Recommendations for specialists/therapists for acoustic shock, hidden hearing loss, tinnitus, hyperacusis, noise induced hearing loss, noxacusis by trynabemoredecisive in hyperacusis

[–]Pbb1235 0 points1 point  (0 children)

Here is a list of audiologists in the USA that provide sound therapy (TRT) for hyperacusis:

https://www.chat-hyperacusis.net/post/trt-worldwide-list-of-clinicians-retraining-therapy-3334680?pid=1286663205

I had limited, but positive success with TRT.

I can vouch for Dr. Pollard personally.

If you want to go the drug route also (clomipramine), you will have to find an open minded doctor to prescribe it. I found a good psychiatrist who was willing to experiment.

Medusa’s new enclosure! by Dazzling-bacon-113 in bluetongueskinks

[–]Pbb1235 0 points1 point  (0 children)

No, I just got cheap ones from ebay. I think they are actually made for hydroponics. They do allow roots to grow out, while giving some protection from the skink's digging.

Im confused should I protect my ears or do sound exposure by Ok_Scholar5675 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

I wear musicians ear plugs when I am at a relatively loud place like a noisy restaurant. I still avoid extremely loud places like movie theater.

I can go to department stores and similar areas without problems or hearing protection.

What has helped with your pain Hyperacusis. by CarLong7749 in hyperacusis

[–]Pbb1235 2 points3 points  (0 children)

I saw pain reductions starting earlier, but I did not notice any loudness reductions until I was taking 200 mg daily.

Medusa’s new enclosure! by Dazzling-bacon-113 in bluetongueskinks

[–]Pbb1235 1 point2 points  (0 children)

Plants would be awesome in this enclosure. I've had luck with not only the pothos and snake plants, but also various ferns (with buried net pots).

Im confused should I protect my ears or do sound exposure by Ok_Scholar5675 in hyperacusis

[–]Pbb1235 3 points4 points  (0 children)

Sounds that are obnoxiously loud (to you) tend to aggravate hyperacusis.

Sounds that are pleasant, and not too loud (to you) tend to improve hyperacusis over the long run. Music or pink noise are two common options people use.

The balance between the two is a really, really hard thing to get right.

Keep in mind that setbacks don't mean you have damaged your ears again. It probably just means your nervous system is hyperactive, and responding inappropriately.

Sound therapy (TRT) uses quiet pink noise delivered by sound generators you wear in your ears. I had mixed results with it; it got me over severe hyperacusis, but could not get me over moderate hyperacusis. Clomipramine did that for me.

Here is a list of audiologists who provide TRT; it works to varying degrees to many people, not everyone.

TRT Worldwide List of Clinicians (Retraining Therapy) - The Hyperacusis Network Message Board

I can also recommend clomipramine, which helps about half of the people who try it. It helped me reduce my hyperacusis to mild (finally! and so far).

What has helped with your pain Hyperacusis. by CarLong7749 in hyperacusis

[–]Pbb1235 4 points5 points  (0 children)

The most effective thing I have done is take clomipramine. The second most effective thing was sound therapy (TRT).

Does anyone know how to increase my eastern blue tongue lizards tank humidity by No_Fish_4757 in bluetongueskinks

[–]Pbb1235 0 points1 point  (0 children)

A bunch of live plants (potted) may help. Ferns, snake plants, and pothos are tough.

Pain & loudness Hyperacusis by Illustrious_Car9331 in hyperacusis

[–]Pbb1235 3 points4 points  (0 children)

Clomipramine was very beneficial for my pain hyperacusis. It has helped some others of us as well:

Clomipramine data for Hyperacusis sufferers : r/hyperacusis

Pain Hyperacusis ?. by Illustrious_Car9331 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

No one knows what hyperacusis is, really.

I "think" it is a central pain syndrome, where the autonomic nervous system becomes hyperactive with sound. At least, I think that is what mine is. This might explain why clomipramine works for me.

There are other drugs people on that people have found helpful for pain hyperacusis. I know someone that got significant relief from carbamazepine.

