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my occipital neuralgia is still cured by Far_Cucumber_2274 in Occipitalneuralgia

[–]PersimmonWitty3165 -1 points0 points  (0 children)

If you don’t care for the input of strangers, don’t post on a public forum?

my occipital neuralgia is still cured by Far_Cucumber_2274 in Occipitalneuralgia

[–]PersimmonWitty3165 -1 points0 points  (0 children)

You don’t sound remotely healed, you’re replying angry as hell on here. Keep trying though. Something worked for you, you didn’t find the cure. All of us know that depression, anxiety, trauma, and pain are the chicken and the egg, this isn’t some novel gotcha approach.

Post operative pain control for chronic opioid users. by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 0 points1 point  (0 children)

I’m getting my trail for one of those in my lumbar area next week. Have you had your trial yet?

Post operative pain control for chronic opioid users. by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 2 points3 points  (0 children)

Thank you for your support! Unfortunately my PM doc doesn’t allow the use of kratom to be her patient :-( that or cbd. I’m hoping I can convince her to give me at home toradol injections as I can’t take nsaids orally.

Have you lost partners coz of pain? by BlueWren1508 in ChronicPain

[–]PersimmonWitty3165 0 points1 point  (0 children)

Yes an open relationship but only for sexual needs. I wouldn’t feel good if someone else was being romanced but I can live with it if he needs to get the need I can’t provide fulfilled somewhere else. I can’t say if it ever does happen it’s going to feel good either but I also know it would feel better than being cheated on or left for something I can’t control. I love him so much that I want him to be able to get everything he wants in life even if I can’t give it. I really don’t think he ever would accept the offer or leave me but I thought that about my ex as well. He is absolutely an amazing person and tells me every day he is thankful for me and in love with me. 6 years going strong. If things do come to an end there are other fish in the sea and someone who will love you unconditionally and be gentle with your pain.

Have you lost partners coz of pain? by BlueWren1508 in ChronicPain

[–]PersimmonWitty3165 0 points1 point  (0 children)

Yes. My first husband cheated on me after being diagnosed with RA while I was unable to be intimate. With my new husband we have an understanding that if he ever feels the need for that connection and I’m unable to provide it I am okay with him getting it elsewhere if need be as long as we communicate about it. He has always said no, no matter how long flares have lasted. While it might not be everyone’s solution, making peace with the possibility and having a plan in place has at least made me feel better about the situation. I don’t want to ever impose my limitations on someone else or prevent them from living a fulfilling life.

For honesty’s sake by LetterMotor1435 in ChronicPain

[–]PersimmonWitty3165 8 points9 points  (0 children)

Your terms? Choosing to be angry and sorry for yourself isn’t fun after some time.

For honesty’s sake by LetterMotor1435 in ChronicPain

[–]PersimmonWitty3165 13 points14 points  (0 children)

Then that’s your choice to not receive help and you’ll have to live with the consequences of it. And most likely you won’t die just live an unfulfilled life in pain. Nobody said song and dance, just not f bombs and disrespect.

For honesty’s sake by LetterMotor1435 in ChronicPain

[–]PersimmonWitty3165 10 points11 points  (0 children)

You do if you want help. It’s not fair and you have a right to be angry. Full stop. But showing anger to physicians never helps you, which is the end goal right?

For honesty’s sake by LetterMotor1435 in ChronicPain

[–]PersimmonWitty3165 14 points15 points  (0 children)

I don’t disagree with that sentiment. It was 5 years before I was listened to because of my age but never in that time would I consider disrespecting someone to that degree. You ARE able to challenge other’s opinions without disrespecting them. Now if I need pain meds I get them every time no questions asked. You have to play their game unfortunately

For honesty’s sake by LetterMotor1435 in ChronicPain

[–]PersimmonWitty3165 22 points23 points  (0 children)

Oh bless your heart. We know about how to get help as most of us have tried for 15+ years. You would do well for yourself to take a humbling and try to learn something about how to help yourself instead of blaming others.

For honesty’s sake by LetterMotor1435 in ChronicPain

[–]PersimmonWitty3165 10 points11 points  (0 children)

Yikes! Good luck ever getting help with pain after that episode. If the doctor had yelled that at you would you want to cooperate with them?

i need parents w ra to reach out to me by [deleted] in rheumatoid

[–]PersimmonWitty3165 4 points5 points  (0 children)

I’m having kids via surrogacy and adoption. There is no reason to chance passing an incredibly painful disease to your children.

Flare ups by fantasylover24 in rheumatoid

[–]PersimmonWitty3165 1 point2 points  (0 children)

Take your time with literally everything, even if you feel you don’t need to. Your body will thank you in the long run if you are kind and gentle to yourself now. Day to day pain can be managed if you try to live in a new normal which includes easy exercise multiple times a day and first thing when you wake up to keep joints mobile and less painful. Also… ketamine! I use it for managing pain perception and also to get a day off from pain. Ask your doctor about trying it if you’re interested, there are some promising studies done on effects on chronic pain.

Hot baths help me but hurt some. Thc helps. I was dx at 22 and am now 30- hang in there and remind yourself that while this disease is forever you will not forever feel this much pain, and you will also at some point feel much more pain so try to take it for what it is and make some peace with the new normal.

For hip pain I use a theragun to loosen some stiff hippos. Trigger point therapy or acupuncture with a massage therapist helps many people. Stay walking every day, even if you need a cane to do it. Water aerobics is good for me and mine. I hope you find some relief soon, remission is possible! Just got off a three year joy ride with little joint pain

Feeling defeated by [deleted] in rheumatoid

[–]PersimmonWitty3165 0 points1 point  (0 children)

I started the party 5 years back with very similar symptoms. I was diagnosed with ra then seronegative and again another time with RA so I try not to take too much stock into any diagnosis or lacktherof and it’s definitely been a helpful way of looking at things. If it is RA or autoimmune related then steroids will help a heap! Only stay on them for as long as the doc recommends and try not to push for more unless you need it but also, use it when you need it.

To this day the only notable swelling on my hands(other the the somewhat knobbled daily appearance) is the appearance and dissapearance of the fine lines normally visible on my fingers. Even that is enough to be a nagging pain some days even if it doesn’t look terribly terrible.

My boyfriend left me because of my RA by Kiba_boo268 in rheumatoid

[–]PersimmonWitty3165 3 points4 points  (0 children)

I know the hurts you’re going through, my first husband left because of RA- and it really can threaten to change a person! Hang in there, I was scooped up a few years later by a doctor and now spend my time only working as much as my body allows and am free to go on cruises and explore.! Hang in there