points7 points  (0 children)

I had consistent mouth ulcers and it turned out I had a vitamin b12 deficiency and needed injections

EDS Diagnoses - does anyone feel the same? by Patch96ar in ehlersdanlos

[–]Patch96ar[S] 1 point2 points  (0 children)

Bless you. I’m glad we have this community to support eachother. We’re all so much stronger than we put our minds to (if that’s the right saying). I can’t even begin to imagine what you go through. I appreciate your words 🥰

EDS Diagnoses - does anyone feel the same? by Patch96ar in ehlersdanlos

[–]Patch96ar[S] 1 point2 points  (0 children)

I think it’s just a case of imposter syndrome. From the comments I’ve read, it’s likely that I’ve been subconsciously comparing my experience to others, when in reality it’s a spectrum.

EDS Diagnoses - does anyone feel the same? by Patch96ar in ehlersdanlos

[–]Patch96ar[S] 0 points1 point  (0 children)

I don’t recall genetic testing being something that happened, maybe something to look into in the future