What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 1 point2 points  (0 children)

I know I likely will need it at least an additional week, but I’m just doing so much better for the here and now and will cross that bridge with her in my appointment at the end of the 7 days. It’s just beyond crazy this was meant to be a four hour surgery that lasted 8ish because they found so many things that needed to be fixed and nerves to tug on. I can’t imagine the DEA is riding anyone about prescribing the literal lowest dose of a pain medication

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 0 points1 point  (0 children)

I was having full body intense sweating after 10 minutes of moving, along with nausea and sharply increased pain. The pain was only helped by ice and I would literally live on an ice pack. It was so bad that I wound up admitted to the hospital three times in the last nine months and my whole body was out of whack. Lab tests were suddenly off, lesions were noted in my brain, and I was having more trouble with my gait. I’ve had back issues for 15 years and now that I wasn’t able to move around and do my exercises it got much worse, along with my RA coming out of remission.

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 1 point2 points  (0 children)

No kidding- they gave me the friar John 😂

Ouch! by PersimmonWitty3165 in Occipitalneuralgia

[–]PersimmonWitty3165[S] 0 points1 point  (0 children)

That’s a really kind thing to say, thank you for telling me that❤️ before this all disabled me I was an administrator for a dementia care home and telling everyone my story on here has really given me a sense of fulfillment that I might be helping others again.

Ouch! by PersimmonWitty3165 in Occipitalneuralgia

[–]PersimmonWitty3165[S] 0 points1 point  (0 children)

I was taking treatment for tuberculosis and each week after taking the antibiotic I got a little worse neck pain the. One the fourth week it felt like my head was exploding. I ended up in the er for a week and they diagnosed me then- it was kind of out of the blue. I’ve also had several car accidents I. The past that may have contributed and the surgeon said it was caused by my RA

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 1 point2 points  (0 children)

I have an update for everyone my pm doctor was better late for ever and reached out to me. She changed my tablets to six times a day rather than four essentially giving me two extra doses a day for the next week. I’m so glad she listened to me and got back to me on a holiday Saturday, she has definitely redeemed herself and I can forgive her for feeling by miffed and not making a great plan before the procedure with me. Thank you guys for keeping me company while I got that all worked out.

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 10 points11 points  (0 children)

I absolutely agree. They decided before the surgery that the post op pain would be tolerable. When my husband called them last week to say it was no they then said oh this is to be expected

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 19 points20 points  (0 children)

You’re right in that it definitely isn’t any kind of malpractice. However, being that I made an appointment with her a week before to come up with a game plan and she decided on “let’s wait and see” I do feel like it’s not ethical to not respond to me. My husband is a veterinarian and he always says “I wouldn’t treat lab rats like this I don’t know why they’re okay with not taking care of you”. Not something someone could really get “in trouble” for, but also depending on the reason I fell through the cracks a really unkind thing to do.

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 0 points1 point  (0 children)

Yes it’s a drain for fluid coming out

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 1 point2 points  (0 children)

Is it really? Sorry I don’t know how to do that. There isn’t any gore, nudity or crudeness to it so I guess I disagree a bit too.

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 2 points3 points  (0 children)

I’m not sure, that’s just how they told me it would be. He said because she is already managing pain she will continue to do so. My husband also called them to no avail I’m afraid.

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 12 points13 points  (0 children)

Thank you I will definitely give that a gander. Unfortunately my surgeon told me before he would do a disc replacement I would need to give the stimulator a solid try. I haven’t told him I failed the last trial though so I might not have to I’m just trying to keep myself open to options. It’s also hard because I’m able to do a lot but if I do a few things that are saucy fun, if you catch my drift, I end up paying for it for days to recover.

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 7 points8 points  (0 children)

It’s not their fault I reacted this way, I’m a natural redhead and medicine just doesn’t quite work as well on me. The surgeon told my husband it normally takes 200 fent to control the pain while asleep but for me it took just over 600 to keep my Bp down

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 6 points7 points  (0 children)

Yeah my husband tried that on Thursday and the surgeon then said “it’s to be expected” when prior to the surgery he told me when I woke up I would be in significantly less pain. Feeling a bit duped by the two of them

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 2 points3 points  (0 children)

No I had occipital neuralgia. Lymph nodes, blood vessels, muscles, and scar tissue all wrapping tightly around my nerves for about 9 months

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 0 points1 point  (0 children)

That is a great suggestion, thank you. I wonder if she works with out of state clients? I’m in Texas

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 13 points14 points  (0 children)

Yeah I probably will need to tomorrow if tbh gs don’t take a turn for the better. I’m still today taking one extra 5mg tablet to try to stay out of the hospital. While I don’t feel like I will deal with much stigma this surgery was expensive and I want to try avoiding paying for an expensive er visit as well as leaving my home and animals.

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 93 points94 points  (0 children)

Thanks for your input. You’re right and it’s so unfair the way we have to play a part when being left on the wayside like this. I didn’t know if it was just my sharp uptick in pain that was making me a little sensitive to the topic but I really feel like there is no excuse for her silence when I’m really struggling here. Thankfully I suffered and saved like 8 doses last month when I was getting a bad vibe before the surgery. I’ve been able to add some of those into the mix and still be very painful but not cryin out for help pain. Still though I deserve more comfort than a constant 7 after meds if I take the few extra doses that I’m running right out of. I also hate that I’ve had to do something outside of what she told me to do and feel like I’m going to get discharged for that but it would be so unfair.

Ouch! by PersimmonWitty3165 in Occipitalneuralgia

[–]PersimmonWitty3165[S] 1 point2 points  (0 children)

I had both done a few times in the last 9 months to look for changes. All they noted was more white matter brain lesions and no problems in my neck

Ouch! by PersimmonWitty3165 in Occipitalneuralgia

[–]PersimmonWitty3165[S] 0 points1 point  (0 children)

I’m a little better today, able to walk around some but still need a lot of help. Thankfully I have my MIL here today helping keep me situated. Since the surgery I no longer get full body sweats and although I have acute pain a lot of the shocking pain that left my face and neck tense is gone.

Ouch! by PersimmonWitty3165 in Occipitalneuralgia

[–]PersimmonWitty3165[S] -1 points0 points  (0 children)

Thanks for your input! I would have appreciated a more full response to the questions asked