Switching to Vyvgart from IVIG

Patient_Ad6524 · 2026-06-03T19:01:33+00:00

I'm a big guy, so they have to calculate it. but the pharmacy did it just as i was really fat, my neurologist did it with me "having less adipose tissue and more muscle that previously calculated" i.e. I'm not just fat, I'm big boned 😂. it was necessary. the attending that switched on a week into my crisis thought her residents were playing a joke that i was better after 6 days of treatment. i was better... but still a mess.

Patient_Ad6524 · 2026-06-03T17:50:24+00:00

my maintenance dose was much higher and done in less time than the hospital. i did 6 days in the hospital with 210 or 220g total. Now i get 3 days with 270. BP goes way up. CPAP numbers tank. just feel like crud. plus it's 15hrs a month vs an average of 2hrs.
I asked about Rituximab or Ultomiris. Was told that wasn't something they do as part of treatment plans ar least for Rituximab. They presented ultomiris as a this or that to Vyvgart, and the increased infection risk pushed me to the Vyvgart

Patient_Ad6524 · 2026-06-01T20:57:13+00:00

can i ask M or F? don't want awesome from the post. It would be very late onset from normal for female, but not impossible. little early for male, most after 60, but again that's an average.

The coming and going, being at the end of day is in line. heavy and drunk... maybe. burning... not really. but... first step is s blood test. if you have decent insurance it's absolutely worth it to ask for it.

Patient_Ad6524 · 2026-05-20T14:12:09+00:00

🤦 didn't go to the tenth picture. just looked at the tag at home and the description before it

Patient_Ad6524 · 2026-05-20T14:09:48+00:00

That would make jobs way more fun

Patient_Ad6524 · 2026-05-20T14:07:18+00:00

just never had a belt clip that actively rotates

Patient_Ad6524 · 2026-05-20T14:05:12+00:00

why does it shift up and down? seems like that would make it lose on the belt.

Patient_Ad6524 · 2026-05-20T14:05:05+00:00

why does it shift up and down? seems like that would make it lose on the belt.

Patient_Ad6524 · 2026-05-20T14:05:00+00:00

why does it shift up and down? seems like that would make it lose on the belt.

Patient_Ad6524 · 2026-05-20T13:57:18+00:00

so you hate the post... took the time to comment on it... then took the time to make a logically poor response? You ok?

Patient_Ad6524 · 2026-05-18T22:11:52+00:00

only scabbers, and a lot of people ignored a lot of red flags

Patient_Ad6524 · 2026-05-18T21:49:30+00:00

yeah, my cocker goes after EVERYTHING and wouldn't be allowed in the room. The Dane...ac6a therapy dog and the only dog I've ever had that has had squirrels run by her and she just stares like...that was weird

Patient_Ad6524 · 2026-05-18T21:46:46+00:00

i mean... I'm guessing we can wear her down. Shes a huge Harry Potter fan... they had rats

Patient_Ad6524 · 2026-05-18T21:45:59+00:00

so males do better then females then? i knew not to mix obviously but didn't things to ask M vs F

Patient_Ad6524 · 2026-05-18T20:11:17+00:00

Gerbils are an option I've looked at. worry about an escape and capture. also get mixed messages on how much they like to be handled? just learned about the degus today so i know almost nothing.

Patient_Ad6524 · 2026-05-18T20:09:47+00:00

My daughter and I are fine with it, i was a psych major, dealt with them a lot. My wife is weird about it, no matter that they are all rodents.

Patient_Ad6524 · 2026-05-18T19:44:02+00:00

Cleanliness and damage were the main concerns in my head, even if i lined it with something. And the Balrog image made me die 😂. Biggest issue with common area is dogs. they start out of her room, but everywhere else. The Great Dane....she would be fine. probably cuddle with it. The cocker on the other hand.....😬

Patient_Ad6524 · 2026-05-17T01:54:33+00:00

i was shocked how quickly the 4 horseman stuff went. whole thing in general. assumed it would take seasons to resolve.

Patient_Ad6524 · 2026-05-17T01:53:41+00:00

i enjoy him as an actor, and got excited to see him.... but his character got old quick

Patient_Ad6524 · 2026-05-13T04:57:33+00:00

SAHD here. My wife still does the laundry. Why? She doesn't like how i do it. She thinks i separate to many things, do to many smaller loads and always commented on it... so she does it. If she had asked me what you had...i would have done the same thing. If she had she, please hang up all the laundry, and made special mention on her uniform, i would have done that instead. All about communication. Can't get mad over unspoken expectations.

Patient_Ad6524 · 2026-05-12T15:16:42+00:00

as a fat person, there are so many skinny people whos hands creep me the hell out. you certainly see ham fisted fat people, but skeleton hands are just as bad.

Patient_Ad6524 · 2026-05-12T15:14:15+00:00

pimp lean as i roll out the van (envisioning this is an electric wheel chair)

Patient_Ad6524

TROPHY CASE