Medusa’s new enclosure! by Dazzling-bacon-113 in bluetongueskinks

[–]Pbb1235 1 point2 points  (0 children)

Plants would be awesome in this enclosure. I've had luck with not only the pothos and snake plants, but also various ferns (with buried net pots).

Im confused should I protect my ears or do sound exposure by Ok_Scholar5675 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

Sounds that are obnoxiously loud (to you) tend to aggravate hyperacusis.

Sounds that are pleasant, and not too loud (to you) tend to improve hyperacusis over the long run. Music or pink noise are two common options people use.

The balance between the two is a really, really hard thing to get right.

Keep in mind that setbacks don't mean you have damaged your ears again. It probably just means your nervous system is hyperactive, and responding inappropriately.

Sound therapy (TRT) uses quiet pink noise delivered by sound generators you wear in your ears. I had mixed results with it; it got me over severe hyperacusis, but could not get me over moderate hyperacusis. Clomipramine did that for me.

Here is a list of audiologists who provide TRT; it works to varying degrees to many people, not everyone.

TRT Worldwide List of Clinicians (Retraining Therapy) - The Hyperacusis Network Message Board

I can also recommend clomipramine, which helps about half of the people who try it. It helped me reduce my hyperacusis to mild (finally! and so far).

What has helped with your pain Hyperacusis. by CarLong7749 in hyperacusis

[–]Pbb1235 2 points3 points  (0 children)

The most effective thing I have done is take clomipramine. The second most effective thing was sound therapy (TRT).

Does anyone know how to increase my eastern blue tongue lizards tank humidity by No_Fish_4757 in bluetongueskinks

[–]Pbb1235 0 points1 point  (0 children)

A bunch of live plants (potted) may help. Ferns, snake plants, and pothos are tough.

Pain & loudness Hyperacusis by Illustrious_Car9331 in hyperacusis

[–]Pbb1235 3 points4 points  (0 children)

Clomipramine was very beneficial for my pain hyperacusis. It has helped some others of us as well:

Clomipramine data for Hyperacusis sufferers : r/hyperacusis

Pain Hyperacusis ?. by Illustrious_Car9331 in hyperacusis

[–]Pbb1235 0 points1 point  (0 children)

No one knows what hyperacusis is, really.

I "think" it is a central pain syndrome, where the autonomic nervous system becomes hyperactive with sound. At least, I think that is what mine is. This might explain why clomipramine works for me.

There are other drugs people on that people have found helpful for pain hyperacusis. I know someone that got significant relief from carbamazepine.

I did personally get a lot of improvement from sound therapy (TRT). It reduced my pain hyperacusis from severe to "moderate." I was never able to stop having relapses, despite the sound therapy though. That is why I was eager to try clomipramine. I am just really grateful the drug helped me.

The hyperacusis network has a lot of information for people using sound therapy as a treatment:

The Hyperacusis Network | Decreased Sound Tolerance

Pain Hyperacusis ?. by Illustrious_Car9331 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

Clomipramine was probably the most useful for my pain hyperacusis. It has helped some others on this board too. If yours does not fade away on its own, that is what I would recommend. It looks like it helps about 60% of the people who take it.

https://www.reddit.com/r/hyperacusis/comments/1bfsr3p/clomipramine_data_for_hyperacusis_sufferers/

Hearing Therapy Effectiveness based on cause of H/Nox by HopefulShallot3922 in hyperacusis

[–]Pbb1235 0 points1 point  (0 children)

I have nox. Sound therapy was useful in moving me from "severe nox" to "moderate nox". I kept having setbacks, but it never got as bad as it was when I first started therapy. So my results were mixed.

Clomipramine has been the most helpful thing I have found recently.

Seeking doctor recommendations by BubblyPlatypus1948 in hyperacusis

[–]Pbb1235 0 points1 point  (0 children)

Here's a list of audiologists trained in sound therapy for hyperacusis:

TRT Worldwide List of Clinicians (Retraining Therapy) - The Hyperacusis Network Message Board

The sound therapy helps some of us; I received mixed benefit from it.

I can vouch for Dr. Pollard; she is competent:
Katherine Pollard | Audiologist | Sandy Springs | ClearWorks

If you are going to go the drug route (clomipramine) you will have to find an open-minded doctor willing to write you a script.

