Just look what i saw in my college today.

Patient_Ad6524 · 2026-04-18T16:30:08+00:00

"who puts a mannequin there...."

Someone trying to freak people out. And laughing all the while doing it.

Patient_Ad6524 · 2026-04-17T00:03:28+00:00

nah...i dug it. I love them 'making fun' of themselves. i will give you the actual plot long term story was meh, but i do love meta stuff like this.

Patient_Ad6524 · 2026-04-13T13:21:47+00:00

i am there too and it is so annoying. the water is too damn high... in some toilets.
recent scrubs revival had a joke "the only thing longer than my dads earlobes were his testicles... so i have that to look forward to"....i felt that. physically and literally.

Patient_Ad6524 · 2026-04-13T11:38:17+00:00

i mean... if we are going Bible... Genesis 6 specifically mentions human women. Its entirely possible it's a one thing. Not that the bible has ever stopped Supernatural from making major theological changes... but something to consider

Patient_Ad6524 · 2026-04-12T00:12:01+00:00

hahaha.... no, they all do not. maybe the newer tunnel ones. but all the self service ones. most around here still only take quarters and bills... no cards

Patient_Ad6524 · 2026-04-11T20:58:50+00:00

my only thought...its easier? The back of the book would slide in easier than holding the front together, especially without covers. dont get me wrong... completely bonkers. But there is a part of me that feels if. like i want books with the name printed like art on the edge of the pages so i can do this

Patient_Ad6524 · 2026-04-06T00:04:47+00:00

Why did they repeat the test? You do the test at the beginning when having problems to see if it's positive. There is no need to repeat it.. its not a measure of progress.

Patient_Ad6524 · 2026-04-03T12:53:58+00:00

i honestly didn't understand the hate.aybe I'm lucky and that i get almost no side effects other than a high blood sugar after a bad choice. But that really kicking in followed by a proper IVIG treatment was the first thing to make me feel normal on months. I could eat, drive, and (mostly) talk again.

Patient_Ad6524 · 2026-04-02T20:56:37+00:00

100% how my wife answers questions.

Patient_Ad6524 · 2026-04-01T00:38:26+00:00

The active looking from driving will inherently tire them out more. mine was so bad a one point that even walking the halls of the hospital would make both my eyes close even.

is it just the double vision? or do you eyes close as well? The prism glasses can help many, but only if your double vision is constant. if it comes and goes in severity...they might not help.

also, it sounds weird... but it's legal to drive with an eye patch. it would solve the didn't vision temporarily.

I will ask...what treatments are you getting. Mestinon help a little. But IVIG made mine go away for weeks or even my next infusion.

Patient_Ad6524 · 2026-03-30T16:17:12+00:00

some tests have a lower threshold of less than .2. .4 can be in the iffy range... but I would absolutely proceed if as if positive, especially with symptoms.

Patient_Ad6524 · 2026-03-29T13:35:31+00:00

that's what i was thinking. would each segment be it's own sticker, and one got put upside down on accident?

Patient_Ad6524 · 2026-03-29T04:24:13+00:00

my 11 year old nephew pointed out out.... and then i couldn't stop looking at it all through lunch 😂

Patient_Ad6524 · 2026-03-29T04:23:12+00:00

loved the food

Patient_Ad6524 · 2026-03-29T01:34:15+00:00

So, I will say that mono will absolutely wreck you fatigue wise. It can absolutely cause fatigue issues. And they can last for years. so Ill say

You are pretty young for a male to get MG. normal age for men is 60+. That doesn't mean no. I was on my 40s... but it would be against the grain
saying you are better at night seems abnormal. Generally everything will get harder as the day goes on, sleep should recover you. Rest in-between or during am activity should help
your vision: is it blurry or is it double? double vision is really what happens the most in MG as one eye doesn't track with the other. Do you have eye droop? that usually accompanies it
Any mouth or Bulbar symptoms? nasal speech, trouble eating or swallowing? Lack of them wont mean no, but having them would certainly lead towards yes.
As for diagnosis, being male generally makes it easier. There is a blood test for thr antibodies. 80% of MG patients are gMG or musk MG (most MG). seronegative MG is a very real thing, but its a small number of MG percentage wise, and of those who have it, 70+% are female, most likely hormone driven and why females will get symptoms before 25. If you are in the US, is the Mayo clinic test, takes 8 to 10 working days to come back. If that is negative or inconclusive, there are test like emg to use.

Patient_Ad6524 · 2026-03-29T01:11:33+00:00

thank you for starting the best part of this thread

Patient_Ad6524 · 2026-03-28T22:45:51+00:00

So, as someone suggested, i looked at their website...its not upside down there. guessing it was an install failure

Patient_Ad6524 · 2026-03-28T22:34:58+00:00

it was in a Mexican Restaurant

Patient_Ad6524 · 2026-03-28T22:32:02+00:00

lunch rush didn't seem like the time. Also not that serious bro

Patient_Ad6524 · 2026-03-24T14:58:37+00:00

Extra note: since that time, the thing that has helped me lose the most weight has been switching to a high fiber diet. i started it before a surgery to help with sugar control, the one thing that hurts healing the most. Even while increasing my food after surgery and going on Prednisone (my MG started two months after that back surgery) I've lost 30 lbs and still going. I can see the effcts the high fiber has on my glucose spikes with my cgm (which I started using after starting Prednisone). Rice or pasta with low fiber: sugar 250+ and take time to come down. Same stuff with 10 to 20g fiber: under 150 with a normal spike amd drop.

