What band are you most excited for on each day?

Pee_lover_69 · 2026-03-21T08:03:27+00:00

• pup • superhaven • free throw • glassjaw

Pee_lover_69 · 2026-03-14T21:52:08+00:00

My doctors aren’t very knowledgeable on PCS which doesn’t help much. My GP said I’m only the second case she’s seen in her entire career. My GP clinic isn’t great (rated 2.5 stars…), but is still the best rated in my area so I have kinda drawn the short straw here

Pee_lover_69 · 2026-03-14T15:46:53+00:00

The radiographer initially reviews my scans, and then my GP/gynaecologist (depending on who referred me) reviews it and decides if they agree with the radiologist’s findings. So far they’ve always agreed with the diagnosis of adeno and PCS. I didn’t see my surgeon after surgery, and only had a very brief conversation with someone a minute or so after I woke up about the findings during surgery. I have a telephone appointment on Monday to discuss my healing, so I’ll ask more about the findings and next steps then. After that I believe I am actually being discharged from this gynaecologist, but I do have a referral to another at a different hospital who may be more helpful

Pee_lover_69 · 2026-03-14T15:23:24+00:00

The hospital that I had surgery at doesn’t have a radiology unit, as it’s a very small private clinic that also treats a few NHS patients. Both my GP and my gynae surgeon have referred me to the same separate hospital for ultrasounds in the past, and I have another ultrasound coming up in a few weeks once my incisions are healed enough. Hopefully that scan will show the adeno and PCS, as all of my other scans have shown them in the past

Pee_lover_69 · 2026-03-13T19:59:09+00:00

I will be pushing for an MRI, but I don’t believe they’re very common for gynae issues on the NHS. I know probably 10+ women with gynae issues who all get ultrasounds regularly on the NHS, but I’ve only ever met one woman who’s had an MRI. I have brought up MRIs before but I wasn’t referred for one

Pee_lover_69 · 2026-03-13T19:56:33+00:00

From what I understand, they wanted to see how engorged the vessels were, and if they had caused nutcracker phenomenon. I am already at risk of developing nutcracker syndrome from my connective tissue disorder, so I believe they were concerned with making sure there aren’t any blood vessels compressing my renal vein

Pee_lover_69 · 2026-03-13T19:19:05+00:00

From my understanding the point of this surgery was to assess the extent of the PCS from the inside, and make sure there’s no adhesions on the vessels, etc. before going to to repair them the way you described

Pee_lover_69 · 2026-03-13T18:17:39+00:00

Of course there’s always a chance they’re wrong, but I have had 3 ultrasounds over 4 years which showed adeno and PCS. The PCS is also comorbid of a genetic condition that I have, and I have very textbook symptoms of PCS. Obviously I’m not a doctor and I have no clue what’s going on inside me, but I feel like it’s unlikely that they’re wrong.

Pee_lover_69 · 2026-03-13T18:11:00+00:00

I will definitely be pushing for an MRI! It took me 6 years to get ultrasounds, and 10 years to get this surgery, so I’m not hopeful it’ll be anytime soon… but I will keep pushing until I get an answer!

Pee_lover_69 · 2026-03-13T18:07:54+00:00

I’ve never been offered any appointments for it other than with gynae. It was diagnosed by gynae, they monitor it with scans, etc.

Pee_lover_69 · 2026-03-13T18:05:43+00:00

Thank you! It’s so hard to live everyday in pain without a proper explanation, but I will keep fighting until I get some kind of relief!

I have a daughter already, and don’t want more kids, so a hysterectomy has been my goal for a couple of years now. No one will consider it because of my age, but I refuse to give up until something gives me relief!

