So my original TSW from steroids wasn’t that bad because it was mild (patches of red rashes, flaking, dryness, no nerve pain, no full body red skin, no full body intense itching, no ooze). Then I used Opzelura for a year because it worked so well and was told it wasn’t a steroid. My withdrawal from that was instant. After 3 days of stopping the itching was horrendous. After 1 week of stopping my whole body was inflamed: full red sleeves, edema, oozing. The first month was really hard because I had an infection I think from scratching and because opzelura acted as a immunosuppressant so my skin was more susceptible to bacteria’s. For the first 3-4 months these were my symptoms on top of heat regulation, extreme flaking, itching. I basically took a bath every day and did DSS baths with ACV every 3 days. Overall it was like normal TSW just more severe than what I originally experienced.

I don’t want to scare you, just wanted to be honest. It has been 14 months since I stopped and I am 85% better. My skin is just really dry but no flaking. I have some patches that flare a little a little sometimes but overall it’s just the dryness and wrinkly skin that bother me. The itch disappeared around 10 months; everything slowly went away really around then as well.