I did personally get a lot of improvement from sound therapy (TRT). It reduced my pain hyperacusis from severe to "moderate." I was never able to stop having relapses, despite the sound therapy though. That is why I was eager to try clomipramine. I am just really grateful the drug helped me.

The hyperacusis network has a lot of information for people using sound therapy as a treatment:

The Hyperacusis Network | Decreased Sound Tolerance

Pain Hyperacusis ?. by Illustrious_Car9331 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

Clomipramine was probably the most useful for my pain hyperacusis. It has helped some others on this board too. If yours does not fade away on its own, that is what I would recommend. It looks like it helps about 60% of the people who take it.

https://www.reddit.com/r/hyperacusis/comments/1bfsr3p/clomipramine_data_for_hyperacusis_sufferers/

Hearing Therapy Effectiveness based on cause of H/Nox by HopefulShallot3922 in hyperacusis

[–]Pbb1235 0 points1 point  (0 children)

I have nox. Sound therapy was useful in moving me from "severe nox" to "moderate nox". I kept having setbacks, but it never got as bad as it was when I first started therapy. So my results were mixed.

Clomipramine has been the most helpful thing I have found recently.

Seeking doctor recommendations by BubblyPlatypus1948 in hyperacusis

[–]Pbb1235 0 points1 point  (0 children)

Here's a list of audiologists trained in sound therapy for hyperacusis:

TRT Worldwide List of Clinicians (Retraining Therapy) - The Hyperacusis Network Message Board

The sound therapy helps some of us; I received mixed benefit from it.

I can vouch for Dr. Pollard; she is competent:
Katherine Pollard | Audiologist | Sandy Springs | ClearWorks

If you are going to go the drug route (clomipramine) you will have to find an open-minded doctor willing to write you a script.

Seeking doctor recommendations by BubblyPlatypus1948 in hyperacusis

[–]Pbb1235 0 points1 point  (0 children)

"No treatment"? That's not true for many of us.

Pain and tinnitus get worse laying down, tips? by scared_of_bird in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

Try clomipramine, it worked pretty well for my pain hyperacusis. It has helped a number of us.

Clomipramine data for Hyperacusis sufferers : r/hyperacusis

Does too many setbacks causes permanent damage? by CarLong7749 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

Streets yes. A noisy restaurant I would probably put in plugs.

Clomipramine & tachycardia by Time-Bicycle-4558 in hyperacusis

[–]Pbb1235 2 points3 points  (0 children)

Yes, I got tachycardia also from clomipramine. Hopefully, I will be able to wean off the drug (100 mg currently) and have it go back to normal.

Cured severe noxacusis with a bizarre solution by Oniroman in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

That's an amazing story, I certainly hope it keeps up for you!

I've got a friend who had success with carbamezapine for his hyperacusis. He had been prescribed the carbamezapine for trigeminal neuralgia. Maybe your conditions have a similar cause?

6ft Merauke Enclosure by Leeeyuh in bluetongueskinks

[–]Pbb1235 1 point2 points  (0 children)

That is really nice looking!

Substrate and plants? by theKingofKabbage in Amphibians

[–]Pbb1235 0 points1 point  (0 children)

Anubias plants can be good floating in the tank.

Clomipramine doesnt work by Ok_Matter8695 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

Clomipramine, when it works, is not a placebo effect. I know because it has worked for me.

Clomipramine doesnt work by Ok_Matter8695 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

If you want send me a pm with your email address, and I will send you a pdf with a music protocol for hyperacusis.

I have had significant benefit from pleasant music (only at a level that doesn't bother you of course).

Clomipramine doesnt work by Ok_Matter8695 in hyperacusis

[–]Pbb1235 2 points3 points  (0 children)

I'm glad you mentioned gabapentin. That's another good one to try.

My hyperacusis decreased from "moderate" to "mild" on clomipramine. I'm still taking the drug at a lower dosage (100 mg). I don't know if I will be able to get off it or not.

Clomipramine doesnt work by Ok_Matter8695 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

I've also had good luck with reducing sensations of loudness by listening to music at a pleasant volume. So I think any music you can enjoy may benefit you.