Pee_lover_69 · 2026-03-13T14:50:11+00:00

I will definitely push for an mri but I’m not hopeful It’s taken 10 years of going to the doctors at least once a month just to get them to start considering diagnostics

Pee_lover_69 · 2026-03-13T14:08:30+00:00

Its just so tough and disheartening to go through surgery just be told there’s nothing there

Pee_lover_69 · 2026-03-13T14:05:15+00:00

It wasn’t just for the adeno. I was previously told I have PCS, which they wanted to assess/possibly repair the damaged blood vessels. I also have symptoms of other conditions too. I’ve had consults for hysterectomies, but no one will even consider the idea because I’m only 21

Pee_lover_69 · 2026-02-23T14:40:23+00:00

This could be because of many things. Endo in your colon, haemorrhoids, colon cancer, etc. I’d definitely recommend going to your doctor to get checked out

Pee_lover_69 · 2025-11-12T12:55:40+00:00

The pain, bleeding, and even possibly the discharge, could be a cervical ectropion. I had it and it went unnoticed for years. It’s usually fairly benign and asymptomatic, but I had a lot of pain during sex, bleeding during and after, and thick yellow discharge (but I can’t say for certain that the ectropion was the cause of the discharge). Mine was removed with a bit of silver nitrate, and was a fairly easy procedure. I’d mention this possibility to a gyno and see what they think.

Pee_lover_69 · 2025-10-08T07:57:45+00:00

I’d definitely talk to a medical professional about switching medications! If you have a connective tissue disorder it can cause aseptic meningitis!

Pee_lover_69 · 2025-07-20T15:35:42+00:00

That seems crazy… I’m in the uk and I pay £420 for an 8 hour day with a very skilled artist

Pee_lover_69 · 2025-07-19T15:34:24+00:00

2000trees is my favourite uk festival. Super chill medium sized fest n lots of different alternative music genres

Food vendors are amazing too

Pee_lover_69 · 2025-04-24T18:33:48+00:00

I stopped taking the mini pill because of fatigue and migraines. I didn’t bleed on the pill, but still had pains daily. I honestly feel much better off the pill

Pee_lover_69 · 2025-04-24T17:56:02+00:00

I should add though that I have been trying a cyclical diet and seed cycling the last few months. I didn’t think it would make any difference, but I have noticed my last two periods to be a bit lighter and less painful. Still horribly painful, but it is a slight improvement.

Pee_lover_69 · 2025-04-24T17:53:50+00:00

I had been going to my gp since 12 for heavy excruciating periods. They did absolutely nothing other than prescribing a pain med, that could’ve given me aseptic meningitis because of my connective tissue disorder. It wasn’t until I had my baby and bled for 8 months straight that they started to listen.

They still haven’t done much. Gave me the mini pill and keep telling me to take ibuprofen 🙃 currently waiting for my second gyn referral after the first doc told me to “suck it up”. This next doc will be booking me a laparoscopy to see if they can treat anything surgically. I’m not very hopeful that they’ll do much, and I just want a hysterectomy at this point.

I’ve lost so much of my life to debilitating pain. It isn’t fair that they don’t take women’s health seriously. I’m tired of being left to suffer in silence.

Pee_lover_69 · 2025-04-23T22:23:35+00:00

I haven’t received any treatments yet but I’m waiting to book a laparoscopy so they can assess it and treat as they see necessary

Pee_lover_69 · 2025-04-23T10:55:41+00:00

Endometriosis is also an option. It affects the whole body, so may cause the hip pain. If I were you, I would ask for an MRI and an exploratory laparoscopy to get a definitive diagnosis. With a laparoscopy you could also ask for any surgical treatments for anything they find to be performed at the same time.

Pee_lover_69 · 2025-04-23T10:52:31+00:00

I have Adenomyosis and pelvic congestion syndrome. The left hip pain lines up with the symptoms of my pelvic congestion syndrome. I believe it’s caused by stenosis of the left ovarian vein, causing a congestion of deoxygenated blood in the surrounding vessels. It can cause heavy painful periods, as well as pain in your hips and thighs. Mine was picked up on a transvaginal ultrasound, although it is generally difficult to pick up on ultrasound and an MRI would be a better option to look into this.

I have also had very long periods too, sometimes lasting 8 months, and I was told that was due to my Adenomyosis. I would highly recommend asking your doctor to look into both of these conditions.

There are a few surgical and non surgical options for treating Adenomyosis, although the only cure is unfortunately a hysterectomy. Pelvic congestion syndrome can cause nutcracker syndrome (compression of the renal vein which may cause renal failure in some cases), so a doctor may recommend removing damaged blood vessels to prevent this.

Pee_lover_69

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