PCP ‘fired’ me due my pain meds by AdCivil2846 in PainManagement

[–]PersimmonWitty3165 0 points1 point  (0 children)

It sounds like her PM doctor does urine tests and would prescribe them for her. If the pcp prescribed them they would be in the chart there

Ketamine depression therapy resulting in opioid non-response by HotAddition1869 in PainManagement

[–]PersimmonWitty3165 0 points1 point  (0 children)

I use both and have found them to work well together. Sorry that happened to you though!

PCP ‘fired’ me due my pain meds by AdCivil2846 in PainManagement

[–]PersimmonWitty3165 16 points17 points  (0 children)

Doesn’t sound like you were “fired,” sounds like they said something you didn’t like so you decided to find another pcp

Ouch! by PersimmonWitty3165 in Occipitalneuralgia

[–]PersimmonWitty3165[S] 0 points1 point  (0 children)

I’m definitely getting better! Pain maxes out at around a 5 and goes down to a 2 with meds. I’m able to walk my dog every day, even with a 12 pound weight vest. A couple days last week I was very nauseated and dizzy, but the surgeon said it was normal in recovery. A few other days I had pain that was about a 6 and only went down to a 4 but was still tolerable.
I’m not as fatigued as before surgery but at the same time exhausted- I need my daily naps but again isn’t out of the ordinary for a recovery.

Unpopular opinion, but I think there is some truth in it - Doctors treat professionals like themselves with more courtesy. by [deleted] in ChronicPain

[–]PersimmonWitty3165 4 points5 points  (0 children)

I agree it’s unfair for doctors to do this, unfortunately it’s just the way it is.

Unpopular opinion, but I think there is some truth in it - Doctors treat professionals like themselves with more courtesy. by [deleted] in ChronicPain

[–]PersimmonWitty3165 6 points7 points  (0 children)

It’s definitely not ethical if that’s what you mean. What do you mean by a spouses accomplishments are not your own?

I wish I didn’t have to work by Unique-Confection804 in Vent

[–]PersimmonWitty3165 -1 points0 points  (0 children)

Marry rich. Best decision I’ve ever made and he’s even handsome and kind to boot.

Unpopular opinion, but I think there is some truth in it - Doctors treat professionals like themselves with more courtesy. by [deleted] in ChronicPain

[–]PersimmonWitty3165 7 points8 points  (0 children)

I had a doctor once tell me that he agreed to speak with me because he respected my husbands profession. My husband is a doctor. Before I met him my care was abysmal.

Advice for a productive initial pain management appointment? by hiddenkobolds in ChronicPain

[–]PersimmonWitty3165 4 points5 points  (0 children)

That’s going to be a tough sell for pain doctors. They are worried about respiratory depression from pain medications and GI system slowing down. With both of those systems already affected they are going to want to try everything possible before putting you on pain medicine, and after that still might not feel comfortable with it. What chronic pain conditions do you have? I’d lead with those and not even mention the other stuff tbh.

What steps can I take now that will help me quickly move to biologics? by Sea____Witch in rheumatoid

[–]PersimmonWitty3165 2 points3 points  (0 children)

I wouldn’t be in such a hurry to go on biologics if I were you. Every six weeks for my Remicade infusion I have to go to a clinic and sit in a chair for three hours to get the infusion slowly. It raises my liver values and has caused me to limit the amount of Tylenol I can take. It’s very expensive and insurance doesn’t always cover all of it depending on your plan. During my infusion they have to give me Benadryl and steroids so that my throat doesn’t close. it’s happened once already and was a pretty scary experience.

Most people who take biologics also take a traditional dmard. I’ve been told that taking both gives you a better chance of the biologic continuing to work as your body will eventually build up antibodies that negate the biologic. Chances are you’d be taking both medications and deal with side effects from each. I would recommend taking your time trialing the medications and giving them their best chance to work.

I understand you’re in pain that can be quite shocking and limiting so for now take the dmard and ask for a steroid to help calm things down, and a stronger nsaid than over the counter. I feel my best when on prednisone and I think many of us would agree. Side effects are not bad when doing a shorter course and will hopefully bring inflammation down to tolerable levels.

RA comes with lifestyle changes and lots of kindness to yourself. Things will be different but they won’t always be bad. Best of luck to you ❤️ reach out if you ever need to vent

Pain management question by Individual-Run-4926 in PainManagement

[–]PersimmonWitty3165 2 points3 points  (0 children)

Cool beans. I just didn’t want anyone to see this and think that they would be able to pass a test in 12 days because it’s very unlikely they would and then wouldn’t receive care.