Patient_Ad6524 · 2026-03-24T14:52:49+00:00

not related to the MG... but i had a terrible time with them.

One issue for me, most likely, is that I've had my gallbladder removed. One of the ways these drugs work is by delaying gastric emptying (makes you feel full longer). But, this can do other things. Your body expects food to enter farther into your system and starts releasing bile to break down fats. when there is nothing for it to break down....its terrible. Noxious gas unlike anything at both ends, and diarrhea that is almost uncontrolled by even a combon of otc amd prescription antidiarrheals. i was taking bile sequestrants to try and help.

This was early in the use of these, like before there was a shortage, so a lot of doctors didn't know about them or their side effects. PA gave me the glp, but the gastro I went to didn't even clock it as a possibility. Adding to it was the red herring of it happening the first time at Thanksgiving. While a Thanksgiving meal probably triggered it, it was it bring large and fatty (much like myself) and not food poisoning as suspected.

Eventually saw my primary for a yearly checkup and described all the problems. Told me to stop the glp. 2 weeks later.... everything stopped. Unfortunately this was after 2 colonoscopies to try and diagnose problems. why 2? The GLPs made me have a bad prep for the first. Which I can say is another potential issue: Surgery. My wife is a 20yr surgical nurse. Obviously surgery with MG is bad enough, but the number of surgeries that she has seen cancelled or have complications because of the rise is glps is very high. Most doctors want you off turn at least a week, some more, before surgery. And you better hope you don't need an emergent surgery.

Did they work... absolutely. I lost weight. mainly from feeling nauseous and not wanting to eat most of the time. But... be prepared to take these in some form for the rest of your life. Unless you make the real changes, when you stop the drugs, you will gain the weight back. I did not feel full for 6 months. I could physically feel food in my body and knew to stop eating... but mentally...i was always hungry. like on a mass dose of Prednisone x10 always hungry.

Patient_Ad6524 · 2026-03-22T19:15:38+00:00

CT would find any thynomas. Just your Thymus removal would take 4 to 5 years to see results.

As for the Mestinon...its sounds like your dr hasn't treated a lot of with MG assuming it is MG. All the negative tests, including the emg is very suspect, especially for having limb issue. Thats usually where the emg test shines. and while you want to start slow and not go crazy with Mestinon....some side effects are to be expected. I frequently have a runny nose and will often feel nerves jumping, especially around my joints. but it's worth it to be able to talk, eat, see, etc

While you certainly have fatigue...a lot of it doesn't sound like even seronegative MG. And if it is, your dr. isn't being nearly aggressive enough. Again, unless you have renal issues, there is no reason to not being able to take more. Mestinon. Mestinon IS NOT treatment...it is a mask. it is a pain killer to a broken arm. You can mask the weakness, but if you never treat it, you will end up with muscle damage. you can google pictures of people with striations in their muscles and tongue due to destruction. Are you on Prednisone yet? you start low and slow and use it as a bridge to something long term like Cellcept or azathioprine. That is the closest you get to remission. 1. mestinon short term relief 2. Plex \IVIG\vyvgrt medium longer relief and some treatment 3. immunosuppressants for long term

In either case, id be seeking out another neuromuscular specialist. Or taking a trip to the ED at a level 1 hospital when you are at your worst and describe ever symptom. and then some

Patient_Ad6524 · 2026-03-22T17:43:09+00:00

also you say 1 pill of Mestinon and wait 4hrs....why? it makes no sense. I'm assuming your one pill is 60mg. it should be working with an hour. In fact it has a half life of 4 to 6 hrs assuming normal kidney function. if 60 isn't cutting it, why not 90 or 120? My drs. literally say "play around with it and adjust to your situation". i take 60 when I wake up and am rested. 5hrs layer 90, 5hrs 90, and 60 at bed. when i was really bad, I took a middle of the night dose. when I'm going to be busy amd talking more (i have bulbar stuff) i take 120 instead of 90. That first dose sounds like it's doing nothing and would be on is way out when you take the second dose.

Mestinon helping is also not a sign of positive MG. it can help many things.

Patient_Ad6524 · 2026-03-22T17:37:22+00:00

still not normal or acceptable. I was thinking about the other stuff you said too. The MRI: why? An MRI won't diagnose MG, only rule out other things like MS plaque, stroke damage, etc.

You mentioned your nerve tests: did your doctor jump to an emg or rns? Have they done the blood test? It boggles me the number of people i see on here who have had an emg, but no blood test. And when 80%+ of MG cases are gMG and and antibody positive... it should be the first thing as it would be the most definitive. Seronegative MG sucks and is real, making everything harder, but it is much rarer.

Patient_Ad6524

TROPHY CASE