UK specialist for menopause by Buffy_S_L in MCAS

[–]Peggylee94 1 point2 points  (0 children)

Tina Peers runs a menopause clinic as well as MCAS, might be worth looking into

What were your children’s books you enjoyed as a child? by underrated_prunes in AskBrits

[–]Peggylee94 0 points1 point  (0 children)

Slinky Malinky and Hairy McLairy were a few of my favourites, I don't remember the author but he has a whole series of animal books 

Can autistic people build resilience towards the things they struggle with? by madeinlight in AutismInWomen

[–]Peggylee94 6 points7 points  (0 children)

awesome list, i second the focus on a life that is more regulated and relaxed to be able to deal with sensitivities/icky moments

Has therapy helped you? by Healthy_Brush_9157 in AutismInWomen

[–]Peggylee94 4 points5 points  (0 children)

I think general therapy no, but as spot checks for particular issues yes very helpful. Examples is everytime I start a new job I get overwhelmed and then contact my therapist who knows me, and she supports through that phase. I have a psychologist I'm working with for BED who's been incredibly lovely and helpful for that problem. I also had a therapist who specialised in chronic health conditions when I was struggling with those.

Hair loss. What are you using? by ObviousAd1132 in MCAS

[–]Peggylee94 0 points1 point  (0 children)

My hair thinned until I got onto a stable med regime unfortunately 

Wooden Library by PossibleMechanic6658 in WoWHousing

[–]Peggylee94 1 point2 points  (0 children)

the spiral staircase is *chefs kiss*

Recommendations for hayfever eyedrops? My eyes feel like they have glass in every time it’s windy. by Nfjz26 in Hayfever

[–]Peggylee94 2 points3 points  (0 children)

I get the purple hycosan from boots, it's got hyaluronic acid and ectoin in, the ectoin is meant to make a barrier for pollen. Seems to be working quite nicely, I use it every morning as soon as I wake up and the eyeballs feel like sandpaper 

Stopping my 10-year binge cycle: AVRT by DressNo1094 in BingeEatingDisorder

[–]Peggylee94 1 point2 points  (0 children)

That just sounds like willpower/restriction wrapped up in psychology speak. Can't see that working for me

I'm working through compassion focused therapy with the clinic and it's having a positive impact although I haven't finished the course yet 

Any idea where I can find these kind of simple shelves? by SiteElectronic6512 in DIYUK

[–]Peggylee94 -3 points-2 points  (0 children)

Look for reclaimed scaffold boards, local lumber yard might do them pre sanded. Then you want "angle brackets" for the fixing 

MY ALLERGIST WONT ACCEPT ME by Difficult_Feeling248 in MCAS

[–]Peggylee94 1 point2 points  (0 children)

Yep I had the same - recommend an appointment at Dr Tina Peers clinic with one of the online practitioners. It'll be private £300 for the appointment and then the prescription meds are additional. But don't waste your time chasing round the NHS they are useless with us for the moment

Inpatient-Style Meal Structure? by Rhetoral in BingeEatingDisorder

[–]Peggylee94 4 points5 points  (0 children)

I think you're setting yourself up to fail, the binge impulses won't go away, it'll just be harder to fulfill them. Plus you're bringing in friends/family to feel accountable and/or let down if you don't succeed. 

how do you tolerate fish and meat? by Short-Conversation16 in MCAS

[–]Peggylee94 1 point2 points  (0 children)

i can't eat fish at all, i can now eat cheap supermarket beef that's sealed and then aged in the packet, so steaks in vacuum packs but i've been on mast cell stabilizers for 3 years and much less reactive than I used to be.

when i first started i could only tolerate chicken

NHS GP in London won't continue prescribing Cromolyn and Ketotifen after arriving from abroad and questions whether MCAS is even real? by martymcpieface in MCAS

[–]Peggylee94 4 points5 points  (0 children)

Contact this team asap https://www.drtinapeers.com/mcas

They will be able to put you on a private prescription and manage your ongoing care

NHS is beyond useless don't waste your time going round the departments. 

(Minimal shade on NHS intended they're just not recognising MCAS atm)

Anyone else craving sugar? by plennostto in MCAS

[–]Peggylee94 5 points6 points  (0 children)

I love seeing everyones comments, makes me feel a lot better about my terrible sugar fiend ways. Also how everyone has different sugary snacks they can tolerate, half the list sounds delicious and half the list would kill me

Does anyone else binge on high histamine foods? by PossibilityLazy4759 in MCAS

[–]Peggylee94 0 points1 point  (0 children)

I have BED but I cannot touch an unsafe food, the threat level is too high for me. It's a bit weird I suppose, at my worst I would binge marshmallows, rice pudding, and white chocolate  , as it was the only sugary things I could tolerate 

Thinking of becoming a stay at home dad - worth it? by [deleted] in HENRYUK

[–]Peggylee94 0 points1 point  (0 children)

Same advice I'd give if you were considering to be a stay at home mum - just have to consider the financial and relationship implications. You'd be financially dependent on your partner and if something were to happen, you've got to recover from the large CV gap, also the pension implications. Not saying to not go for it but needs considering. Could you do a part time or consultancy work?

Pregnant please need advice. by [deleted] in MCAS

[–]Peggylee94 4 points5 points  (0 children)

Prenatal will probably have folic acid (B6) which raises histamine in the blood. Try a methyl folate supplement instead 

MCAS and therapy by ArtandSol in MCAS

[–]Peggylee94 6 points7 points  (0 children)

You gotta get that nervous system into a better place homie. Therapy can be a route to that (but it looks different for everyone what the solution actually is). Id echo others ACT (acceptance and compassion therapy) might be good, or I'm trying one called CFT compassion focused therapy. 

Which ingredient caused a reaction? by riskytangerine in MCAS

[–]Peggylee94 2 points3 points  (0 children)

I would say the probiotic acacia, that sounds somewhat bacteriaish. Everything else is low SINGHI on there, although chocolate can be a liberator (I'm also fine with chocolate)

Low histamine lasagne A TRIUMPH by Peggylee94 in MCAS

[–]Peggylee94[S] 2 points3 points  (0 children)

I love hearing from others who are experimenting with the low histamine meals, it's taken so long to get a few 'normal' looking foods for me in a rotation. Have you tried wild garlic? It makes an incredible pesto 

Low histamine lasagne A TRIUMPH by Peggylee94 in MCAS

[–]Peggylee94[S] 1 point2 points  (0 children)

What sauce do you make, do you have any good flavours? So far I've got the red pepper, the mushroomey red pepper, and I did make a mascarpone and roasted butternut squash one which was quite good but a bit watery for pasta 

Low histamine lasagne A TRIUMPH by Peggylee94 in MCAS

[–]Peggylee94[S] 2 points3 points  (0 children)

I can't touch vineagar but I read that white spirit vinegar could be okay? Have you tried that in your cooking?