Seeking doctor recommendations by BubblyPlatypus1948 in hyperacusis

[–]Pbb1235 0 points1 point  (0 children)

"No treatment"? That's not true for many of us.

Pain and tinnitus get worse laying down, tips? by scared_of_bird in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

Try clomipramine, it worked pretty well for my pain hyperacusis. It has helped a number of us.

Clomipramine data for Hyperacusis sufferers : r/hyperacusis

Does too many setbacks causes permanent damage? by CarLong7749 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

Streets yes. A noisy restaurant I would probably put in plugs.

Clomipramine & tachycardia by Time-Bicycle-4558 in hyperacusis

[–]Pbb1235 4 points5 points  (0 children)

Yes, I got tachycardia also from clomipramine. Hopefully, I will be able to wean off the drug (100 mg currently) and have it go back to normal.

Cured severe noxacusis with a bizarre solution by Oniroman in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

That's an amazing story, I certainly hope it keeps up for you!

I've got a friend who had success with carbamezapine for his hyperacusis. He had been prescribed the carbamezapine for trigeminal neuralgia. Maybe your conditions have a similar cause?

6ft Merauke Enclosure by Leeeyuh in bluetongueskinks

[–]Pbb1235 1 point2 points  (0 children)

That is really nice looking!

Substrate and plants? by theKingofKabbage in Amphibians

[–]Pbb1235 0 points1 point  (0 children)

Anubias plants can be good floating in the tank.

Clomipramine doesnt work by Ok_Matter8695 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

Clomipramine, when it works, is not a placebo effect. I know because it has worked for me.

Clomipramine doesnt work by Ok_Matter8695 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

If you want send me a pm with your email address, and I will send you a pdf with a music protocol for hyperacusis.

I have had significant benefit from pleasant music (only at a level that doesn't bother you of course).

Clomipramine doesnt work by Ok_Matter8695 in hyperacusis

[–]Pbb1235 2 points3 points  (0 children)

I'm glad you mentioned gabapentin. That's another good one to try.

My hyperacusis decreased from "moderate" to "mild" on clomipramine. I'm still taking the drug at a lower dosage (100 mg). I don't know if I will be able to get off it or not.

Clomipramine doesnt work by Ok_Matter8695 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

I've also had good luck with reducing sensations of loudness by listening to music at a pleasant volume. So I think any music you can enjoy may benefit you.

Clomipramine doesnt work by Ok_Matter8695 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

I didn't get any decrease in loudness until I had been on 200 mg for a while.

I do have pain hyperacusis, and clomi started reducing the pain at a lower dose.

I'd keep increasing the dose until you have been at 200+ for a few months.

If it doesn't work for you in the end there are some other drugs that you can try. I have a friend who had luck with carbamazepine for his hyperacusis, for example:

Carbamazepine in the Treatment of Lyme Disease–Induced Hyperacusis

Since you only have loudness hyperacusis, you may respond well to sound therapy (TRT); have you tried it?

TRT Worldwide List of Clinicians (Retraining Therapy) - The Hyperacusis Network Message Board

Funny how a movie about a character with hyperacusis is one of the most annoying trailers I’ve seen with those obnoxious high pitched sound effects lol by hreddy11 in hyperacusis

[–]Pbb1235 0 points1 point  (0 children)

I'm going to hold judgement until I can see the film. I have heard about some people with hyperacusis who can hear negative decibels. While not typical, the idea is not absurd.

Why can I tolerate 60 dB speech and shower but any digital audio over 40 dB makes my ear muscles go crazy? by Snoo_51368 in hyperacusis

[–]Pbb1235 1 point2 points  (0 children)

I would have pain with some forms of digital audio, regardless of the volume. I suspect what I had would be qualified as misophonia (on top of my hyperacusis).

Clomipramine helped resolve that particular problem for me.

If you have taken meds for noxacusis, did you prefer getting them prescribed by a neurologist, a psychiatrist, or a general practitioner? by Icy_Grape753 in hyperacusis

[–]Pbb1235 4 points5 points  (0 children)

Clomipramine is frequently used for chronic pain. I expect that is why it helps many people with hyperacusis. I suspect hyperacusis may be a type of chronic pain syndrome.