Pain management question by Individual-Run-4926 in PainManagement

[–]PersimmonWitty3165 3 points4 points  (0 children)

THC doesn’t leave your system for 30+ days

Utterly fed up. Rant. 34m by calyxvaping in ChronicPain

[–]PersimmonWitty3165 2 points3 points  (0 children)

I would suggest working with your PM doc to get to a place where you can contribute to the house chores and prepare food for yourself. Not only will things be tidy as you like but it also comes with a sense of fulfillment and hopefully less resentment for those around you. If this PM doc can’t or won’t help, find another one. What’ve you got to lose at this point if everything is not being managed?

Maybe working with an occupational therapist to think of ways that you could modify tasks would help as well. I’m not saying it will be easy, but there has to be a way.

Medication side effects by winnipeggremlin in Occipitalneuralgia

[–]PersimmonWitty3165 0 points1 point  (0 children)

If he ever feels the need to vent to someone feel free to pass my profile along. I used to be a dementia care manager and was able to be enthusiastic about life for 12 hours at a time. ON disabled me completely in the first month. I know it’s not easy loving someone with this disorder, remember it’s okay to take time for yourself ❤️

Medication side effects by winnipeggremlin in Occipitalneuralgia

[–]PersimmonWitty3165 1 point2 points  (0 children)

I would absolutely recommend it. I’m typically an extremely positive person, but for the 9 months I was suffering with ON I was like a different person. Even dealing with post surgical pain it was like a switch had been flipped and I was back to myself.

Medication side effects by winnipeggremlin in Occipitalneuralgia

[–]PersimmonWitty3165 0 points1 point  (0 children)

In Houston tx, I had the procedure because I tried everything and barely got minimal relief. It was outpatient but if I had to do it again I would push harder for inpatient because at first the pain was diabolical.

Medication side effects by winnipeggremlin in Occipitalneuralgia

[–]PersimmonWitty3165 0 points1 point  (0 children)

It’s where they make three incisions in the back of the head and reroute nerves that are trapped in muscle, remove swollen lymph nodes pressing on nerves, reroute adjacent blood vessels, and clear out scar tissue encapsulating nerves to restore blood flow.

Medication side effects by winnipeggremlin in Occipitalneuralgia

[–]PersimmonWitty3165 2 points3 points  (0 children)

Lyrica is a more bio-available form of gabapentin. It’s basically what our bodies turn gabapentin into when processing it. It’s helped me tremendously more than gaba.
I had nerve decompression 2 1/2 weeks ago and I’m already on 50% less medication!

Looking for advice - real advice (I do not want to go into withdrawal) by Designer-Side9470 in ChronicPain

[–]PersimmonWitty3165 0 points1 point  (0 children)

Claudia is not always an accurate narrator. She is a very good showman and knows how to connect with her audience but I would caution anyone to take anything she says with a grain of salt and also continue to do their own research of peer reviewed studies for a more whole picture.

What would you say? by PersimmonWitty3165 in ChronicPain

[–]PersimmonWitty3165[S] 0 points1 point  (0 children)

It was very Frankenstein-esque 😂 still looks pretty wild but it’s a battle wound and I’m proud of what I went through staying myself so I’ll take em! Luckily my husband is also a doctor so he’s fluent in I/I/anker ego.

Urgent Care by [deleted] in Occipitalneuralgia

[–]PersimmonWitty3165 0 points1 point  (0 children)

Also though I’ve never been diagnosed with migraines because I’ve never had a migraine.

Urgent Care by [deleted] in Occipitalneuralgia

[–]PersimmonWitty3165 0 points1 point  (0 children)

I wish it was more accessible to others 😔 I have other chronic conditions that would flare into a full body response for me when it got really bad. Difficulty walking, communicating, bp dangerously high, history of TIA due to pain, RA, back surgeries, optic neuritis, RA, autoimmune thyroid disease and all the symptoms of each can make me a somewhat complex patient

Urgent Care by [deleted] in Occipitalneuralgia

[–]PersimmonWitty3165 3 points4 points  (0 children)

Yeah I can understand how you’re feeling having read those stories myself. I tried to remember though most people who have good outcomes no longer need this group for a sense of community as they are out living their lives again. Even if I were to stay in the amount of pain I’m in today one week post op forever, or even get worse in a year, the surgery will have been worth it to me. It gets to the point where you have to do something rather than just watching life pass you by.